@lupusuk.bsky.social
The national registered charity supporting people with #lupus
@lupusuk.bsky.socialFor #LupusAwarenessMonth, we’re sharing the words and experiences of people living with #lupus to highlight the reality of how the condition can affect working life.
From managing symptoms, to reduced working hours, these quotes offer a glimpse into the different ways lupus can impact working life.
@lupusuk.bsky.socialIf #lupus is affecting your working life, you don’t have to work out your options alone.
#LupusAwarenessMonth #MoreThanADiagnosis #LupusUK #LupusSupport
@lupusuk.bsky.socialIf you’re unsure what support may apply to your situation, our Support and Information Line (SaIL) can help you talk through your circumstances and provide information and signposting. 📞Call 01708 731 251 and leave a message ✉️Email [email protected] We'll get back to you as soon as we can.
@lupusuk.bsky.socialHowever, support is not one-size-fits-all. What may be available can depend on your individual circumstances, the type of work you do, your workplace and other factors.
@lupusuk.bsky.socialDepending on your circumstances, there may be different ways your work could be adapted to help you manage your #lupus, from reasonable adjustments to flexible working hours.
@lupusuk.bsky.socialWhat support might be available at #work if you’re living with #lupus? 💼
@lupusuk.bsky.socialEveryone’s experience of #lupus is different, so what works for one person may not work for another.
#LupusAwarenessMonth #MoreThanADiagnosis #LupusSupport #KnowLupus
@lupusuk.bsky.socialIt’s also important to ask for help when you need it and speak to your healthcare team if your condition changes or isn’t well controlled. 🗨️
@lupusuk.bsky.socialWorking with #lupus can mean finding ways to manage your energy, symptoms and rest alongside your work day.
From pacing yourself and taking short, regular breaks to planning your energy, recognising your limits and making time for rest, small changes can help make the working day more manageable.
@lupusuk.bsky.social
@lupusuk.bsky.socialBecause #lupus is often an #InvisibleIllness, someone can look completely fine while using a huge amount of energy just to get through the day.
@lupusuk.bsky.socialWorking with #lupus can involve much more than simply getting through the working day. 💼
Behind the scenes, there can be medical appointments to organise, brain fog to navigate, changing symptoms and a constant list of things to track, from medication + treatment to energy levels and appointments.
@lupusuk.bsky.socialEvery donation to Lupus UK helps fund research, provide support, and bring hope to thousands of families. 💜 We are grateful for your support! 🫶
@lupusuk.bsky.social#Lupus is an unpredictable condition that can turn everyday life into a challenge, but together, we can make sure nobody faces it alone.
Please consider giving what you can this #LupusAwarenessMonth and donate to our JustGiving page: https://bit.ly/4iTNtxe 💜
@lupusuk.bsky.socialThese are conversations that matter. By listening to lived experiences and understanding the challenges people face, we can help build greater awareness, encourage meaningful change and work towards better support for everyone living with #lupus. 💜
@lupusuk.bsky.socialThroughout October, we’ll be exploring four key areas: 💼Work 📚Education 🪙 Finance 🌱Wellbeing We’ll be sharing information, real experiences, practical support and opportunities for our community to share their own stories over on our Facebook (@LupusUK) and Instagram (@Lupus_UK)
@lupusuk.bsky.socialOctober is #LupusAwarenessMonth, a time to raise awareness, deepen understanding and shine a light on the realities of living with #lupus. 💜 This year, our theme is ‘More Than a Diagnosis.’ Lupus can affect so much more than physical health and everyone’s experience of this can look different.
@lupusuk.bsky.socialAre you living with #lupus or an associated condition, or supporting a loved one in the South West Region of England?
Come along to the Lupus UK Devon & Cornwall Online Community Virtual Meet, taking place tomorrow (23rd September) from 12pm-1pm. 🗓️
📧 Sign up by contacting [email protected]
@lupusuk.bsky.social✉️ Please get in touch with [email protected] by Monday 28 September to find out more.
@lupusuk.bsky.socialWe’re particularly interested to hear about experiences relating to work, education, finances and well-being. If you’d be interested in sharing your experience with us and helping us raise awareness of the realities of living with #lupus, we’d love to hear from you.