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Grilled Cheese is a product of Village Compute

Version devBuilt at: 2026-10-16 08:00:47 EDT

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@pscsupport.bsky.socialSep 16, 2026, 12:01 PM

Living with #PSC often means managing unpredictable energy levels and severe #fatigue, a symptom that isn't always visible to others.

If you're navigating fatigue you don't have to figure it out by yourself.

For info, guidance & support visit us at pscsupport.org.uk. #ChronicFatigue #LetsBeatPSC

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@pscsupport.bsky.socialSep 14, 2026, 7:45 AM

Today at 7pm UK time! Still time to register for our free Ask the Expert webinar on PSC & IBD, featuring Dr Rimmer & Dr Chandni Radia + a live Q&A.
🗓️ TONIGHT | ⏰ 7pm UK
📍 Live on Zoom
Secure your spot now 👇
us06web.zoom.us/webinar/regi... #LetsBeatPSC #PSCIBD #AskTheExpert

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@pscsupport.bsky.socialSep 13, 2026, 8:30 AM

Have you been offered access to a clinical trial for PSC?

This short is from a special PSC Support Ask the Expert session with international PSC experts who mapped out the road to effective treatments.

Full session & extracts: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport

@pscsupport.bsky.socialSep 12, 2026, 8:15 AM

With few hills or inclines, Barcelona Marathon course is flat and fast, and suits first time runners, or those going for a PB! Plus it's a great excuse to explore this unique city while raising much needed funds for #PSCSupport.
➡️ runforcharity.com/charity-regi... #LetsBeatPSC #TeamPSCSupport

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@pscsupport.bsky.socialSep 11, 2026, 9:00 AM

How do we improve pregnancy care in rare liver disease? Senior research volunteer Maria Richardson represented PSC Support at the ERN RARE-LIVER workshop to help draft new patient care pathways informed by real-world experiences. Read more: www.pscsupport.org.uk/rare-liver-d... #LetsBeatPSC

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@pscsupport.bsky.socialSep 10, 2026, 9:01 AM

Follow Gemma and Gordon's Great North Run and support them here: ajbellgreatnorthrun2026.enthuse.com/pf/gemma-car...
ajbellgreatnorthrun2026.enthuse.com/pf/gordon-sh...
#LetsBeatPSC

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@pscsupport.bsky.socialSep 10, 2026, 9:00 AM

This year, my boyfriend Gordon and I are running the Great North Run for PSC Support, exactly one year after I was discharged from hospital following my liver transplant.
I was diagnosed with PSC in 2020, and listed for transplant in 2023 after my health took a sudden decline. (1/4) #LetsBeatPSC

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@pscsupport.bsky.socialSep 9, 2026, 8:46 AM

An optimistic outlook on the Norucholic acid (NCA) being approved by regulators in the near future.

This is from a special Ask the Expert session with international PSC experts who mapped out the road to effective treatments.

Full session and extracts: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport

@pscsupport.bsky.socialSep 8, 2026, 6:00 PM

Did you know the Asp-PSC Clinical Trial is one of the largest trials for PSC? With 46 UK hospitals participating, taking part is easier than ever. Speak to your medical team & #AskAboutAsp!
More info & hospital list:
www.pscsupport.org.uk/find-psc-res...
#PSC #ClinicalTrials #LetsBeatPSC

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@pscsupport.bsky.socialSep 6, 2026, 8:30 AM

When will we have treatments for PSC itch (pruritus)?

This extract is from a special PSC Support Ask the Expert session with int'l PSC experts who mapped out the road to effective treatments.

Full session and extracts here: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport

@pscsupport.bsky.socialSep 5, 2026, 9:00 AM

Understanding your immune system is a key part of managing your overall health.

Want to learn more about how PSC affects the body? Visit our website for clear, expert-backed information:
pscsupport.org.uk/overview-of-...

#PSCAwareness #IBD #AutoimmuneDisease #LetsBeatPSC (3/3)

@pscsupport.bsky.socialSep 3, 2026, 8:45 AM

"The challenge I set myself of 100,000 steps per week for the month of July is minor compared to the challenge my niece Melly faces on a daily basis." Thanks to Marianne’s dedication and the generosity of her supporters, she raised over £1,300 to help us continue our work. Thank you! #LetsBeatPSC