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@tomkindlon.bsky.socialSep 8, 2026, 10:01 AM

8/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

COGNITIVE DYSFUNCTION (BRAIN FOG) IN ME/CFS R6IESOArH SCO36942 "Head full of cotton wool." INFORM. INFLUENCE. INVEST.
@crashmargulies.bsky.socialSep 8, 2026, 12:08 AM

Full essay, 3,026 words - crashmargulies.dreamwidth.org/35286.html

#MyalgicEncephalomyelitis #LongCOVID #PostExertionalMalaise #SpoonTheory #PENE #PEM #MEcfs #MillionsMissing

@tomkindlon.bsky.socialSep 7, 2026, 10:37 PM

8/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS "My family are used to it, after 20 years. They just help me as much as possible. I am very grateful for them. If I am out, it is more obvious that I struggle. When I talk to people, and can't find words, or say something wrong, I get looks of pity, or confusion. I really don't like the looks of pity." Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey tri RESEARCH UK SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 7, 2026, 8:35 PM

7/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

COGNITIVE DYSFUNCTION (BRAIN FOG) IN ME/CFS "Sometimes it's like an invisible pause button has been pressed in my brain, and I just can't think anymore. Other times it's like a sense of static in my brain, and I can't think clearly until I sit or lie down to recover. If I don't rest my brain, it leads to me stuttering and or increased stilted speech..." 611% R ES,EjAik C H SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 7, 2026, 7:23 PM

7/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS "Since it's not measurable and changes day to day or hour to hour working is not available where you can call in without advance warning because your brain is on hiatus. It often makes me feel stupid when I'm anything but..." Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey 611% RESiEjAr H SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 7, 2026, 6:29 PM

6/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

COGNITIVE DYSFUNCTION (BRAIN FOG) IN ME/CFS "Slow, fuzzy feeling. Like wading through treacle. Forget basic things” INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 7, 2026, 5:18 PM

6/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS "... I'd been an artist all my life and suddenly I couldn't draw! I was horrified. Then I discovered I couldn't read a book after being an avid reader all my life. Friends didn't understand, and I couldn't explain how I felt. I'd nothing to compare it to. I lost friends and relatives because I hadn't the wherewithall to join in." Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey gilh RESEARCH UK SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 7, 2026, 3:10 PM

5/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

COGNITIVE DYSFUNCTION (BRAIN FOG) IN ME/CFS "Consider my brain the British Library, filled with loads of knowledge and information. On a good day I can access the lot, know where everything is, complete tasks, read, and be fully present. On an offish day the catalogue is missing. I know the information is in there, I just can't find it. On an badish day the library is in another language I don't understand. I can't translate the questions let alone find the answers. On a really bad day, I'm locked outside." aft RESEARCH UK SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 7, 2026, 2:02 PM

5/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS "Couldn't do my job that I loved. It nearly broke my heart to have to get Medical Retirement. For some reason, I just couldn't do what I'd always done before with no problems...." Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey hill% R E SiEjAr H SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 7, 2026, 12:54 PM

4/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

COGNITIVE DYSFUNCTION (BRAIN FOG) IN ME/CFS "It feels like my brain just stalls. I can know something, sometimes something I know very well, but I can't access it or put it together. I lose what I was thinking about halfway through a thought..." REsofir SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 7, 2026, 11:10 AM

4/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS "Couldn't do my job that I loved. It nearly broke my heart to have to get Medical Retirement. For some reason, I just couldn't do what I'd always done before with no problems...." Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey hill% R E SiEjAr H SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 7, 2026, 10:15 AM

3/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

COGNITIVE DYSFUNCTION (BRAIN FOG) IN ME/CFS "Words or phrases that I know well don't come to mind. It's as if a blank wall comes down and says 'no more'..." RESEARCH UK SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 6, 2026, 10:59 PM

3/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS "Cannot socialise in a group. Cannot drive" Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey RESEARCH UK SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 6, 2026, 9:02 PM

8/
“No person with a serious disability should have to fight the very systems that are supposed to provide care and protection.”

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

@tomkindlon.bsky.socialSep 6, 2026, 7:40 PM

2/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

Impact of cognitive dysfunction (brain fog) in ME/CFS "I was a lawyer, but I can no longer work due to the cognitive dysfunction from ME/CFS and POTS. Life admin (health, parenting, finances etc), once the footnote at the end of each day, is now my full-time, unpaid job. Yet, I'm still drowning because my brain doesn't function efficiently enough ...." Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey larik RESEARCH UK SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 6, 2026, 6:42 PM

7/
“even in countries with well-developed healthcare and social systems, many people with ME continue to experience harm because outdated beliefs, lack of training and poor implementation of current knowledge persist.”

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

@litsadremousis.bsky.socialSep 6, 2026, 6:09 PM

I quit her right BEFORE I was properly diagnosed:

I knew something huge was getting missed and, obviously, I was right.

I'd only stayed w/ her at all b/c she knew #MyalgicEncephalomyelitis is a serious, multi-systemic, physiological illness and most of Polyclinic failed in its duty to care.

@tomkindlon.bsky.socialSep 6, 2026, 5:06 PM

2/

Headings:
1. The Diagnostic Battle
2. “It’s A Trap!” - Diagnoses of Exclusion
3. Unpaid NHS Admin Duties
4. The Brick Wall of Welfare
5. The Social Toll - Relentless Interrogation
6. Worn Out Carers
7. The Gagged Target of Vitriol
8. Conclusion

#PwME #LongCovid #MyalgicEncephalomyelitis #MEcfs

@tomkindlon.bsky.socialSep 6, 2026, 3:48 PM

🧵
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

www.meresearch.org.uk/the-experien...

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

1/

Impact of cognitive dysfunction (brain fog) in ME/CFS "I'm just about to lose my job. I haven't been able to attend for months. I used to be a multi tasking, problem solving, target meeting, very hard worker. Now I can barely coordinate my medical appointments or reliably string a sentence together." Response from ME Research UK Symptom Saturday Cognitive Dysfunction Survey R E SiEjAit C H SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialSep 6, 2026, 3:34 PM

6/

“Research is essential, and we need investment in it. But recognition, education, appropriate accommodations and respectful treatment are measures that can be implemented now. They can prevent additional suffering while science continues to advance.”

#MEcfs #PwME #MyalgicEncephalomyelitis #CFS

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