🌸 Get to know our friend Nevra. Part 1: What do we love about Nevra? 🌸
Nevra is a wonderful person. We love her dearly for many reasons & want to share some of those reasons with you.
@nlizaki.bsky.social
@nlizaki.bsky.social🌸 Get to know our friend Nevra. Part 1: What do we love about Nevra? 🌸
Nevra is a wonderful person. We love her dearly for many reasons & want to share some of those reasons with you.
@verhac.bsky.social„Versorgung darf nicht an einer Tür enden, die der erkrankte Mensch aus eigener Kraft gar nicht erreicht.“
Chapeau Lisa Haderer! 👏
@mefoggydog.bsky.socialTake part from your bed, sofa, office or school.
#BEDforSevereME is for everyone.
Wear PJs, share, donate if you can and support. 💙
@nlizaki.bsky.socialRespectfully wtf
@meactionscotland.bsky.socialPlease bear in mind that the film trailer contains upsetting content and be mindful of your energy limits while watching or contributing your story.
#VerySevereME #pwME #SevereME
@meactionuk.bsky.socialPlease bear in mind that the film trailer contains upsetting content and be mindful of your energy limits while watching or contributing your story.
#VerySevereME #pwME #SevereME
@mefoggydog.bsky.socialWear your PJs.
Share a post.
Start a conversation.
Join #BEDforSevereME on 29 Oct and help make the rarely seen visible. 💙
More info - www.mefoggydog.org/bed-for-seve...
@melmecfs.bsky.social#MECFS #LongCovid #PostCovid #PostVac #severeME #verysevereME
Bitte RT, danke.
@anilvanderzee.bsky.socialSometimes it can feel like things are standing still. Especially for severe ME patients who can't easily participate in research. But in the Netherlands, they are being included.
@meassociation.org.ukGet in touch today:
0808 801 0484
meconnect@meassociation.org.uk
@tomkindlon.bsky.socialFrom Norway
The importance of work: A qualitative study of primary carers of severe ME patients’ experiences of balancing work with comprehensive caregiving responsibilities
www.sciencedirect.com/science/arti...
Screenshot from latest Science for ME weekly update
@nlizaki.bsky.socialThis must stop. I'm tired of losing my friends in the ME community to death. I've been tirelessly advocating since 2011, and we've only received crumbs in terms of funding! We don't have decades. We are alive NOW. (2/4)
@nlizaki.bsky.socialCorrection! If you want to join Team Nevra and help make graphics, videos, do admin, & more, please message @ myspiritflora on Instagram & one of the team will get back to you asap.
@nlizaki.bsky.socialIn Pakistan, landlords do not like to rent to unmarried women, much less disabled women. Your support helps Nevra overcome barriers and meet basic needs for housing, food, and medical care.
@alex-wears-crocs.bsky.socialI still have so much life left to live, if only I could live it. #millionsmissing #severeME
@halcionandon.bsky.social
@marjojo2004.bsky.socialI am delighted that two texts of mine have been published by @wordgathering.bsky.social - A Journal of Disability Poetry and Literature.
THE GIFT is slightly older. LA PARISIENNE ET LE RENARD, OR: ON LONGING is new.
wordgathering.syr.edu/vol20/issue1...
#ME/CFS #severeME #FlashMemoir
@nlizaki.bsky.social‼️ URGENT UPDATE FOR NEVRA ‼️
Please share widely and support.
Links:
gofundme.com/f/save-nevra
paypal.me/saveliznevra
#myalgicencephalomyelitis #SaveLizNevra #SevereME #MECFS #MillionsMissing
@tomkindlon.bsky.socialThe Severe & Very Severe ME Research Registry has been created. It gives people with severe and very severe ME from Germany, Austria, & Switzerland the opportunity to participate in research through home visits
#SevereME #MEcfs #CFS #PwME #VerySevereME #ChronicFatigueSyndrome
@malnutritionme.bsky.social