@solveme.bsky.social
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
@solveme.bsky.socialResearchers at FHCSD seek patients diagnosed or w/ symptoms of Long Covid for the LC-Revitalize treatment study. Participation spans 6 mos, w/8 visits (6 in-person @ a San Diego-based clinic). Contact researchers @ [email protected] / (619) 324-8677 for more info or to join.
@solveme.bsky.socialJoin Solve M.E. leadership for our 2026 Community Address. We’ll discuss how we’re thinking about science and advocacy as we approach the midterms (and what comes after), and your role in what comes next.
🗓 Oct 20 · 1 PM PT / 4 PM ET
Recorded + captioned
Sign up👇
https://ow.ly/sshh50ZREFm
@solveme.bsky.socialSign up for our Nov. 10 webinar on the Renegade Research SIGNAL study. We’ll discuss how people with #MECFS and #LongCovid can join and borrow therapeutic devices for home use at no cost & contribute data to the BIC unhide® platform for research.
Register:
https://ow.ly/LGx250ZIvx7
@solveme.bsky.socialSolve’s Ramsay Research Grant Program is open for submissions! Visit our website for more information about the types and amounts of awards and how to apply by the November 13 deadline.
https://solvecfs.org/research/ramsay-research-grants/
Please share this news with your network!
@solveme.bsky.social📣Big news from Solve’s research team re: an upcoming funding opportunity for researchers studying #MECFS, #LongCovid, and associated conditions! Stay tuned for more info on October 6 & click the link to learn more about our Ramsay Research Grant Program.
@solveme.bsky.socialSign up for our Nov. 10 webinar on the Renegade Research SIGNAL study. We’ll discuss how people with #MECFS and #LongCovid can join and borrow therapeutic devices for home use at no cost & contribute data to the BIC unhide® platform for research.
Register:
https://ow.ly/LGx250ZIvx7
@solveme.bsky.socialToday, we're celebrating advocacy in action! Advocate & caregiver to her son, Gabe, Rebecca Groble secured an Illinois Senate Resolution acknowledging the prevalence & impact of ME/CFS across the state. Thanks, Rebecca, for your dedication to raising awareness!
#MEAwarenessHour
@solveme.bsky.socialOur IVO-21 webinar with Dr. Jay H. Chung was recently featured in Health Rising!
Read the full article to learn more about the research supported through Solve's Catalyst Award: https://ow.ly/V4yE50ZSnHT
Watch the webinar: https://ow.ly/WI3i50ZSnI1
#MECFS #ChronicFatigueSyndrome #IVO21
@solveme.bsky.socialJoin Solve M.E. leadership for our 2026 Community Address. We’ll discuss how we’re thinking about science and advocacy as we approach the midterms (and what comes after), and your role in what comes next.
🗓 Oct 20 · 1 PM PT / 4 PM ET
Recorded + captioned
Sign up👇
https://ow.ly/sshh50ZREFm
@solveme.bsky.socialSign up for our Nov. 10 webinar on the Renegade Research SIGNAL study. We’ll discuss how people with #MECFS and #LongCovid can join and borrow therapeutic devices for home use at no cost & contribute data to the BIC unhide® platform for research.
Register:
https://ow.ly/LGx250ZIvx7
@solveme.bsky.socialToday at 3 pm PT / 6 pm ET! Join us for a free webinar with Brain Inflammation Collaborative (BIC) to discuss how using the unhide® real-world data platform can help you recognize health patterns & trends to support conversations with healthcare providers.
Register here:
https://ow.ly/o1Iq50ZyLBO
@solveme.bsky.social3/ Read our full statement 👉 ow.ly/pHk350ZPTLT
Want to get involved? Use our toolkit to contact your Members of Congress and tell them to protect merit-based science at the NIH.
Take action: ow.ly/izCt50ZPTLV
@solveme.bsky.social2/ Giving political appointees that power risks new barriers and delays for people with ME/CFS, Long Covid & other chronic diseases, when they can least afford them. Fund the strongest science, on the merits. Patients have already waited long enough.
@solveme.bsky.social1/ News reports say the administration is drafting an executive order to create a committee that could override expert scientific review of NIH grants, shifting funding decisions away from scientific merit.
@solveme.bsky.socialToday is the last day to comment on a proposed reorganization by the National Inst. of Allergy & Infectious Diseases (NIAID) eliminating its Div. of Clinical Research--the infrastructure behind clinical trials.
Learn how to share your own comments:
https://ow.ly/GI7N50ZOWV0
@solveme.bsky.socialJoin us on 9/22 for a free webinar with Brain Inflammation Collaborative (BIC) to discuss using the unhide® real-world data platform to recognize health patterns & trends to support conversations with healthcare providers.
Register here:
https://ow.ly/o1Iq50ZyLBO
@solveme.bsky.social📣Tomorrow is the last day to publicly comment on a proposed reorganization by the Natl. Inst. of Allergy & Infectious Diseases (NIAID) eliminating its Division of Clinical Research — the infrastructure behind clinical trials.
Learn how to share your own comments hree:
https://ow.ly/1EnG50ZOWXS
@solveme.bsky.socialSign up for the CDC ME/CFS Stakeholder Engagement & Communication (SEC) Call - 'How Progress in Long COVID is helping us understand ME/CFS,' w/ Dr. Nancy Klimas + program updates from CDC's ME/CFS program staff & a Q&A.
Fri., Sept. 18, 2026, 12-1:30 PM ET / 3-4:30 pm PT.
@solveme.bsky.social4/ Add your comment in ~2 minutes by Sept 18:
→Go to niaid.nih.gov/about/niaid-...
→ Scroll down, click “Leave a comment,”
→Submit.
For suggested wording + Solve’s full comment:
ow.ly/v0no50ZO5Ve
@solveme.bsky.social3/ The details went up only as the 5-day window opened. A change this consequential deserves real time for patients, families, researchers, and clinicians to actually review it.
