🌍 Today is the 6th annual International #MyotonicDystrophy Awareness Day! 📢Shoutout to all our MDF support groups and their facilitators for joining us in going #GreenForDM this year to raise awareness! Join them by wearing green and tagging us on social media today! www.myotonic.org/internationa...

Go #GreenForDM! Raising #myotonicDystrophy awareness can be as simple as wearing green 💚 Join the MDF Team and the DM community — post your pic, use #myotonicDystrophy, and tag MDF to show your support on Awareness Day! 💪✨Learn more at: www.myotonic.org/internationa...

Today (September 15) is the International Myotonic Dystrophy Awareness Day. We join 60+ organizations worldwide to raise awareness, advance research, and improve care for those living with #MyotonicDystrophy.
#MyotonicDystrophyAwareness

La #DistrofiaMiotónica afecta al sistema nervioso central y otros sistemas corporales: corazón, glándulas suprarrenales, tiroides, ojos, tracto gastrointestinal, etc.

#DíaDistrofiaMiotónica #MyotonicDystrophyDay #DíaMundialConcienciaciónDistrofiaMiotónica #MyotonicDystrophy

🔬🧬Over 40 leading biopharmaceutical companies & institutions are racing to develop promising research which may lead to the first FDA approved treatments and a cure for #myotonicDystrophy. 💚🔗Support DM research & drug development, raise awareness on Sept 15: www.myotonic.org/internationa...

Cuando la transmisión es hereditaria, se produce anticipación de la #DistrofiaMiotónica. Los síntomas se producen antes y de forma más grave que en sus progenitores

#DíaDistrofiaMiotónica #MyotonicDystrophyDay #DíaMundialConcienciaciónDistrofiaMiotónica #MyotonicDystrophy #DM1

La #DistrofiaMiotónica es una enfermedad hereditaria autosómica dominante. Si sólo un miembro de la pareja la padece, la probabibilidad de transmitirla a sus hijos es del 50%
#DíaDistrofiaMiotónica #MyotonicDystrophyDay #MyotonicDystrophy #DM1

Millones de afectados por #DistrofiaMiotónica están sin diagnósticar. Lo que redunda en posibles riesgos para su vida, por ejemplo en caso de una simple intervención quirúrgica con anestesia
#DíaDistrofiaMiotónica #MyotonicDystrophyDay #MyotonicDystrophy #DM1

El diagnóstico de la #DistrofiaMiotónica requiere de un análisis genético que no siempre es posible o es barato
#DíaDistrofiaMiotónica #MyotonicDystrophyDay #DíaMundialConcienciaciónDistrofiaMiotónica #InternationalMyotonicDystrophyAwarenessDay #MyotonicDystrophy #DM1

Today, more than 60 organizations worldwide unite for the sixth annual International #MyotonicDystrophyAwareness Day to strengthen registries, advance research, and improve access to care for people living with #myotonicDystrophy.

Learn more at myotonic.org/global-allia...

The global #myotonicDystrophy patient advocacy community is asking Novartis to complete its analysis of the HARBOR data, explore the secondary and exploratory findings, and not abandon DM.

Read the open letter at myotonic.org/an-open-lett...

New proclamation in Gainesville, FL for International #MyotonicDystrophy Awareness Day! 🎉 MDF Support Group Facilitators Beth, David, and Belen, alongside friends, & researchers from UF made it happen! 🏛️💚 Learn how YOU can request a local proclamation at: myotonic.org/wp-content/u...

Tomorrow, September 15, is International Myotonic Dystrophy (DM) Awareness Day. To raise awareness of DM, prominent New York landmarks will light up in green.
#MyotonicDystrophy

Due to the varied and complex symptoms of #myotonicDystrophy, people living with DM need a coordinated system of care! 🌐 Support better access to care and awareness in healthcare professionals by spreading awareness on Sept 15! 💚🔗Learn more at: www.myotonic.org/internationa...

As the most variable of all known genetic conditions, #MyotonicDystrophy looks different for everyone! 🔬🧬Help improve access to care and advance research for treatments by supporting #myotonicDystrophy Awareness on September 15th! 💚🔗Learn more at: www.myotonic.org/internationa...

Clinical education is critical to help doctors recognize #myotonicDystrophy. 🩺 Early diagnosis and care can save lives! Improve DM medical education by supporting#myotonicDystrophy Awareness on Sept 15th! 💚🔗Learn more at: www.myotonic.org/internationa...

Lack of familiarity by healthcare professionals can allow #myotonicDystrophy to be misdiagnosed for decades. 🧑‍⚕️🩺People living with DM need access to testing and counseling to receive appropriate healthcare. 💚🔗Learn more at: www.myotonic.org/internationa...

🎉 Congratulations to Dr. Araya Puwanant at Wake Forest University School of Medicine on receiving a $3 million NIH/NINDS research grant!💚 We’re excited to see her brain structure, clinical endpoints, and biomarkers in #MyotonicDystrophy Type 2, move forward! 🧠🩺🧬

🎉 Congratulations to Dr. Marwa Zafarullah, on being a 2026 40 Under 40 honoree! She is advancing brain-related disease research in #myotonicDystrophy that may help accelerate therapeutic development. 🧠https://www.bizjournals.com/sanjose/news/2026/06/11/40-under-40-2026-honorees.html

Myotonic dystrophy symptoms usually become more severe with each generation, yet there is currently no cure and no approved treatments. 🔬💚Help us get closer to better care and a cure by spreading #myotonicDystrophy awareness on September 15! 🔗Learn more at: www.myotonic.org/internationa...