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@labelreads.bsky.socialSep 23, 2026, 4:44 PM

While we believe it, it's hard to tell people with #epilepsy to not to be embarrassed about their seizures. Feelings don't work that way. What we do ask is that no one let that embarrassment hinder reaching out to medical professionals for help. #EpilepsyAwareness

@labelreads.bsky.socialSep 23, 2026, 4:43 PM

Have you seen the long-standing myth that having #epilepsy grants instant creative genius? People often cite figures like Van Gogh or Dostoevsky. While living with seizures can shape one's perspective, epilepsy itself isn't a "gateway to creativity". #EpilepsyAwareness

@kadavercosplay.bsky.socialSep 23, 2026, 1:09 AM

feel a lot better having slept. Still a little nauseous but I'm like that all the time and I'm not as dizzy. I'm going to rest the week and try to let this stuff get out of my system. Just another fun night in the E.R. 😑

#multiplesclerosis #epilepsy #sideeffects #medicine #hospital #blooddraw #help

@labelreads.bsky.socialSep 22, 2026, 8:38 PM

Sometimes the stats around #epilepsy are confusing. While 1 in 26 people will be diagnosed with Epilepsy sometime in their life, 1 in 100 people live with the condition right now. Many people are diagnosed late in life pushing the 1 in 100 down to 1 in 26. #EpilepsyAwareness

@labelreads.bsky.socialSep 22, 2026, 8:36 PM

Is "help the way you would have wanted to be helped" always good advice? The average person doesn't know the needs of a person with #epilepsy. Are you good at asking for help the way you need it? #EpilepsyAwareness

@labelreads.bsky.socialSep 22, 2026, 8:36 PM

Life is filled with big transitions (puberty, first job, marriage, children). If you were diagnosed as an adult, was any transition as challenging as becoming a person living with #epilepsy? #EpilepsyAwareness

@epilepsyexplained.comSep 22, 2026, 6:01 PM

A review of pediatric deep brain stimulation for drug-resistant epilepsy found promising seizure reduction, though seizure freedom was less common and adverse events were reported. Learn what the evidence means for children and families. #EpilepsyExplained #Epilepsy 💜.

@ismrt.bsky.socialSep 22, 2026, 6:00 PM

Join us for the next ISMRT Virtual Meeting!
Seeing the Unseen: Advances in Pediatric Epilepsy MRI
09 October 2026 | 16:00 UTC

FREE registration for members - Learn more: https://ow.ly/6yqM50ZPRl8

#ISMRM #ISMRT #PediatricMRI #Epilepsy #MedicalImaging #MRTechnologist #Neuroradiology #MRI #MR

@mackeithpress.bsky.socialSep 22, 2026, 9:01 AM

Families report that heatwaves can worsen seizures in children with Dravet syndrome, adding to caregiver burden and limiting participation
#DravetSyndrome #Epilepsy #Seizures #RareDisease
onlinelibrary.wiley.com/doi/10.1111/...

@futureneuro.bsky.socialSep 22, 2026, 7:47 AM

What a fantastic weekend at the @epilepsyireland.bsky.social National Conference! 💜

We heard from FutureNeuro researchers Prof Norman Delanty on the future of #Epilepsy care and Dr Cristina Ruedell Reschke on sleep & circadian rhythms.

#CommunityEngagement

@remoteeeg.bsky.socialSep 21, 2026, 8:49 PM

We’re heading to #AES2026 in Denver!
Visit Quantum Neurodiagnostics at 📍Booth 3606 to learn about our 24/7/365 remote EEG services.
There’s still time to submit a topic for AES Clinical Guidance:
aesnet.org/clinical-car...
#EEG #Epilepsy

@labelreads.bsky.socialSep 21, 2026, 7:22 PM

Myth: All people with #epilepsy are aggressive.

ACTUAL: Seizures can trigger behavior which can be misconstrued as aggression. Misunderstandings during or after a seizure often lead to conflict, making education and patience essential for everyone involved. #EpilepsyAwareness

@epilepsyexplained.comSep 21, 2026, 7:16 PM

A systematic review explored how sleep-related epilepsy may affect memory and cognition, including nighttime discharges, while highlighting important limits in the evidence. #EpilepsyExplained #Epilepsy 💜.

@coolboyny.bsky.socialSep 21, 2026, 1:03 PM

Epilepsy XP, A place for creators that focuses on Epilepsy Awareness, fundraising funds for Epilepsy organizations around the world, and advocacy. DM me for invite link and I'll send it over to ya. #Epilepsy #EpilepsyAwareness #EpilepsyGamers

@cyverizki.bsky.socialSep 20, 2026, 6:03 PM

Sweet little #snom I made out of pompoms :D been really crafty dealing with #Epilepsy recently since I can't play games rn

@epilepsyexplained.comSep 20, 2026, 5:22 PM

A review explores how multimodal imaging can help locate seizure sources and guide epilepsy surgery planning, while highlighting its limitations and the need for expert team evaluation. #EpilepsyExplained #Epilepsy 💜.

@jrh2385.bsky.socialSep 20, 2026, 4:20 PM

I made it to 3 weeks without a #seizure today, about 20 minutes after leaving a local #epilepsy support group. Yesterday was exhausting, and I overslept, so I am putting them as the trigger. Last thing I remember is going up hill towards one of the shops in Newcastle, and coming to at monument.

@otrodia.bsky.socialSep 20, 2026, 2:50 PM

Thank you for sharing your knowledge, experience and empathy with us. I have learnt much.

#epilepsy

@marthacsrb.bsky.socialSep 20, 2026, 12:06 AM

2 weeks seizure free!!!

#epilepsy

@epilepsyexplained.comSep 19, 2026, 5:08 PM

A systematic review explored how vagus nerve stimulation (VNS) may affect voice function and Voice Handicap Index scores in people with epilepsy, while noting the evidence remains uncertain. #EpilepsyExplained #Epilepsy 💜.