💡 Join the ERDERA Knowledge Exchange Meeting on Drug Repurposing for Rare Diseases, and exchange experiences and best practices between underrepresented and high-performing countries.
📅 25-26 November 2026
📍 Riga & online
🔗 Find out more & register: https://loom.ly/yPXfXKY

📣 Have you registered? On 21 October, ERDERA will host its Annual Open Session, a special anniversary event exploring how innovation, collaboration and novel trial methodologies are advancing rare disease research.
✅ Free to attend 📝 Find out more & register: https://loom.ly/j7dWpj4
#ERDERA

💬 “By handling data in a structured and responsible way, we can build a shared European ecosystem.”
Ana Rath, ERDERA Data Services Co-Lead, explains how ERDERA is helping make rare disease data more findable, interoperable and reusable.
👉 Read more: https://loom.ly/y83u7Nk
#RareDiseases

🏆 Celebrate the people and initiatives making a difference in rare diseases.
Join the 15th #EURORDIS Black Pearl Awards on 24 Feb 2026, held in Brussels & online as part of #RareDiseaseDay celebrations.
🎥 Online participation is free.
👉 https://loom.ly/ClRoNdc
#RareDiseases #ERDERA

⏳ The deadline is approaching!
Want to expand your knowledge, connect with experts and help drive progress in rare diseases?
Apply for the Open Academy x ERDERA Schools 2027 before 16 October.
📍 Barcelona, 7-10 June 2027
🔗 Apply now: https://loom.ly/uZ0Iz8M
#ERDERA #RareDiseases

Can AI really deliver for rare diseases? 🤖 Join ERDERA at #WODCEurope 2026 for the pre-congress workshop "AI for Rare Diseases: From Promise to Practice". A lively debate on where AI can accelerate research and therapy development. 👉 Read more: https://loom.ly/FQvdeRY
#ERDERA #RareDiseases #AI

📅 Hello, September! Start the month with new insights from ERDERA webinars for rare disease research:
🔹 How to Pitch to Investors
🔹 Data Sharing, Data Management & Ethics
🔹 Regulatory Insights for Advanced Therapies
👉 Learn more and register: https://erdera.org/latest/events/

🚀 Registrations are now open for RE(ACT) Congress 2027!
Join researchers, clinicians, patient advocates, policymakers and innovators in Budapest from 10-12 March 2027 for three days of science, collaboration and ideas that can accelerate progress in rare diseases🔗 Register: https://loom.ly/_fGiC04

👶 September is #NewbornScreening Awareness Month. Across Europe, access to comprehensive newborn screening remains uneven, contributing to avoidable inequalities in diagnosis and care.
Learn more in ERDERA's latest #ScientificPill👉 https://loom.ly/28UA3H8
#RareDiseases #ERDERA #HealthEquity

🚀 Working on a #RareDisease innovation?
Learn what investors look for and how to pitch your project effectively at ERDERA's upcoming webinar. 📅 16 Sept 2026 ⏰ 11:00 CEST 💻 Online
Researchers, venture builders & VCs share practical insights.
🔗 Register: https://loom.ly/zp3wAJM
#ERDERA

📬 Miss the September newsletter? Catch up on the latest updates and highlights from across ERDERA and the rare disease research community. Read it here 👉 https://loom.ly/VxVn5mI
📩 Don’t miss the next issue, subscribe now: https://loom.ly/TFRXEBY
#ERDERA #RareDiseases

📅 Hello, September! Start the month with new insights from ERDERA webinars for rare disease research:
🔹 How to Pitch to Investors
🔹 Data Sharing, Data Management & Ethics
🔹 Regulatory Insights for Advanced Therapies
👉 Learn more and register: https://loom.ly/Q44_KUM

Applications are now open for the EURORDIS Open Academy x ERDERA Schools!
🎓 Build the skills and networks to engage with researchers, regulators & policymakers
📍 Barcelona, 7-10 June 2027
⏰ Apply by 16 October 2026
🔗 Learn more: https://loom.ly/F3Ka2j8
#ERDERA #RareDiseases

🌍 How do National Mirror Groups strengthen rare disease research and policy alignment in Europe?
👉 Watch the video to find out: https://loom.ly/vU0EHzs
#ERDERA #RareDiseases #RareDiseaseResearch