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ERKNet - European Reference Network for Rare Kidney Diseases

@erknet.bsky.social

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ERKNet is devoted to improving the lives of patients with rare kidney diseases.
https://www.erknet.org

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@erknet.bsky.socialOct 8, 2026, 2:02 PM

๐‘๐ž๐ฌ๐ž๐š๐ซ๐œ๐ก ๐จ๐ฉ๐ญ๐ข๐จ๐ง๐ฌ ๐š๐ซ๐ž ๐ฅ๐ข๐ฏ๐ž ๐Ÿ”Ž

beyond our funded fellowships, weโ€™re sharing extra self-funded projects you can still join. Todayโ€™s spotlight: ๐†๐ฅ๐ฒ๐œ๐จ๐ฌ๐ฒ๐ฅ๐š๐ญ๐ข๐จ๐ง ๐š๐ง๐ ๐ƒ๐ž๐ง๐ญโ€™๐ฌ ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž ๐ญ๐ฒ๐ฉ๐ž 1.

๐Ÿ”— Check our website for how to get involved: https://tinyurl.com/2kt3cr6

@erknet.bsky.socialSep 25, 2026, 11:02 AM

๐Ÿ“ฌ The September ๐„๐‘๐Š๐๐ž๐ญ ๐๐ž๐ฐ๐ฌ๐ฅ๐ž๐ญ๐ญ๐ž๐ซ is out now!

๐’๐ฎ๐›๐ฌ๐œ๐ซ๐ข๐›๐ž ๐ก๐ž๐ซ๐ž: https://www.erknet.org/

@erknet.bsky.socialSep 24, 2026, 9:06 AM

๐Ÿ“ ๐’๐ฎ๐ซ๐ฏ๐ž๐ฒ ๐‡๐ข๐ ๐ก๐ฅ๐ข๐ ๐ก๐ญ - Shared decision making in the prenatal diagnosis of CAKUT

We would like to highlight this running survey from Jeremy Power.

๐Ÿ”— Find the survey here: https://tinyurl.com/yf9p4x7c

๐Ÿ’ป More info on this survey, and all running surveys: https://www.erknet.org/research/erknet-surveys

@erknet.bsky.socialSep 24, 2026, 9:06 AM

๐Ÿ“ ๐’๐ฎ๐ซ๐ฏ๐ž๐ฒ ๐‡๐ข๐ ๐ก๐ฅ๐ข๐ ๐ก๐ญ - Shared decision making in the prenatal diagnosis of CAKUT

We would like to highlight this running survey from Jeremy Power.

๐Ÿ”— Find the survey here: https://tinyurl.com/yf9p4x7c

๐Ÿ’ป More info on this survey, and all running surveys: https://www.erknet.org/research/erknet-surveys

@erknet.bsky.socialSep 21, 2026, 10:02 AM

๐Ÿ“ข Next fall webinar coming up soon!

Topic: ๐๐š๐ญ๐ก๐จ๐ฅ๐จ๐ ๐ฒ ๐จ๐Ÿ ๐“๐Œ๐€
๐Ÿ—“๏ธ Date: Tuesday, 06 October
๐Ÿ•“ Time: 4 - 5 PM CET
๐Ÿ—ฃ๏ธ Speaker: Jan Becker (Germany)
๐Ÿ’กModerator: tbd

๐Ÿ‘‰ ๐‘๐ž๐ ๐ข๐ฌ๐ญ๐ž๐ซ ๐ง๐จ๐ฐ https://tinyurl.com/49ddsuyh

See all webinars here: https://tinyurl.com/yzwad3ue

@erknet.bsky.socialSep 17, 2026, 8:10 AM

๐Ÿ‡ช๐Ÿ‡ช PICKED in Tallinn!

The PICKED community is getting together in Tallinn to share research, exchange ideas and look at how we can turn scientific discoveries into real-world impact. ๐Ÿงฌ๐Ÿ’ก

๐Ÿ”—More info: https://www.projectpicked.eu

Wishing everyone a great final day!

@erknet.bsky.socialSep 7, 2026, 10:03 AM

๐Ÿ‡ญ๐Ÿ‡บ Three days of ๐€๐ฅ๐ฉ๐จ๐ซ๐ญ ๐’๐ฒ๐ง๐๐ซ๐จ๐ฆ๐ž in Budapest! What an honor for ERKNet to be part of the 10th International Workshop on Alport Syndrome. We supported logistically and on-site and were also happy to see that many members of our network presented posters, talks or both ๐Ÿ’™

@erknet.bsky.socialSep 2, 2026, 10:03 AM

๐ŸŽ“ The 7th ๐„๐‘๐Š๐๐ž๐ญ ๐๐จ๐ฌ๐ญ๐ ๐ซ๐š๐๐ฎ๐š๐ญ๐ž ๐‚๐ฎ๐ซ๐ซ๐ข๐œ๐ฎ๐ฅ๐ฎ๐ฆ is starting again soon!

ERKNet members only - Want to become a ๐„๐ฎ๐ซ๐จ๐ฉ๐ž๐š๐ง ๐’๐ฉ๐ž๐œ๐ข๐š๐ฅ๐ข๐ฌ๐ญ ๐ข๐ง ๐‘๐š๐ซ๐ž ๐Š๐ข๐๐ง๐ž๐ฒ ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ and learn alongside colleagues from across Europe? ๐Ÿฉบ๐ŸŒ

๐Ÿ“… ๐€๐ฉ๐ฉ๐ฅ๐ฒ ๐›๐ฒ 31 October 2026

๐Ÿ”— More info & registration: https://tinyurl.com/yctt4ctz

@erknet.bsky.socialAug 31, 2026, 10:02 AM

๐Ÿ“ข Dont miss our next ๐–๐ž๐›๐ข๐ง๐š๐ซ

Topic: ๐“๐ก๐ž ๐„๐ฎ๐ซ๐จ๐ฉ๐ž๐š๐ง ๐๐ข๐ฌ๐ญ๐š๐ฅ ๐ซ๐ž๐ง๐š๐ฅ ๐ญ๐ฎ๐›๐ฎ๐ฅ๐š๐ซ ๐š๐œ๐ข๐๐จ๐ฌ๐ข๐ฌ ๐ซ๐ž๐ ๐ข๐ฌ๐ญ๐ซ๐ฒ: ๐š ๐Ÿ๐ข๐ฏ๐ž ๐ฒ๐ž๐š๐ซ ๐š๐ง๐š๐ฅ๐ฒ๐ฌ๐ข๐ฌ
๐Ÿ—“๏ธ Date: Tuesday, 01 Sep
๐Ÿ•“ Time: 4 - 5 PM CET
๐Ÿ—ฃ๏ธ Speaker: Marta Giaccari (Italy)
๐Ÿ’กMod: Francesco Trepiccione

๐Ÿ‘‰ ๐‘๐ž๐ ๐ข๐ฌ๐ญ๐ž๐ซ ๐ง๐จ๐ฐ https://register.gotowebinar.com/register/7918315963383367260

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