“You have no idea what it takes for me to just get out of bed in the morning let alone ride an hour from home… I sometimes pay the price for days after. I’m just trying to ‘live’, I’m not asking to be judged.” When I Do Something Fun Despite #ChronicPain https://buff.ly/3TAZ9aw

“Living with #ChronicPain is a journey of ups and downs. Just when you feel you've found a rhythm, a surge of intense and overwhelming pain can crash over you… Flares can be particularly challenging… intensifying your usual pain levels.” https://buff.ly/GRWSq34 #ChronicIllness #Disability

“It’s not fair to have the same expectations from us as you would from a perfectly healthy person. This is a never-ending struggle! Most people tend to forget that #ChronicIllness is something you have to deal with every day of your life.” https://buff.ly/47uYP2O #Fibromyalgia #pwME #ChronicPain

“No one took me seriously when I was in pain in my early 20s… I’d push through every week and then collapse—unable to move… #ChronicPain is so debilitating… Pain dictates when I wash my hair, whether I eat… whether I can even get out of bed.” https://buff.ly/jYUWWQn #InvisibleIllness #spoonie

“#ChronicIllness is unpredictable. One day you’ll be thinking, “I can handle it” then bam. The next…find yourself bed-bound as the weeks fly by, wondering if it will ever let up… Now… I give myself #compassion — I am doing my absolute best — and that is OK.” https://buff.ly/2yHONMo #ChronicPain

“Those who are not able to work due to #ChronicIllness are not on vacation. They are instead, struggling every day to do simple tasks: getting out of bed, getting dressed, making a meal, bathing… They are often too sick to leave their homes.” https://buff.ly/3zwBYrd #ChronicPain #Disability

“The other unfortunate side effect of being #paingry is that is leads to #painsomnia… Many of us have nights like this and don’t say a word… It is 3 a.m, I’m awake and I’m in pain…the absurd thing is I am exhausted. I want to sleep.” https://cme.sh/7RmPj0 #ChronicPain

“I have the motivation and determination to achieve awesome things; but I’m trapped in a body that will not allow me to physically manage them… I know many people with #chronicillness will relate to this, and I just wanted to say #YouAreNotAlone .” https://buff.ly/3qN6BEm

“Being in pain 24/7 not only affects you physically, it also affects you emotionally and mentally… It’s hard to live with #ChronicPain, but it’s also hard to see someone you love in pain.” 7 Things We Should Know About Chronic Pain https://buff.ly/RRg8qFM #NeurologicalLyme #CRPS #InvisibleIllness

“When #pain becomes #chronic, with no clear end in sight, it is immensely psychologically debilitating in way that few other conditions are, while being entirely unsharable.”: buff.ly/UgpKVJI

by @apainprincess.bsky.social
#ChronicPain #InvisibleDisabilities #spoonies #loneliness #ChronicIllness

Thank you so much @apainprincess.bsky.social for taking the time to share my blog post on the lessons I’ve learned about living with #ChronicIllness and #ChronicPain whilst at sea #cruising. It’s much appreciated! 🫶

I smile through the pain…nausea…exhaustion…I have really bad days and those far outnumber the good. They can be absolutely awful… I’d give anything for a cure but since that’s not reality now—I play the hand I was dealt.”
🔗
buff.ly/3vPhveX #CRPS

via @apainprincess.bsky.social

#PAM2026

"Many who live w severe & painful conditions can only manage 1 ‘big’ activity a day, especially if it involves leaving the house. If that day has a #medical visit..everything pivots on that single activity.”: buff.ly/63O3pEl

by @apainprincess.bsky.social
#ChronicPain #disability #ChronicIllness

“I tend to put pressure on myself to ‘power through’ pain to prove that I am capable: But powering through pain can cause more harm than good, and it is okay to not ‘power through’!” Why Do I Pretend To Be Well? #ChronicPain #InvisibleIllness