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Katie J.

@kjohnstone.bsky.social

544 Following1.2k Followers

ME/CFS and related things. (she/her) I'm also trying out a more lighthearted personal account: @lighterkatiej.bsky.social

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@chloedecanson.bsky.socialOct 5, 2026, 1:54 PMReposted by @kjohnstone.bsky.social

Why do people with ME claim to know more about the medical aspects of their disease than their doctors? Because the mechanisms that usually ensure doctors' knowledge fail in the case of ME, and sick people have created mechanisms of knowledge production and dissemination to pick up the slack.

Screenshot of the header of a published paper: 

Studies in History and Philosophy of Science

Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis

Chloé de Canson

Department of of Theoretical Philosophy, University of Groningen, Oude Boteringestraat 52, Groningen, 9712 GL, the Netherlands
9
@kjohnstone.bsky.socialOct 3, 2026, 10:18 PM

That sounds complicated, I'm just using a Garmin.

@kjohnstone.bsky.socialOct 3, 2026, 10:18 PM

Thanks, I'll have a look at that.

@kjohnstone.bsky.socialOct 3, 2026, 1:22 AM

Can anyone recommend an app to track heart rate over the course of a day? Ideally free, or at least not pricey.

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