Lucibee (@lucibee.bsky.social)

@cheryl-blue.bsky.social Oct 13, 2026, 8:45 PMReposted by @lucibee.bsky.social

Yes, we know. SPECT showed that in ME more than 30 years ago. (Monitoring these diseases means just watching people eternally reinvent the wheel.)

@lucibee.bsky.social Oct 13, 2026, 8:46 PM

Smart coffee maker borks internet connection by trying to upload a terabyte of data in 10 days.

www.tomshardware.com/networking/i...

Screenshot of tweet from Nomad on X:

Hey uh, @keurig - what the hell is a coffee machine uploading, let me double check...

One f*cking terabyte of data in 10 days?!

Immediately unplugging that. Getting my parents a new coffee machine.

[image of connection data]

Oct 6, 2026 - 2.5million views

@nickharkaway.com Oct 13, 2026, 5:11 PMReposted by @lucibee.bsky.social

*hastily disconnects a small selection of machines which inexplicably connect to the internet even though nothing they do requires an internet connection*

Financial Times@financialtimes.comOct 13, 2026, 3:33 PM

The developer of chatbot Claude warned that rogue 'AI worms' will soon be able to hijack smart devices such as ovens and TVs. ft.trib.al/DQOrsRw

@oldenoughtosay.com Oct 13, 2026, 7:08 PMReposted by @lucibee.bsky.social

“A whole bulb of garlic is a lot of garlic” bless your heart

@lucibee.bsky.social Oct 13, 2026, 12:22 PMReposted by @lucibee.bsky.social

However, it's interesting that a month ago (15 September 2026), James Frith answered Tulip Siddiq to say that the template service specification "has been developed", and not that it is "in the process of being developed".

questions-statements.parliament.uk/written-ques...

Question from Tulip Siddiq:
To ask the Secretary of State for Health and Social Care, what guidance her Department has issued to Integrated Care Boards on commissioning services for patients with very severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

Answered by James Frith on 15 September 2026:

I refer the Hon Member to the answer provided on 16 July 2026 to the Hon Member for Skipton and Ripon to Question 16893(opens in a new tab).

Further to this response, the Department, together with NHS England, has developed a template service specification for mild, moderate, and severe myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). The template, once published, will be circulated to integrated care boards to support the commissioning of services for severe ME/CFS.

@lucibee.bsky.social Oct 13, 2026, 12:24 PM

So presumably we should expect the template service specification to be published very soon?

@lucibee.bsky.social Oct 13, 2026, 12:22 PM

However, it's interesting that a month ago (15 September 2026), James Frith answered Tulip Siddiq to say that the template service specification "has been developed", and not that it is "in the process of being developed".

questions-statements.parliament.uk/written-ques...

@lucibee.bsky.social Oct 13, 2026, 12:16 PM

Finally, Tom Morrison's question was answered by Sharon Hodgson on 6 July.

questions-statements.parliament.uk/written-ques...

Sharon Hodgson answered on 6 July 2026:

The National Institute for Health and Care Excellence (NICE) has developed guidance on the diagnosis and management of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), which includes care for people with severe or very severe ME/CFS.

NICE guidelines are evidence-based, informed by clinical expertise, and represent best practice. Although NICE guidelines are not mandatory, healthcare professionals are expected to take them fully into account.

The Department is developing a template service specification for mild, moderate, and severe ME/CFS. The template is being developed in consultation with ME/CFS specialists, clinicians, NHS England, people with lived experience, and charity representatives. The template aims to support service providers and commissioners to provide services that meet the needs of their local population.

NHS England has developed an e-learning programme in line with NICE guidelines. The e-learning is comprised of four modules, including on severe ME/CFS, with the aim of supporting staff to be able to provide better care and improve patient outcomes.

Tom Morrison had asked:

To ask the Secretary of State for Health and Social Care, what guidance his Department provides to (a) hospitals, (b) community services and (c) ICBs on the care and management of people with severe and very severe ME/CFS; and what steps his Department is taking to monitor compliance with this guidance.

@lucibee.bsky.social Oct 13, 2026, 12:11 PM

Sharon Hodgson's 3 July response to Bill Esterton was posted earlier in this thread:

bsky.app/profile/luci...

questions-statements.parliament.uk/written-ques...

@lucibee.bsky.social Oct 13, 2026, 12:08 PM

The 8 June response by Baroness Merron to Baroness Scott of Needham Market is similar:

questions-statements.parliament.uk/written-ques...

Baroness Scott of Needham Market (Lib Dem):

To ask His Majesty's Government what interim measures they plan to put in place to support people with severe and very severe myalgic encephalomyelitis following the delay to the establishment of specialist services.

Baroness Merron (Labour) answered on 8 June 2026:

Officials in the Department and NHS England, together with stakeholders, are currently considering interim measures to support patients with very severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This is ahead of my Rt Hon. Friend, the Secretary of State for Health and Social Care, considering whether a specialised service should be prescribed for very severe ME/CFS.

These measures include referencing severe and very severe ME/CFS in a new template service specification that is being developed for mild and moderate ME/CFS. This template service specification, therefore, aims to provide support for ME/CFS service providers and commissioners to improve care and support for people living with all levels of severity of ME/CFS.

(continues...)

Integrated care boards (ICBs) are expected to commission services for people with ME/CFS across all levels of severity, including those with severe and very severe ME/CFS, in line with national standards, service specifications, and clinical access policies set by NHS England. Prioritisation and funding remain at the discretion of ICBs.

Additionally, the National Institute for Health and Care Excellence (NICE) has developed guidance on the diagnosis and management of ME/CFS, including mental health support for people with ME/CFS and their families. NICE guidelines are evidence-based, informed by clinical expertise, and represent best practice. Although NICE guidelines are not mandatory, so ICBs are not routinely monitored on their compliance, healthcare professionals are expected to take them fully into account.

NHS England, with support from the Department, has developed an e-learning programme to support healthcare professionals in the care of people with ME/CFS of all levels of severity. All four sessions of the e-learning programme are now available, with sessions one, two, and three having universal access, whilst the fourth session, which includes support and clinical management of severe ME/CFS, is only available to healthcare professionals. Further information is available on the NHS.UK website. As the e-learning programme is not mandatory, take-up at healthcare professional level is not routinely monitored.

The Medical Schools Council will promote the e-learning programme to all United Kingdom medical schools and will encourage those medical schools to provide undergraduates with direct patient experience of ME/CFS.

@lucibee.bsky.social Oct 13, 2026, 12:02 PM

Sharon Hodgson's 29 April answer to Clive Lewis is shown below:
questions-statements.parliament.uk/written-ques...

Clive Lewis had asked about the delay to the severe ME service consideration until April 2027.

Sharon Hodgson answered on 29 April 2026:

The Government published the ME/CFS Final Delivery Plan in July 2025, which is available at the following link:

https://www.gov.uk/government/publications/mecfs-the-final-delivery-plan

The plan focuses on three main areas to improve care and support for those with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), boosting research, improving attitudes and education, and bettering the lives of people with this debilitating disease. It also sets out a series of actions, which will help address the key challenges and drive forward improvements to outcomes and quality of life for people living with ME/CFS in England.

The Department worked closely with ME/CFS patients, carers, clinicians, charities, research funders and researchers throughout the development of the plan. This engagement has helped to shape new and more ambitious actions that deliver meaningful change for the ME/CFS community.

Due to transformation in NHS England, the decision has been made to delay the action to review a case for a specialised service commission until April 2027. Until this time, integrated care boards (ICBs) should continue to commission appropriate services for patients with very severe ME/CFS as needed. ICBs are responsible for the commissioning of services for all severity levels of ME/CFS. NHS England and the Department are developing a new template service specification for mild and moderate ME/CFS which will include reference to severe and very severe ME/CFS. Officials, alongside stakeholders, are considering interim measures to support people with very severe ME/CFS.

The Department and NHS England will continue to work with stakeholders across and beyond government and the NHS to progress the agreed actions set out in the plan and to ensure the best possible care for people with ME/CFS.

@lucibee.bsky.social Oct 13, 2026, 11:52 AM

29610: questions-statements.parliament.uk/written-ques...
29611: questions-statements.parliament.uk/written-ques...

Question 29611, on 14 September 2026, from Max Wilkinson, Liberal Democrat:

To ask the Secretary of State for Health and Social Care, whether the Department intends to publish any documentation relating to their decision to delay work on specialised commissioning arrangements for severe and very severe ME/CFS.

Mr James Frith answered on 12 October 2026:

I refer the Hon Member to the answers provided on 29 April in response to Question 124134, on 8 June in response to Question HL54, on 3 July in response to Question 12659, and on 6 July in response to Question 13299.

@lucibee.bsky.social Oct 13, 2026, 11:48 AM

Links to the other questions:

29606: questions-statements.parliament.uk/written-ques...
29607: questions-statements.parliament.uk/written-ques...
29608: questions-statements.parliament.uk/written-ques...
29609: questions-statements.parliament.uk/written-ques...

@lucibee.bsky.social Oct 13, 2026, 11:45 AM

17. On 14 September 2026, Max Wilkinson MP (Lib Dem) asked a series of questions (29605-29611) about ME/CFS and the Final Delivery Plan.

As they were all answered with the same response, I'll post just the first:

questions-statements.parliament.uk/written-ques...

Question 29605, tabled on 14 September 2026, from Max Wilkinson, Liberal Democrat, Cheltenham:

To ask the Secretary of State for Health and Social Care, whether a formal risk assessment for patient safety has been undertaken regarding the delay to work exploring commissioning arrangements for people with severe and very severe ME/CFS until after the planned abolition of NHS England in 2027.

Answered on 12 October 2026 by Mr James Frith, Labour, Bury North:

I refer the Hon Member to the answers provided on 29 April in response to Question 124134, on 8 June in response to Question HL54, on 3 July in response to Question 12659, and on 6 July in response to Question 13299.

@shh-uk.bsky.social Oct 12, 2026, 2:32 PMReposted by @lucibee.bsky.social

🚨 Five IPC mistakes. Five lessons we cannot afford to ignore.

The Covid Inquiry exposed fundamental failures in how healthcare workers were protected. Have we actually learnt from them? Read the analysis by @EvonneTCurran and @alitwy 👇

shh-uk.org/five-ipc-...

@lucibee.bsky.social Oct 13, 2026, 10:25 AM

This had increased to 102 NHS accounts (completions of module 2) by 20 June 2026. These data are not easy to summarise.

@lucibee.bsky.social Oct 13, 2026, 10:23 AM

74 NHS accounts had completed module 2 up to 20 January 2026 (the first FOIA request).

@lucibee.bsky.social Oct 13, 2026, 9:46 AM

I don't know where that data comes from. It's not what they told me in June!

@lucibee.bsky.social Oct 13, 2026, 9:44 AM

576 NHS email accounts accessed module 1. 209 accessed module 2. Many (most?) of the 209 will have also accessed module 1.

@lucibee.bsky.social Oct 13, 2026, 9:39 AM

Is it possible for you to ask where the 650 figure comes from? Because it differs from what they told me in June. 🤔 (I have a suspicion that they are using CoPilot summaries, and they don't realise that it can't do maths!)