@apainprincess.bsky.social“Those who are not able to work due to #ChronicIllness are not on vacation. They are instead, struggling every day to do simple tasks: getting out of bed, getting dressed, making a meal, bathing… They are often too sick to leave their homes.” https://buff.ly/3zwBYrd #ChronicPain #Disability
@achronicvoice.com"People hurry by each other [in modern #society ]. An approaching #stranger stirs immediate apprehension. 'What do you want from me?" "What snake oil are you trying to sell?" "No, I have no spare change."": buff.ly/L774LYC
#human #InvisibleIllness #KindnessMatters #ChronicIllness #AskForHelp
@sifaswriting.bsky.socialWriting actually helps me feel better...when I feel up to sitting at my computer desk. I wasn't feeling too great yesterday or this morning, but at least I'm conscious and the brain fog isn't too bad.
I have an extremely broad definition of 'feeling great', but that's #chronicillness for you. 😆
@angioedemanews.bsky.socialDiscover how to navigate intimacy and angioedema: https://bit.ly/43DYuLc
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
@mgnews.bsky.socialYes, I really do need to be here. ♿
Disability doesn’t have an age. 💙
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#Bionews #ChronicDisease #RareDisease #ChronicIllness #DisabilityAwareness
@lymediseaseuk.bsky.socialA member of the Lyme Disease UK community, Deborah Bircham recently joined Cassie on the EpiccaTalks podcast to talk about her decades-long experience of living with invisible illness.
Listen on Spotify:
open.spotify.com/episode/6dBR...
@achronicvoice.com"I continued with the #prednisone until one morning shortly after the dose pack ended, I started to feel my body seize up and spasm. I remember calling my wife and telling her that I didn’t feel so good.": buff.ly/g1SOyrv
#ChronicPain #medication #RheumatoidArthritis #RA #ChronicIllness #MensHealth
@smartpatient.bsky.socialThe worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@dustthebaseboards.bsky.socialIt’s a late morning. Unfortunately, I seem to be having some serious side effects that complicate my treatment.
This is probably not the correct goal, but I really wanted to be well enough to pass out candy by Halloween. 🥺
@smartpatient.bsky.socialIf your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.
@achronicvoice.com"“Normal” test results don’t mean I’m okay. – #InvisibleIllnesses live between the lines of standard blood panels and scan reports. Please listen to my story, my #body is telling – even if the data isn’t screaming it.": buff.ly/ACGRjoz
by crb4hk9hyf
#doctors #ChronicIllness #disability #healthcare
@smartpatient.bsky.socialThe mental load of managing a chronic condition is exhausting on its own. Appointments, medications, insurance calls, symptom tracking. It's basically a part-time job nobody signed up for.
@smartpatient.bsky.socialThe mental load of managing a chronic condition is exhausting on its own. Appointments, medications, insurance calls, symptom tracking. It's basically a part-time job nobody signed up for.
@smartpatient.bsky.socialCelebrating small victories today: got out of bed, took my meds on time, and managed a short walk. On a rough week, that's a win.
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.