@angioedemanews.bsky.socialStay in the know—and never miss an update! https://bit.ly/3FHecMk
Sign up for the weekly newsletter, because knowledge is power, and you’re not alone!
#Angioedema #HAE #PatientSupport #Newsletter #RareDisease #AngioedemaNews #Bionews
@angioedemanews.bsky.socialTake a moment today to recognize your progress: https://bit.ly/4kUuC33
It’s easy to get caught up in “what ifs” about the future, but don’t forget to celebrate how far you’ve come.
#Angioedema #HAE #ChronicIllness #CaregiverLife #ProgressNotPerfection #RareDisease #AngioedemaNews #Bionews
@allermd.bsky.social#FDA grants priority review to #lonvoguran #ziclumeran for #hereditary #angioedema. www.healio.com/news/...
@angioedemanews.bsky.socialDiscover on-demand options for managing swelling attacks: https://bit.ly/4mCCnvR
#Angioedema #HAE #RareDisease #TreatmentOptions #HealthCare #AngioedemaNews #Bionews
@angioedemanews.bsky.socialLearn how to recognize and manage caregiver burnout—read more here: https://bit.ly/4dO76SU
#Angioedema #CaregiverSupport #AngioedemaNews #Bionews
@angioedemanews.bsky.socialTake a closer look: https://bit.ly/4hlD5fe
Whether you're dealing with gremlins or angioedema, writing down clear instructions is crucial, says columnist Danita LaShelle Jones.
@angioedemanews.bsky.socialDiscover more: https://bit.ly/4ylpkVk
A long-acting therapy for hereditary angioedema substantially reduced HAE swelling attacks for about six months, updated trial data show.
@angioedemanews.bsky.socialDiscover how to navigate intimacy and angioedema: https://bit.ly/43DYuLc
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
@angioedemanews.bsky.socialTake a moment today to recognize your progress: https://bit.ly/4kUuC33
It’s easy to get caught up in “what ifs” about the future, but don’t forget to celebrate how far you’ve come.
#Angioedema #HAE #ChronicIllness #CaregiverLife #ProgressNotPerfection #RareDisease #AngioedemaNews #Bionews
@angioedemanews.bsky.socialStay in the know—and never miss an update! https://bit.ly/3FHecMk
Sign up for the weekly newsletter, because knowledge is power, and you’re not alone!
#Angioedema #HAE #PatientSupport #Newsletter #RareDisease #AngioedemaNews #Bionews
@angioedemanews.bsky.socialDiscover Hollie's story: https://bit.ly/4lDaF0K
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness #Misdiagnosed
@angioedemanews.bsky.socialFeeling overwhelmed, exhausted, or isolated with angioedema? https://bit.ly/4fBXhJ6
Whether you’re looking for information, community, or support, we’re here every step of the way.
#Angioedema #AE #AngioedemaAwareness #RareDiseaseCommunity #YouAreNotAlone #AngioedemaNews #Bionews
@angioedemanews.bsky.socialTake a closer look: https://bit.ly/46I2cnF
Columnist Natalie Sirota recently had the pleasure of meeting Friedreich's ataxia columnist Matt Lafleur, a key part of the Bionews family.
@allermd.bsky.socialPatients with #hereditary #angioedema receiving daily #deucrictibant extended-release tablets as long-term prophylactic therapy had a reduced monthly attack rate vs. placebo of 83%. www.healio.com/news/...
@angioedemanews.bsky.socialGet the scoop: https://bit.ly/4rkCYoJ
Lower blood levels of the FAP enzyme may help distinguish idiopathic angioedema from other angioedema types, a study suggested.
@angioedemanews.bsky.socialDiscover Hollie's story: https://bit.ly/4lDaF0K
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness
@angioedemanews.bsky.socialDiscover how to navigate intimacy and angioedema: https://bit.ly/43DYuLc
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
@angioedemanews.bsky.socialGet the scoop: https://bit.ly/4y1EzlQ
In a late-stage trial, a once-daily preventive treatment for hereditary angioedema cut the frequency of swelling attacks by more than 80%.
@angioedemanews.bsky.social@angioedemanews.bsky.socialDiscover more: https://bit.ly/4cNzjtE
Columnist Hollie Amadio started using her voice because she wanted to be heard. Now, she works to ensure other patients are heard, too.