@achronicvoice.com"Yet the current version of us — in this time, in this place & in this #circumstance — is bound to need an upgrade. The world is ever changing..We have yet to reach the full #potential of who we can become.": buff.ly/KAqDjl9
#PersonalDevelopment #disabled #spoonie #ChronicIllness #LifeJourney
@lightningduck.bsky.socialThis is sadly true in my life
@achronicvoice.com"Not dying in the #ICU was just the beginning. Now I had to learn how to live..Specialist after #specialist appeared until I had a #healthcare “team.” The trouble I was in was heavy & profoundly sobering.": buff.ly/QpJY8R6
by @stillrollingoutdoors.com
#ChronicIllness #ChronicLife #disabled #spoonie
@smartpatient.bsky.socialTip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.
@kadavercosplay.bsky.social3rd day of infusions done! One more and I'm free for a while. Yay! 😄
#chronicillness #ms #epilepsy #multiplesclerosis #infusiontherapy
@emeraldaspects.bsky.socialThe pinned GoFundMe campaign is still active, please donate if you can, sharing ALWAYS helps. #InvisibleIllness #ChronicIllness #ChronicPain #Disabled
@michanko.bsky.socialWhat it’s really like to have chronic illness/invisible illness….
#chronicillness #invisibleillness #🦓💜
@mgnews.bsky.socialLeave a 🤖 in the comments if auto-correct doesn’t believe your medical terms. #ChronicIllness
@achronicvoice.com" #Naming what is actually going on — You have chronic #sicknesses. It is not your #fault. It’s not for lack of effort or sleep that u can’t do all the things. I’m #sick; it's not my fault I can’t do all the things.": buff.ly/xZzGwfh
@angioedemanews.bsky.socialTake a moment today to recognize your progress: https://bit.ly/4kUuC33
It’s easy to get caught up in “what ifs” about the future, but don’t forget to celebrate how far you’ve come.
#Angioedema #HAE #ChronicIllness #CaregiverLife #ProgressNotPerfection #RareDisease #AngioedemaNews #Bionews
@smartpatient.bsky.socialTracking my symptoms for just two weeks helped me spot a pattern I'd been missing for years. Turns out my worst flare days lined up with certain foods. Sometimes data reveals what intuition can't.
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@chronicallykiki.bsky.socialHaving my disability cut by nearly £400 is really taking it's toll.
Every little helps. 💖
#spoonie #vtuber #vsky #ffxivstreamer #twitchaffiliate #disability #chronicillness #cfsme #mecfs #smallstreamer #helpsky #mutualaid #maboost #invisbleillness #indievtuber #helpfolkslive
@mgnews.bsky.socialThis Friday, we’re going live with Tiffani Licciardello (IG: tiffanihealing), who is newly diagnosed with myasthenia gravis. Together, we’ll compare two very different stages of the MG journey: https://bit.ly/4yvc4gK
@smartpatient.bsky.socialBrain fog is real and it's not laziness. It's your body telling you something. I started noting when fog hits hardest and found it peaks after certain triggers. Knowledge is power.
@smartpatient.bsky.socialLearning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.
@imchronicallyill.bsky.social
@wordwitchlife.bsky.social