Grilled Cheese

ExploreLog inSign up

Carole Bruce

@cabruce.bsky.social

2.3k Following2.6k Followers

Previously a psychotherapist. Bedridden #ME 32years Daughter severe ME, eldest son MS. I like art, nature, books, people, music, poetry and podcasts!

PostsRepliesMedia
@cabruce.bsky.socialOct 11, 2026, 8:00 AM

Reform UK are apparently going to send out an 8 page flyer to 15 million homes. If you fancy sending it back so that they have to pay return postage here is the address. You may want to keep it though, for lighting fires, wrapping fish etc!

@cabruce.bsky.socialOct 10, 2026, 2:04 PM

The march for Palestine has arrived at Downing Street now. Demanding that the government stop arming Israel šŸ‡µšŸ‡ø

@cabruce.bsky.socialOct 9, 2026, 8:20 AM

Anne Carson new Nobel Laureate for Literature.

@georgemonbiot.bsky.socialOct 8, 2026, 6:02 AMReposted by @cabruce.bsky.social

This looks like a crucial investigation to me, building on an essential body of work by @bylinetimes.bsky.social Please help to support it.
subscribe.bylinetimes.com/lightuptheda...

@cabruce.bsky.socialOct 7, 2026, 8:31 AM

Found this!

@newyorker.comOct 5, 2026, 7:31 PMReposted by @cabruce.bsky.social

A century after Virginia Woolf asked why sickness had failed to become one of literature’s great subjects, writers are still struggling to put physical suffering into words. www.newyorker.com/magazine/202...

@georgemonbiot.bsky.socialOct 5, 2026, 12:03 PMReposted by @cabruce.bsky.social

ā€œZionism is racismā€ is not a policy but a slogan. It compresses a complex history, going back millennia, and a very wide set of beliefs into one narrow meaning. The answer to genocide is not discrimination. We don't fight racism with racism. I’m gutted to see this motion adopted by the Green Party.

@georgemonbiot.bsky.socialOct 3, 2026, 11:18 AMReposted by @cabruce.bsky.social

The "Zionism is racism" motion, to be debated at the Green Party conference tomorrow, will not advance the Palestinian cause one inch. But, if adopted, it would marginalise and discredit the party. There are powerful ways to confront the genocide. Toxic gesture politics isn't one of them.

@cabruce.bsky.socialOct 4, 2026, 7:54 AM

Just totally fed up/broken hearted at the appallingly feeble efforts to help #ME patients over decades. Research, care, education. We are nowhere. šŸ’”

@abrokenbattery.bsky.socialOct 2, 2026, 3:04 PMReposted by @cabruce.bsky.social

"This is the opposite of how science ought to work."

George Monbiot on those pushing "false and dangerous" cures for #MECFS, "entrenched" in their beliefs and doubling down rather than admit the "great harm" to the lives of thousands of people.

@cabruce.bsky.socialOct 2, 2026, 11:10 AM

We #ME patients have been an inconvenience for decades.
With relief both governments and health insurers handed us over to the Psychiatrists and they continue to remain as the bottom line for most healthcare providers.

@cabruce.bsky.socialOct 2, 2026, 8:52 AM

Thanks again George. In your opinion would a public enquiry be the best way to stop the decades long bottleneck in any ME progress? People need to be held accountable for the purposeful damage caused to millions of us but would this move things forward fast enough? 33 yrs in bed is enough here!

@cabruce.bsky.socialOct 2, 2026, 8:47 AM

Which of the four avenues you mention would be the quickest, most thorough and potentially bring the fastest change in your opinion? People do need to be held accountable but they are incredibly slippery!

@georgemonbiot.bsky.socialOct 2, 2026, 7:46 AMReposted by @cabruce.bsky.social

@davetuller1.bsky.social, a great champion of patients, interviewed me about the massive, ongoing scandal of the neglect, abuse and mistreatment of people with ME/CFS www.youtube.com/watch?v=Maae...

@georgemonbiot.bsky.socialOct 2, 2026, 7:41 AMReposted by @cabruce.bsky.social

Keir Starmer wanted to be remembered as Prime Minister for building homes. Instead he will be remembered for his complicity in destroying them.
#GazaGenocide

Rafah, in Gaza, on Google Earth, in 2022, left, and in 2026, right. (from https://www.independent.co.uk/news/world/middle-east/google-earth-gaza-images-update-b3057562.html)
@abrokenbattery.bsky.socialOct 2, 2026, 5:58 AMReposted by @cabruce.bsky.social

ā€œIf we weren’t so ill, those of us with this awful disease would be shouting it from the rooftops.ā€

Eleanor Dent describes being largely housebound with #MECFS, from difficulties getting benefits to harmful advice, and still no treatment after 24 years.

Letter
@cabruce.bsky.socialOct 1, 2026, 6:12 PM

Readers respond to George Monbiot’s article about how those with myalgic encephalomyelitis, #ME or chronic fatigue syndrome, have been failed by the health system www.theguardian.com/society/2026...

@cabruce.bsky.socialOct 1, 2026, 11:41 AM

šŸ’š

@cabruce.bsky.socialSep 30, 2026, 4:35 PM

Strangely a heart/lungs consultant who was known by my GP to have an interest in ME. This was in ā€˜93.

@cabruce.bsky.socialSep 30, 2026, 1:31 PM

What I desperately needed to hear when I was diagnosed with #ME was
1. It’s real
2. It’s not your fault
It would have been wonderful to also know that there was a free National Care Programme in place that understood the needs of a #pwME.
People refuse to accept they could get ill at any time.

Older posts
Terms of UsePrivacy PolicyCommunity StandardsHelpGet the app

Grilled Cheese is a product of Village Compute

Version devBuilt at: 2026-10-11 19:07:23 EDT