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Grilled Cheese is a product of Village Compute

Version devBuilt at: 2026-10-16 23:52:51 EDT

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@verhac.bsky.socialOct 15, 2026, 9:24 AM

„Versorgung darf nicht an einer Tür enden, die der erkrankte Mensch aus eigener Kraft gar nicht erreicht.“

Chapeau Lisa Haderer! 👏

#MECFS #SevereME #VerySevereME

www.furche.at/meinung/mecf...

@nlizaki.bsky.socialOct 14, 2026, 5:56 PM

Respectfully wtf

gofundme.com/f/save-nevra
paypal.me/SaveLizNevra

#pwME #mecfs #severeME #verysevereME

Screenshot of black text on a white background that reads: "Will the ME orgs speak up when Pakistan comfortably watches the only MENA activist (me) being starved and abused or are we waiting to use my demise as an example and anecdote? I have no parents like the other mecfs patients making petitions for me. I'm not white. I still have human rights, you do wield some power. My sick disabled broke friends are trying. Where are you?"
@meactionscotland.bsky.socialOct 13, 2026, 1:16 PM

Please bear in mind that the film trailer contains upsetting content and be mindful of your energy limits while watching or contributing your story.
#VerySevereME #pwME #SevereME

@meactionuk.bsky.socialOct 13, 2026, 1:16 PM

Please bear in mind that the film trailer contains upsetting content and be mindful of your energy limits while watching or contributing your story.
#VerySevereME #pwME #SevereME

@nlizaki.bsky.socialOct 11, 2026, 9:55 AM

From Nevra's drafts:

Young heart for love
Not heartache
Dark hair for catching the wind
Not to veil the sight of a cold world

gofundme.com/f/save-nevra
paypal.me/SaveLizNevra

#VerySevereME #MillionsMissing #DisabilityJusticeForGlobalSouth #MyalgicEncephalomyelitis

@melmecfs.bsky.socialOct 9, 2026, 3:12 PM

#MECFS #LongCovid #PostCovid #PostVac #severeME #verysevereME

Bitte RT, danke.

@nlizaki.bsky.socialOct 3, 2026, 9:43 PM

Correction! If you want to join Team Nevra and help make graphics, videos, do admin, & more, please message @ myspiritflora on Instagram & one of the team will get back to you asap.

gofundme.com/f/save-nevra
PayPal.me/SaveLizNevra

#pwME #MECFS #severeME #verysevereME

Photo, no description
@tomkindlon.bsky.socialSep 28, 2026, 12:55 AM

The Severe & Very Severe ME Research Registry has been created. It gives people with severe and very severe ME from Germany, Austria, & Switzerland the opportunity to participate in research through home visits

severe-me-registry.de

#SevereME #MEcfs #CFS #PwME #VerySevereME #ChronicFatigueSyndrome

@nlizaki.bsky.socialSep 23, 2026, 2:22 AM

Seriously, we get erased so fast, faster than our most vulnerable peers even

gofundme.com/f/save-nevra
PayPal.me/SaveLizNevra

#pwME #mecfs #severeME #verysevereME

Screenshot of a conversation reads Nevra Liz Ahmed: I need help Nevra Liz Ahmed: I have an idea Nevra Liz Ahmed: Can we make September bipoc mecfs awareness month Nevra Liz Ahmed: Or even October Nevra Liz Ahmed: Where we amplify bipoc accounts and voices and MA
@meactionscotland.bsky.socialSep 21, 2026, 4:53 PM

George Monbiot has sent out a call asking 'Are any of you still being offered inappropriate (psych/GET etc) "treatments"?
Please email [email protected]
#pwME #VerySevereME

Photo, no description
@meactionuk.bsky.socialSep 21, 2026, 4:53 PM

George Monbiot has sent out a call asking 'Are any of you still being offered inappropriate (psych/GET etc) "treatments"?
Please email [email protected]
#pwME #VerySevereME

Photo, no description
@verhac.bsky.socialSep 19, 2026, 2:47 AM

Danke @annachristinam.bsky.social, @lucimair.bsky.social, Silvia Wojczewski, @astridhainzl.bsky.social, @leiss.bsky.social, @kathrynhoffmann.bsky.social & alle Studienteinehmer:innen! 🙌💪💐

#SevereME #VerySevereME #MECFS

2/2

@verhac.bsky.socialSep 19, 2026, 2:41 AM

Bei der diesjährigen ÖGPH (Österreichische Gesellschaft für Public Health) Tagung unter dem Titel „Unified Health in a Globalised World“ war #SevereME und #VerySevereME in den 7 nominierten Abstracts (aus über 300 Einreichungen) für den Horst Noack Preis vertreten.

#MECFS

oeph.at/oegph-2026/

1/2

Horst Noack Preis für Innovation in Public Health 2026 Bei der heurigen Jahrestagung wird wieder der Horst Noack Preis für Innovation in Public Health von der ÖGPH im Andenken an einen der Pioniere für Public Health in Österreich vergeben. Dieser Preis soll Arbeiten auszeichnen, die nicht nur qualitativ hochwertig sind, sondern innovative Ansätze verfolgen und das Potenzial haben, nachhaltige Veränderungen herbeizuführen. Basierend auf den Nominierungen für das beste Paper, die von den Reviewer:innen abgegeben wurden, hat der ÖGPH-Vorstand nochmals eine Bewertung durchgeführt. Die Bewertungskriterien waren:– Wissenstransfer und Community Engagement – Kreativität und Innovationskraft – Methodische Rigorosität – Nachhaltigkeit und gesellschaftliche Wirkung Die nominierte Abstracts für den Horst Noack Preis für Innovationen in Public Health sind:291 Menschen mit (sehr) schwerer ME/CFS und ihre pflegenden An-/Zugehörigen: Zur Notwendigkeit multiperspektivischer Forschung auf Augenhöhe (Verena Hackl et al.) Wir gratulieren alle nominierten Autorinnen bereits jetzt ganz herzlich! Alle Preisträgerinnen werden während der Abschlußplenary am 18.9. bekannt gegeben.
@meactionuk.bsky.socialSep 15, 2026, 3:14 PM

Please read this petition update about Karen Gordon and sign if you haven't already. Be aware that Karen is still very ill and having a hard time in hospital, so read with caution.

www.change.org/p/save-karen...
#VerySevereME

A photograph of Karen Gordon in a dark room in a hospital bed with a monitor by her bedside.
@meactionscotland.bsky.socialSep 15, 2026, 3:14 PM

Please read this petition update about Karen Gordon and sign if you haven't already. Be aware that Karen is still very ill and having a hard time in hospital, so read with caution.

www.change.org/p/save-karen...
#VerySevereME

A photograph of Karen Gordon in a dark room in a hospital bed with a monitor by her bedside.