@alexisx-au.bsky.socialSo much this. And it's draining to have to explain this to people, who regardless will probably just throw you in their arrogantly dismissive "doesn't _really_ want to get better" basket. Which, btw, can cause further psychological harm to a chronically ill person.
@achronicvoice.com"That was, in its own way, a clever #survival strategy.
It helped me..be recognized as a “responsible #adult.”
But once I became severely #disabled,
that entire strategy suddenly stopped working.": buff.ly/KOFvrhB
by kenken02122000
#career #identity #ChronicIllness #adulting #LifeExperiences
@smartpatient.bsky.socialIf your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.
@smartpatient.bsky.socialThe worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.
@achronicvoice.com"The #goal was never to find the perfect formula & execute it flawlessly. The goal is to keep coming back to yourself, keep adjusting, keep choosing approaches that fit yr actual life rather than an idealized version of it.": buff.ly/OtpxaWh
@hannemiriam.bsky.socialUdflugt til Skejby - Vaccination mod Influenza & Covid19 💉💉👍🏿
#Thankyou #IFxxxingLoveScience #ChronicIllness
@achronicvoice.com"When people see me out & about, it is because of hours of #preparation & days of #recovery that is hidden behind the scenes..but also why it hurts when someone insinuates, I am getting better.": buff.ly/77EURFP
by @beverleybutterfly.bsky.social
#ChronicIllness #InvisibleIllness #ableism #spoonie
@achronicvoice.com"Outside, the world carries on uninterrupted..Cars pass. Life hums along. Inside my #body, the rules rewrite themselves without warning. It feels like being #gaslit by my own body. I insist I’m fine. My body..stubbornly disagrees.": buff.ly/ox669I2
@achronicvoice.com"But the worst part? It’s not the symptoms. It’s the looks..it's the #gaslighting of the #disabled .. #doctors, relatives, strangers. Everyone’s an expert until u ask them to live a week in your ruined skin.": buff.ly/6ayKim3
by livingwithms
#MS #disability #ChronicIllness #MedicalGaslighting
@hsr-scicomm.bsky.socialImagine living with severe pain and "fibro fog," yet routine blood tests always come back normal. In Blog no. 31, Robyn explores a new multi-omics approach to fibromyalgia diagnosis.
#Fibromyalgia #FibroFog #ChronicIllness
Read the full blog here :
healthsciencereviews.com/2026/10/06/a...
@achronicvoice.com"Joy is not a finish line. It’s not what comes after the #HealingJourney is complete. #Joy is part of the journey itself. And you deserve to feel it again.": buff.ly/NdetWC0
via tinybuddha
#Healing #LifeLessons #grief #loss #ChronicIllness #disability #NEisVoid #BeKind
@apainprincess.bsky.social“Those who are not able to work due to #ChronicIllness are not on vacation. They are instead, struggling every day to do simple tasks: getting out of bed, getting dressed, making a meal, bathing… They are often too sick to leave their homes.” https://buff.ly/3zwBYrd #ChronicPain #Disability
@achronicvoice.com"People hurry by each other [in modern #society ]. An approaching #stranger stirs immediate apprehension. 'What do you want from me?" "What snake oil are you trying to sell?" "No, I have no spare change."": buff.ly/L774LYC
#human #InvisibleIllness #KindnessMatters #ChronicIllness #AskForHelp
@sifaswriting.bsky.socialWriting actually helps me feel better...when I feel up to sitting at my computer desk. I wasn't feeling too great yesterday or this morning, but at least I'm conscious and the brain fog isn't too bad.
I have an extremely broad definition of 'feeling great', but that's #chronicillness for you. 😆
@angioedemanews.bsky.socialDiscover how to navigate intimacy and angioedema: https://bit.ly/43DYuLc
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
