RDU: See y'all at the Boot Room tonight!
Check HEYLO for updates on all of our meetups! www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #raredisease #huntingtonsdisease
@hdreach.bsky.social
@hdreach.bsky.socialRDU: See y'all at the Boot Room tonight!
Check HEYLO for updates on all of our meetups! www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #raredisease #huntingtonsdisease
@hdreachgameoverhd.bsky.social#Live playing #BigWalk on www.twitch.tv/hdreachgameo...
Fun gameplay, chatting about #huntingtonsdisease, and hanging out! Come join!
@andygates.bsky.socialInteresting! 8h intermittent fasting doesn't not work for Huntington's. More studies needed: sign me up! news.ohsu.edu/2026/09/17/i... #huntingtonsdisease #science
@reader-views.bsky.socialNew Podcast Episode: Corinne Brown joins Inside Scoop Live to talk about her book, "Me, Mom & the Monster." It's a candid, heartfelt memoir about one woman's Huntington's diagnosis, and the love that carries a family through it. buff.ly/286drXY #podcast #HuntingtonsDisease #amreading
@hdreachgameoverhd.bsky.socialAuthor Erin Paterson came on for a #StoryTimeStream and gave the best advice for those starting their #huntingtonsdisease journey. It can be scary to take a step forward into the community and asking for support- but know that we are here and want to be a support to you.
#hdreachgameoverhd #FYP
@socialhdlancos.bsky.socialTominersen: GENERATION HD2 Results and Key Learnings, will take place on Tuesday, 29 September 2026, 16:00–17:30 CEST via Zoom. Find out more and register at: ehdn.org/ehdn-platfor...
@uofuneurology.bsky.socialJoin the #HDSA Utah Chapter for Education Day!
Learn about caregiver resources, disability and legal planning, HD research and more.
đź“… Oct. 17, 2026
⏰ Check-in: 9:30 a.m.
đź“Ť Imaging & Neurosciences Center
Register: utah.hdsa.org/edday
#HuntingtonsDisease
@socialhdlancos.bsky.socialLast week in Colombia, Asun Martinez, from the EHDN/MDS-ES Fellowship Programme and former Lanco met with Elisabeth Castro from Venezuela, who completed an internship in Barcelona this year. Learn more about this program at: ehdn.org/pt/hd-clinic...
@hdreachgameoverhd.bsky.social#LIVE playing #BigWalk for the first time!
Come hangout as we journey through and also spread some #huntingtonsdisease awareness along the way!
@socialhdlancos.bsky.socialOur Spanish Lanco, Marta, frequently contributes to the Enroll-HD monitoring efforts in Latin America. Last week, she also participated in the 2026 Latin America Huntington’s Disease Conference in MedellĂn, Colombia.
@hdfcures.bsky.socialAt HDF's HD2026 Symposium, a record crowd of 300 researchers from around the globe pushed the frontiers of science in their urgent quest for treatments for Huntington's disease, a devastating brain disorder.
Read key highlights: hdfoundation.org/hd2026-recap...
@hdreach.bsky.socialRecord Fantasy Football season this year with 36 players! Thank you all for joining us, donating, and the fun smack talk already happening!
What is even better, though, is that these individuals have helped raise $900 for our organization to continue serving the #huntingtonsdisease community.
@hdreach.bsky.socialAMT-130 Moves Forward in Regulatory Review uniqure.gcs-web.com/news-release...
#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd