#VonWillebrandDisease #VWD #CriticalMedicines #MedicineShortages #BleedingDisorders #EUHealth

📣 For many people with #VonWillebrandDisease, #VonWillebrandFactor replacement is the only effective treatment.🩸If supply runs short, there’s no fallback. 🇪🇺 EHC asks @ema.europa.eu & EU Member States to add #VWF to the EU List of #CriticalMedicines 👉️ buff.ly/bXI486B

This is part of our #VWD100 campaign, marking 100 years of #VonWillebrandDisease throughout 2026. Each month, we shine a light on a different aspect of #VWD.
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease

Awareness starts with knowledge. Consult our #VonWillebrandDisease symptom infographic and share it widely, because the sooner symptoms are recognised, the sooner people can access the care they deserve. 👉 buff.ly/cLvwLRW

Frequent nosebleeds. Easy bruising. Heavy menstrual bleeding. Prolonged bleeding after minor procedures. Symptoms are often dismissed as "normal", but for those living with #VonWillebrandDisease, they shape every aspect of daily life.

#VonWillebrandDisease (#VWD) is the most common inherited #BleedingDisorder, yet recognition remains a major challenge, even among healthcare professionals. 🩸

🎥 Catch up on our webinar on the global prevalence & ethnic diversity of #VonWillebrandDisease with Dr Omid Seidizadeh. 🤝 Co-organised with @erneurobloodnet.bsky.social & @eahad.bsky.social. ▶️ Watch now 👇️ buff.ly/b3UaKWu

👉 Read the guide: www.ehc.eu/wp-content/u...

#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease

Read the new EHC guide for adults with #BleedingDisorders on how to talk about pain with healthcare professionals 👉️ buff.ly/Fejz8aA

#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease

Thank you to everyone who shared their story with us. ❤️‍🩹 #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease

Their experiences remind us why speaking up about pain matters & why every conversation about #Pain is a step toward better, safer care. #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease

👉 Read the guide: buff.ly/Fejz8aA

#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease

This #WorldPatientSafetyDay, we're marking that principle & we've got something new in the works to help make those conversations easier. Stay tuned. 👀 #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease