"Twenty years after the start of the largest Q fever epidemic in history, Health Minister Hermans offers apologies on behalf of the cabinet. Tens of thousands of people in North Brabant were infected by nearby goat farms."
@anilvanderzee.bsky.socialAnil van der Zee
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@anilvanderzee.bsky.social@anilvanderzee.bsky.socialSometimes it can feel like things are standing still. Especially for severe ME patients who can't easily participate in research. But in the Netherlands, they are being included.
@anilvanderzee.bsky.socialIndrukwekkend stuk met Caroline Van Kessel door ellen de visser.
Sorry zou al een beginnetje zijn Sophie Hermans.
#QVS #LongCovid #lyme #postsepsis #pwme #myalgicE #millionsmissing #PAIZ #PAIS #IACI #IACC
@anilvanderzee.bsky.social"Ineens begreep ik waarom het maar niet wil vlotten met de zorg voor mensen met ernstige psychiatrische aandoeningen en ME/CVS, fibromyalgie en PAIS. Hun ziekte is niet sexy genoeg."
@betsyladyzhets.bsky.socialReposted by @anilvanderzee.bsky.socialReally proud to publish this piece by @octoberk.bsky.social on Long COVID in prisons.
"All those who spoke to @thesicktimes.org lacked Long COVID–informed medical care, but more than that, they lacked access to basic information about the disease."
thesicktimes.org/2026/09/29/i...
@anilvanderzee.bsky.socialAlmost nine out of ten people with #LongCovid do not fully recover from their symptoms. They have to learn to live with them.
This is shown in a study by researchers from Frisius MC and the UMCG in Groningen. For the study, 1,200 people were followed over the past three years.
@anilvanderzee.bsky.socialGreat rant by George Monbiot about the fact despite new guidelines patients with ME are still poorly treated in the UK. Unfortunately it doesn't seem be much better elsewhere such as the Netherlands...
#pwme #myalgicE #millionsmissing #severeME #LongCovid #PAIS #IACI
@georgemonbiot.bsky.socialReposted by @anilvanderzee.bsky.socialHere's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2
www.theguardian.com/commentisfre...
theguardian.comAbandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George MonbiotChanges in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
@anilvanderzee.bsky.socialWow. Oscar winning filmmaker Martin Strange-Hansen has made a short film about the forced removal of a very severe ME patient in Denmark.
This looks really amazing!!
@anilvanderzee.bsky.socialA blog about the response of many denialist dismissive cognitive dissonance comments on social media whenever they are confronted with very severe ME in the media.
@anilvanderzee.bsky.social"A Special Tribute to Anil van der Zee | 2026 Amsterdam ISLC-PAIS Conference"
Thanks to Fred Verdult for his talk and for organizing the honor. Thanks to Michael Chapman for the video of this special moment.
@anilvanderzee.bsky.socialTeenagers and siblings Anna and Moritz have very severe ME. They lie in darkened rooms only meters apart, yet they have not seen each other for almost a year.
Watch this short heart wrenching segment from a documentary about ME.
@anilvanderzee.bsky.socialVanaf vandaag is deze hand-out mét stappenplan ter ondersteuning van patiënten met post-acuut infectieuze ziektes gratis te downloaden via:
www.devragendokter.nl/webshop/prod...
#pwme #myalgicE #millionsmissing #severeME #LongCovid #lyme #QVS #postsepsis #PAIZ #PAIS #IACC
@anilvanderzee.bsky.social@anilvanderzee.bsky.socialMy illness is not part of my identity.
Some late‑night, off‑the‑cuff rambling about the notion that some people make their illness part of their identity.
This was partly in response to that Telegraph article.
@anilvanderzee.bsky.socialMijn reactie op een uit de duim gezogen stressmodel voor "CVS" in Medisch Contact.
@anilvanderzee.bsky.socialFor World Suicide Prevention Day. Adult patients affected by ME are at an increased risk of death by suicide, but as a health care professional you can help instead of harm.
#pwme #myalgicE #millionsmissing #severeME #suicidepreventionday
@tomkindlon.bsky.socialReposted by @anilvanderzee.bsky.social“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee.bsky.social Discusses his Royal Honor” By David Tuller @davetuller1.bsky.social
@tomkindlon.bsky.socialReposted by @anilvanderzee.bsky.social“Trial By Error: Patient Advocate Anil van der Zee @anilvanderzee.bsky.social Receives Dutch Royal Distinction” By David Tuller @davetuller1.bsky.social
@marcveld.bsky.socialReposted by @anilvanderzee.bsky.socialWhen do infections lead to long COVID? Scientists close in on triggers and treatments for post-viral syndromes
Hundreds of millions of people have long-term conditions as a result of an infection. Researchers are working out how to help them.