Inflammatory Neuropathies UK (@inflamneurouk.bsky.social)

@inflamneurouk.bsky.social Oct 6, 2026, 11:55 AM

We’ve got a new Local Get Together starting in Hampshire 🩷 The first one is at Alton Library on Tuesday 13 October at 1pm. A friendly space for people impacted by GBS, CIDP, MMN and other Inflammatory Neuropathies to meet others who understand.

@inflamneurouk.bsky.social Oct 2, 2026, 3:02 PM

It may be our AGM & Big Get Together tomorrow but that doesn’t mean we take our foot off the gas. Rich is in Birmingham today talking with the Inflammatory Neuropathies Nursing group before he heads down to Bristol. Lots of information to share & even more to listen to and share with the community

@inflamneurouk.bsky.social Oct 1, 2026, 4:44 PM

New job klaxon. Sort of.
We don’t actually have a klaxon.
But we DO need a brilliant Operations Manager.
Small charity. Big ambitions. Lovely team. Loads happening. Plenty of freedom to make things better.
£37,500 | FT | Permanent | Remote
Come and work with us?
www.charityjob.co.uk/jobs/inflamm...

@inflamneurouk.bsky.social Sep 29, 2026, 1:18 PM

Hospital parking. Travel. Equipment. Changes around the home.

The extra costs of living with GBS, CIDP, MMN or another Inflammatory Neuropathy can add up. Our Personal Grants may be able to help 🩷

🔗 www.inflammatoryneuropathies.uk/finance

@inflamneurouk.bsky.social Sep 26, 2026, 3:59 PM

One week to go 🩷

Our AGM & Big Get Together is happening next Saturday, 3 October, in Bristol and online.

Meet others in the community, hear from the team and our Medical Advisory Board, and help shape what comes next.

🔗 www.inflammatoryneuropathies.uk/agm-big-get-...

@inflamneurouk.bsky.social Sep 25, 2026, 3:18 PM

Lucy is doing a skydive tomorrow for IN UK 🪂

Both her mum & brother have been impacted by inflammatory neuropathies, making this a very personal challenge.

She’s already smashed her fundraising target, but there’s still time to help push the total even higher!

🔗 www.justgiving.com/page/lucy-kn...

@inflamneurouk.bsky.social Sep 24, 2026, 11:14 AM

Our online CIDP Get Together is at 2pm today 🩷

Chat, ask questions, share experiences or just listen.

🔗 Join us here:
us06web.zoom.us/j/9729393014...

@inflamneurouk.bsky.social Sep 17, 2026, 4:47 PM

Is tremor something that you have? #CIDP

www.neurologylive.com/view/large-c...

@inflamneurouk.bsky.social Sep 16, 2026, 1:12 PM

Joshua is running the Loch Ness Marathon in memory of his mum, Shân, who passed away from GBS earlier this year. 🩷

He’s raising money to support our work with people impacted by Inflammatory Neuropathies, like GBS.

www.justgiving.com/page/joshua-...

@inflamneurouk.bsky.social Sep 8, 2026, 2:02 PM

Tonight at 7pm🩷

Our online MMN Get Together is happening this evening on Zoom.

Come along for a relaxed chat with others who understand. You’re welcome to join in, ask questions or simply listen.

Join us here: us06web.zoom.us/j/8987749790...

@inflamneurouk.bsky.social Sep 3, 2026, 11:44 AM

Fancy taking on a half marathon in Glasgow for Inflammatory Neuropathies UK? 🏃 You’ll be helping us raise funds and awareness for people impacted by GBS, CIDP, MMN and other Inflammatory Neuropathies. 🩷 Interested? Email [email protected]

@inflamneurouk.bsky.social Sep 1, 2026, 4:29 PM

Two years ago, Daniel was 17 and struggling to walk up a single step at Sixth Form. After several trips to A&E and his GP, he was eventually diagnosed with GBS.

Now he’s taking on the Great North Run for us. 🩷

🩷 Support Daniel: www.justgiving.com/page/daniel-...

@inflamneurouk.bsky.social Aug 28, 2026, 3:38 PM

£10 can help us provide advice and information to someone trying to make sense of an unfamiliar diagnosis.

It can mean clearer answers, support and a path forward.

🩷 Donate here: inflammatoryneuropathies.enthuse.com/cp/4fcea/fun...