@kidsfirstdrc.bsky.social
The Gabriella Miller Kids First Data Resource Center (Kids First DRC) is a collaborative pediatric research effort with a goal to understand the genetic causes and links between childhood cancer and congenital disorders. Learn more: linktr.ee/kidsfirstdrc
@kidsfirstdrc.bsky.socialKids First DRC applauds Illumina, Velsera, Flywheel, and Servier for helping to make The Art of Collaboration possible at #ASHG2026.
Don’t miss out. Register today: https://sbrew.link/KFGWFB8Y
@kidsfirstdrc.bsky.socialFollow the resources that can help move your research forward. Subscribe to Kids First DRC updates for news on available data, research tools, training opportunities, and ways to engage with the community: https://sbrew.link/y1eRIE2S
@kidsfirstdrc.bsky.socialThank you to Illumina Inc., the presenting sponsor of The Art of Collaboration at #ASHG2026. Its work with D3b on pediatric genomes will bring new insights to the Kids First DRC, expanding what researchers can discover together.
Join us October 21 in Montréal: https://sbrew.link/khgyRLpS
@kidsfirstdrc.bsky.socialThe Strands of Discovery recording is now available.
See how research tools became shared #CAVATICA resources, follow the live walkthrough, and hear #NIH thought leaders discuss the future of Kids First.
Watch: https://sbrew.link/Bonm7z5z
@kidsfirstdrc.bsky.socialNew to the Kids First DRC? SupportU can help you find your footing. Join this welcoming group session to explore the portal, ask questions, and leave confident about what to do next. First Tuesdays at 10 a.m. ET. Add to your calendar: https://sbrew.link/f8vt4fHU #KidsFirstDRC
@kidsfirstdrc.bsky.socialThe Kids First Program and INCLUDE bring together data from 2,800+ participants with Down syndrome into a single resource, helping researchers study connections to leukemia and heart defects. Explore: https://sbrew.link/vNp2TebM
@kidsfirstdrc.bsky.socialAcross these strands, shared cancer studies reveal genetic links, possible treatment targets, and new paths for rare cancer research. Each discovery moves the field toward better answers for kids.
Keep discovery moving: https://monkeylink.co/c440f7
@kidsfirstdrc.bsky.socialWhat happens when shared data continues to inform long after the original study ends?
A new NIH analysis shows how Kids First DRC-supported research continues to fuel new questions, discoveries, and connections to patient care.
Read the story: https://sbrew.link/AEAgcEOz
@kidsfirstdrc.bsky.socialAt #ASHG2026, collaboration takes the main stage. Join us in Montréal for The Art of Collaboration, a poster session and reception bringing the research community together around data-driven science for children and families. Attend or submit a poster: https://monkeylink.co/81e9a7
@kidsfirstdrc.bsky.socialCould your existing pediatric cohort reveal more? The Gabriella Miller Kids First Pediatric Research Program’s X01 award offers access to advanced data-generation resources. Apply beginning Dec. 11: https://monkeylink.co/66a677
@kidsfirstdrc.bsky.socialDr. Katherine Janeway and the Ewing sarcoma research community are using shared family data to uncover inherited risk, including findings in DNA repair genes.
Explore this rare-cancer strand: https://monkeylink.co/aa3de7
@kidsfirstdrc.bsky.socialShared family data are helping Dr. Katherine Janeway and the Ewing sarcoma research community uncover patterns in DNA repair genes that may explain inherited risk and guide future research.
Explore: https://monkeylink.co/aa3de7
@kidsfirstdrc.bsky.socialWhen science takes center stage, collaboration becomes the art form. Join us at #ASHG2026 for scientific exchange, conversation, and connection, exploring how shared data can advance research for children and families. Oct. 21 at 6:30 p.m. in Montréal. Register: https://monkeylink.co/81e9a7
@kidsfirstdrc.bsky.socialWith Dr. John Prensner helping advance the work, CBTN data has supported research identifying a feature in high-grade brain tumors that may offer a future immunotherapy target.
See research in action: https://monkeylink.co/ba8713
@kidsfirstdrc.bsky.socialStuck mid-project? Come to MasterClass — our free, monthly live Q&A for deeper dives and real solutions.
🗓️ Third Thursday @ 2 p.m. ET
🔗 https://monkeylink.co/e37791
#KidsFirstData #ResearchSupport #PediatricResearch #OpenScience
@kidsfirstdrc.bsky.socialToday, the strands come together.
See how a research need became public #CAVATICA tools, join a live walkthrough with Q&A, and hear directly from #NIH thought leaders behind Kids First.
Join the Kids First Fall Public Webinar: https://monkeylink.co/b397cb
@kidsfirstdrc.bsky.socialUsing the Kids First T-cell leukemia dataset, Dr. David Teachey’s team studies why treatment works differently and why cancer returns, helping identify relapse drivers and future therapy targets.
See where this strand leads: https://monkeylink.co/aa5d3c
@kidsfirstdrc.bsky.socialWhy does neuroblastoma affect children so differently? Dr. Sharon Diskin’s work with this Kids First dataset is uncovering inherited changes linked to survival and more tailored care.
Follow this discovery: https://monkeylink.co/ee2a9b
@kidsfirstdrc.bsky.socialThe Kids First/INCLUDE dataset led by Dr. Philip Lupo found distinct genetic features in B-ALL among children with Down syndrome, pointing to more targeted therapies.
See what this strand reveals: https://monkeylink.co/947663
@kidsfirstdrc.bsky.socialThe Weaving Innovation NIH Panel brings Kids First Working Group co-chairs together to discuss the ideas, technologies, and priorities shaping Kids First’s future. Hear from thought leaders guiding the program forward.
Register: https://monkeylink.co/b397cb
