explore | Grilled Cheese

@meetanostomate.bsky.social Oct 16, 2026, 2:46 AM

Healthy skin around the #stoma should not itch, hurt, or look red or darker than your usual skin tone. Preventing irritation is key! Always consult an #ostomy nurse for choosing the right system and handling skin issues early. Any comments?
#colostomy #ileostomhy #urostomy

@meetanostomate.bsky.social Oct 15, 2026, 1:52 PM

#Pouchitis is inflammation of an ileal pouch after J-pouch surgery. Symptoms include urgent diarrhea and cramps. Antibiotics help in most cases. It’s often temporary but can become chronic. Anyone with experience? #Jpouch #ostomy #stoma

@meetanostomate.bsky.social Oct 14, 2026, 1:37 PM

A #Jpouch is an internal reservoir made from the small intestine and connected to the anus, avoiding permanent #ileostomy in some patients. Stool passes through the anus. A temporary loop ileostomy diverts stool while the pouch heals, then is usually reversed. Anyone with J-pouch experience? #stoma

@meetanostomate.bsky.social Oct 14, 2026, 1:43 AM

We are not given a Stoma Encyclopedia when we leave hospital, but we do have this great site and friendly, experienced people.
Eric, member of MeetAnOstoMate
#stoma #ostomy #colostomy #ileostomy #urostomy #wocn #nswoc

@meetanostomate.bsky.social Oct 13, 2026, 10:22 PM

One-piece pouches combine the skin barrier and pouch, so the whole system is changed at once. Two-piece systems keep them separate, making pouch changes easier while the barrier can remain in place longer. What's your experience?
#ostomy #stoma #colostomy #ileostomy #urostomy

@heidylouisa.bsky.social Oct 13, 2026, 5:55 PM

#FreezeMode #chronicillness #worshipisalifestyle #spiritualwarfare #disability #uncomfortablegrace #theGospel #JesusIsLove #walkbyfaith #inChrist #relationshipwithGod #meaningoflife #ostomy #wonderfullymade #trustintheLord #spoonie #IAmDisabled #stoma #abundantlife #receiveChrist #purposefulliving

I don’t know why the Lord waited until now to show me that the Hebrew words “raphah,” which means “to relax, let go or be idle” and “rapha,” which means “to heal completely and thoroughly or to make entirely whole” are twin roots, especially since I’ve already been going through severe medical trauma for almost 6 1/2 years, but my life will never be the same. Freeze mode isn’t a malfunction, and it isn’t a lack of faith. It is our bodies obeying a biological and spiritual mandate to let go. In the original Hebrew, the call to "be still" in Psalm 46:10 comes from the word raphah—which literally means to slacken your grip, drop your hands, or let go of your weapons because the war has been too long. Intimately tied to this is its sister root rapha, the word for healing, found in

Jehovah Rapha: the Lord who heals. When we finally stop fighting and take that holy pause, we aren’t quitting; we are stepping right from raphah (letting go) into rapha (divine healing). We don’t need to carry weapons or fight back, because no weapon formed against us can win when our vindication and protection come directly from the Lord. This completely upends what spiritual warfare looks like. Dropping our guard in the presence of God isn’t surrender to the enemy—it is a high-level act of spiritual warfare. It sends a message to the spiritual realm that our security isn’t held together by our own hyper-vigilance. Real healing happens when the nervous system and the spirit realize they are allowed to rest in the middle of the storm. Throughout Scripture, God-given rest is a

protective sanctuary. God isn't asking you to stand guard forever. He isn't sitting up there grading you on how long you can stay hyper-vigilant before you crack. The whole point of letting go—of sinking into that biblical sanctuary—is that you finally get to put the armor down. True recovery gives us places and moments where we are safe enough to unclench our fists, stop scanning the room, and rest. You don't have to live on high alert forever. Your spirit is allowed to exhale.

@meetanostomate.bsky.social Oct 13, 2026, 12:54 PM

Don’t skip or loosen the seat belt for comfort. Position it across your hip/pelvis when possible. If it crosses your #stoma, a seat-belt pad or stoma guard may add protection. Our MeetAnOstoMate members share helpful tips and experiences in the Forum. #ostomy #urostomy

@colostomyuk.bsky.social Oct 13, 2026, 6:55 AM

If you're thinking of taking up a new sport but are looking for inspiration, why not check out our top tips! The series currently includes #Football #Swimming #RugbyLeague #Running and #Hiking and they can be viewed on our website: https://ow.ly/vLvH50YgYvK #Stoma #StomaAware

@meetanostomate.bsky.social Oct 12, 2026, 10:11 PM

A #urostomy may be needed for bladder or pelvic cancer, birth defects (e.g., spina bifida), spinal injury, neurological bladder problems, or severe urinary incontinence unresponsive to treatment. Any thoughts?
#ostomy #stoma

@colostomyuk.bsky.social Oct 11, 2026, 6:55 AM

Are you Experiencing rectal discharge?

If so you're not alone. For information and advice, take a look at our downloadable resources here: https://ow.ly/KaWN50ZN9VZ
You can also speak to one of our trained volunteers on 0800 328 4527 for experience-based support.

#stoma #Stoma101

Are you Experiencing rectal discharge?

If so you're not alone. For information and advice, take a look at our downloadable resources here: https://www.colostomyuk.org/information/stoma-problems/rectaldischarge/
You can also speak to one of our trained volunteers on 0800 328 4527 for experience-based support
#stoma #Stoma101

@meetanostomate.bsky.social Oct 10, 2026, 10:52 PM

Finding the right #ostomy pouch takes trial and error. Explore options and ask your ostomy nurse about accessories to improve comfort, security and fit. There are many helpful discussions on the MeetAnOstoMate Forum as well. #stoma #colostomy #ileostomy #urostomy

@meetanostomate.bsky.social Oct 10, 2026, 10:29 PM

When #IBD, such as #Crohns or #UC, causes inflammation or bowel damage unresponsive to treatment, an #ileostomy (diverting waste from the small intestine) or #colostomy (from the colon) may be needed. Waste passes through a #stoma into a pouch. Both can be temporary or permanent.

@meetanostomate.bsky.social Oct 9, 2026, 7:28 PM

Is it really a big deal, a one-night stand with a stranger… maybe not? Make sure you feel safe and share only what you’re comfortable with. Your ostomy may not be their primary focus, and they may not even notice it at all. Any thoughts? #ostomy #stoma #colostomy #ileostomy

@heidylouisa.bsky.social Oct 8, 2026, 9:07 PM

#medicaltrauma #GodKeepMyHeadAboveWater #ostomy #prayforme #discipleship #faithinChrist #joyoftheLord #worshipisalifestyle #spiritualsurgery #disabledChristian #relationshipwithGod #nursinghome #urostomy #meaningoflife #sanctification #refinement #pruning #uncomfortablegrace #stoma #holiness

You can experience the peace of the Lord even in the hardest moments of your life!!!

@meetanostomate.bsky.social Oct 8, 2026, 3:26 PM

Advice from people who’ve been there boosts confidence. Get in touch with others who have ostomies. Join a local support group or an online community like MeetAnOstoMate (world’s largest). Ask the questions you’re too shy to ask your doctor and get real-life tips. #ostomy #stoma

@colostomyuk.bsky.social Oct 8, 2026, 2:00 PM

Play the Colostomy UK lottery today to be in with a chance to win big while also giving back! Every week you have the chance to win the £25,000 lottery jackpot, plus many other fantastic cash prizes, whilst also supporting us! https://ow.ly/4lt150WnBwm #Stoma #StomaAware

Could you be our next winner? Play the Colostomy UK lottery today to be in with a chance to win big while also giving back! 💪

Every week you have the chance to win the £25,000 lottery jackpot, plus many other fantastic cash prizes, whilst also supporting us! ⭐

For every £1 entry at least 50p is donated directly to us. The more people that play, the more money we raise! 💜

Play the lottery today! https://www.colostomyuk.org/get-involved/fundraising/unity-lottery/

#Stoma #StomaAware

@meetanostomate.bsky.social Oct 7, 2026, 11:00 PM

Planned #ostomy? Ask before surgery: Why do I need it? Alternatives, risks and benefits given my health history? How'll it be performed? Best anesthesia? Preparation and diet? Recovery/home care/WOCN? Success rate? Cost/insurance? More suggestions?
#stoma #colostomy #ileostomy #urostomy

@colostomyuk.bsky.social Oct 7, 2026, 6:55 AM

'Proctectomy surgery' or 'Barbie Butt' surgery, is where your rectum and anus are removed and sewn up permanently. This article in our Tidings magazine, discusses this surgery, the recovery period and what life is like afterwards https://ow.ly/8WX950XJKJR #barbiebutt #stoma

What is ‘Barbie Butt’ surgery – and why do some people need it?

'Proctectomy surgery' or 'Barbie Butt' surgery, is where your rectum and anus are removed and sewn up permanently.

We’d love to hear your story! Share your experience in the comments or drop us a DM.

This article in our Tidings magazine, discusses this surgery, the recovery period and what life is like afterwards 💜 https://www.colostomyuk.org/wp-content/uploads/2023/12/Dear-Nurse-Barbie-Butt.pdf

#barbiebutt #stoma #stomaaware

@meetanostomate.bsky.social Oct 7, 2026, 1:59 AM

If you notice any of these signs, contact your doctor or go to the emergency dept: severe pain or signs of a blockage; being unable to pass stool for more than 24 hours; increased redness, swelling, or foul odor; a pale, dark, or black #stoma. Your thoughts?
#colostomy #ostomy

@meetanostomate.bsky.social Oct 6, 2026, 2:01 PM

Wound, Ostomy, and Continence Nurses (WOCNs) are trained to assist with the long-term management of an #ostomy, providing emotional support, product advice and practical solutions for patient comfort.
#stoma #colostomy #ileostomy #urostomy