I write about shrinking reserves from #LongCOVID and #MECFS with brutal honesty and zero fluff. Also: Star Wars, comics, cats, and Penguins goals. 🚨 #LetsGoPens #PwME
I started writing the lyrics for this song on July 24, 2026. It was just 48 hours after we had to say goodbye to Genie. The pain was still raw. I felt lost. I didn’t really know what I wanted to say. I just knew I needed to write something.
#LongCOVID #MECFS #Grief #ChronicIllness #Cats
Yesterday I went to a friend’s memorial. Today I’m paying for it physically, cognitively and emotionally.
I’m in #PEM now. Repeated crashes can mean longer recovery and a lower baseline.
Sometimes you spend energy you don’t have because something matters.
Yesterday mattered.
It’s nearly 5 a.m. I haven’t slept. The pain won’t let me.
I’m trying to write, but the pain makes it hard to even think. Words that should come easily just don’t.
This is life with Long COVID and ME/CFS. Even lying still in the dark can cost more than you have.
Today has been hard. The pain is relentless, and my muscles feel like they simply don’t have anything left to give. Standing hurts. Moving hurts. Existing in my body hurts. Long COVID and ME/CFS can reduce an entire day to simply enduring it.
