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International Kidney Cancer Coalition

@ikccorg.bsky.social

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International Kidney Cancer Coalition (IKCC) is the only global collaboration of patient groups working to reduce the burden of kidney cancer.
https://ikcc.org/

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@ikccorg.bsky.socialOct 16, 2026, 12:02 PM

Thank you, Michael, Anne and Bryan, for being part of this journey and for the lasting impact you continue to make.

#IKCC #KidneyCancer #PatientAdvocacy

@ikccorg.bsky.socialOct 16, 2026, 12:02 PM

We are sincerely grateful to Michael, Anne and Bryan for their time, leadership and valuable contributions to IKCC. Their work has helped strengthen international collaboration and advance the patient voice in kidney cancer advocacy.

@ikccorg.bsky.socialOct 16, 2026, 12:02 PM

During the 2026 IKCC Global Kidney Cancer Summit in Prague, they took part in the Looking Back, Looking Forward session, sharing their perspectives on the progress made in kidney cancer care and advocacy, as well as their thoughts on the future of the kidney cancer community.

@ikccorg.bsky.socialOct 16, 2026, 12:02 PM

We would like to recognise and thank three outgoing members of the IKCC Board: Michael Jewett, Anne Wilson and Bryan Lewis, for their dedication and commitment to kidney cancer advocacy.

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@ikccorg.bsky.socialOct 15, 2026, 11:01 PM

šŸ“… 28 October
šŸ•  5:30–6:30 PM ET – Town Hall
šŸ•” 6:30–7:30 PM ET – Community Social

šŸ‘‰ Register: buff.ly/PTi2FJC

@ikccorg.bsky.socialOct 15, 2026, 11:01 PM

The session will feature: šŸ”¹ Dr Brian Shuch šŸ”¹ Dr David Braun šŸ”¹ Genetic counsellor Lindsey Byrne, MS, LGC A Community Social will follow the Town Hall, offering an opportunity for patients, caregivers and others to continue the conversation.

@ikccorg.bsky.socialOct 15, 2026, 11:01 PM

🧬 Genetics & Kidney Cancer Town Hall What does genetics mean for people living with kidney cancer and their families? Join KidneyCAN on 28 October to learn about inherited kidney cancer, genetic testing and emerging research.

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@ikccorg.bsky.socialOct 15, 2026, 2:01 PM

šŸ‘‰ Use the QR code or follow the link below to complete the survey:
buff.ly/Mkj0pxs

ā³ The survey closes on 20 November 2026.

šŸŒ Help us make sure the voices of people affected by kidney cancer continue to be heard. Every experience matters!

@ikccorg.bsky.socialOct 15, 2026, 2:01 PM

If you have been diagnosed with kidney cancer or care for someone who has, we invite you to complete the survey. It takes approximately 15 minutes, and all responses remain confidential. Previous participants are also welcome to take part again.

@ikccorg.bsky.socialOct 15, 2026, 2:01 PM

This year marks 10 years of the Global Patient Survey, giving us a decade of valuable insights to guide future advocacy, education and support programmes. Haven't taken part yet? There's still time to have your say! šŸ—£ļø

@ikccorg.bsky.socialOct 15, 2026, 2:01 PM

Every response helps us better understand the experiences of people living with kidney cancer and identify areas where care and support can be improved.

@ikccorg.bsky.socialOct 15, 2026, 2:01 PM

šŸŽ‰ Over 1,000 patients and carers have already contributed to the IKCC Global Patient Survey 2026–2027! A big thank you to everyone who has taken the time to share their experiences. šŸ’™

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@ikccorg.bsky.socialOct 15, 2026, 11:02 AM

Events like this create valuable opportunities to strengthen patient advocacy, exchange expertise and work towards better and more equitable kidney cancer care worldwide.

We are grateful for their support and commitment to the kidney cancer community.

#IKCC #KidneyCancer #PatientAdvocacy

@ikccorg.bsky.socialOct 15, 2026, 11:02 AM

Their support helped bring together more than 50 patient advocates, healthcare professionals and kidney cancer experts from around the world for two days of knowledge-sharing, collaboration and discussion.

@ikccorg.bsky.socialOct 15, 2026, 11:02 AM

The success of the 2026 IKCC Global Kidney Cancer Summit would not have been possible without the support of our sponsors. We would like to extend our sincere thanks to Arcus, Exelixis and Pfizer for supporting this year's Summit in Prague.

@ikccorg.bsky.socialOct 14, 2026, 11:31 AM

šŸ”Ž Looking for patient resources? Want to learn more about kidney cancer? Interested in IKCC programmes or the latest news and updates?

You'll find it all in one place, with an improved experience to help you get where you need to go.

šŸ”— Explore the website: ikcc.org

@ikccorg.bsky.socialOct 14, 2026, 11:31 AM

🌐 Have you visited the new IKCC website?

The new IKCC website is here, making it easier than ever to explore the information, resources and support available to the kidney cancer community.

šŸ”— Explore the website: ikcc.org

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@ikccorg.bsky.socialOct 14, 2026, 11:02 AM

Thank you, Dr Ilbawi, for sharing your expertise and contributing to the Summit.

#IKCC #KidneyCancer #WHO #CancerControl #PatientAdvocacy

@ikccorg.bsky.socialOct 14, 2026, 11:02 AM

Bringing global health perspectives into conversations with patient advocates is an important part of strengthening the kidney cancer community and ensuring that patient needs remain central to cancer policy and decision-making.

@ikccorg.bsky.socialOct 14, 2026, 11:02 AM

Dr Ilbawi also contributed to discussions on improving access to essential medicines and treatments, highlighting the importance of addressing inequalities in cancer care.

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