The mental load of managing a chronic condition is exhausting on its own. Appointments, medications, insurance calls, symptom tracking. It's basically a part-time job nobody signed up for.
@smartpatient.bsky.social
@smartpatient.bsky.socialThe mental load of managing a chronic condition is exhausting on its own. Appointments, medications, insurance calls, symptom tracking. It's basically a part-time job nobody signed up for.
@smartpatient.bsky.socialCelebrating small victories today: got out of bed, took my meds on time, and managed a short walk. On a rough week, that's a win.
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@gaelicnox.bsky.socialI will stay whimsical out of spite
@achronicvoice.com"My #body moves in ways I can’t #control —or it refuses to move at all. It aches quietly, collapses without warning & spasms for no reason. It hides things from me, keeps its secrets & exposes me in the worst ways.": buff.ly/e50reOt
by @serenebutterfly.bsky.social
#ChronicIllness #FND #NEisVoid
@wordwitchlife.bsky.socialHere's the #poem I put up Tuesday. Enjoy!
#amwriting #writingcommunity #poetsofbluesky #skypoets #chronicillness #mentalhealth #writersofbluesky #bskypoets #blueskypoetry #writersky
@achronicvoice.com"As the decline [into Haemolytic #Anemia ] had been gradual, the impact did not seem too harsh. The everyday #nausea, lack of appetite and general #malaise had become my norm without me even realising it.": buff.ly/U8i0CVz
#ChronicIllness #ChronicFatigue #NEisVoid #ChronicPain #lupus #Sjogrens
@kingtiger.bsky.socialbreak it down
We need a chill night so we're playing more Ship Graveyard Sim 2! LIVE NOW on Twitch w/ @queencheetah.bsky.social
#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness
@caseybratpack.bsky.socialEvery word is my "normal" too. #ChronicIllness sucks! #AutoimmuneDisease
@apainprincess.bsky.social“I have the motivation and determination to achieve awesome things; but I’m trapped in a body that will not allow me to physically manage them… I know many people with #chronicillness will relate to this, and I just wanted to say #YouAreNotAlone .” https://buff.ly/3qN6BEm
@angioedemanews.bsky.socialYour mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
@achronicvoice.com"I have always been a fan of #Autumn ..now the #kids are older and I am #disabled and all I have is photos to remember the fun we had.": buff.ly/U5elMuN
by @raisiebay.bsky.social
#ChronicIllness #ChronicallyIll #WritingPrompts #disability #NEisVoid #spoonie
@achronicvoice.com"Yet the current version of us — in this time, in this place & in this #circumstance — is bound to need an upgrade. The world is ever changing..We have yet to reach the full #potential of who we can become.": buff.ly/KAqDjl9
#PersonalDevelopment #disabled #spoonie #ChronicIllness #LifeJourney
@lightningduck.bsky.socialThis is sadly true in my life
@achronicvoice.com"Not dying in the #ICU was just the beginning. Now I had to learn how to live..Specialist after #specialist appeared until I had a #healthcare “team.” The trouble I was in was heavy & profoundly sobering.": buff.ly/QpJY8R6
by @stillrollingoutdoors.com
#ChronicIllness #ChronicLife #disabled #spoonie
@smartpatient.bsky.socialTip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.