@nf2biosolutionsuk.bsky.socialNF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
@nfbot.bsky.socialSunday on the blog and today we are looking at patient stories. Sarah kindly shared her story for our blog and you can read that here. curenf2.org/sarahs-story/ Read other patient storied on our website here curenf2.org/patient-stor... #schwannomatosis #NF2
@nf2biosolutionsuk.bsky.socialSunday on the blog and today we are looking at patient stories.
Sarah kindly shared her story for our blog and you can read that here.
curenf2.org/sarahs-story/
Read other patient storied on our website here curenf2.org/patient-stor...
#schwannomatosis #NF2
@nf2biosolutionsuk.bsky.socialOur team Kim Whitlock, Abigail Owen & Jessica Wiseman had an amazing time at the Cambridge Rare Disease Network (CamRARE) RareSummit26 at the Wellcome Genome Campus on 7th October
They had a packed day of telling everyone about our sponsored NF2 research
#NF2 #NF2Awareness #ENDNF2 #schwannomatosis
@nf2biosolutionsuk.bsky.socialNF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
@nf2biosolutionsuk.bsky.socialNF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
@nf2biosolutionsuk.bsky.socialNF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
@nf2biosolutionsuk.bsky.socialNF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it is truly life changing.
Learn more at curenf2.org.
NF2 is for LIFE
NF2 is LIFE CHANGING
@nf2biosolutionsuk.bsky.socialNF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
@nf2biosolutionsuk.bsky.socialNF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
@nf2biosolutionsuk.bsky.socialSomething exciting is coming in 2027!
There is no better time to support our charity and our mission! Fix the Gene Change lives!
We are putting the FUN into fundraising with an opportunity for you to join us in raising funds where-ever you are in the country.
Repost and Share
#schwannomatosis
@nf2biosolutionsuk.bsky.socialNF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves. it can be truly life changing.
Learn more at curenf2.org.
@nf2biosolutionsuk.bsky.socialNF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
@nf2biosolutionsuk.bsky.social*** FUNDRAISING NEWS ***
This October, our very own Clare is getting her trainers on again to raise funds for Cure NF2 Foundation.
Running in honour or her family Scott, Olivia & Zac who all live with NF2.
Support Clare here: www.peoplesfundraising.com/donation/cla...
@nf2biosolutionsuk.bsky.socialIts sunday on the blog!
And we are back with the latest update from Avastin Diaries, so grab a cuppa and have a read.
Tshirt courtesy of @nf2.arch - check out the new stock at fcuknf2.bigcartel.com
@nf2biosolutionsuk.bsky.socialJoin our new podcast script "In Our Shoes: NF2 and Me"
If you live with NF2 and feel comfortable answering a few questions about your experiences, your insight could help shape something meaningful To take part msg or you can email me [email protected]
#schwannomatosis
@nf2biosolutionsuk.bsky.socialCome and join us at our Virtual Coffee Meet and meet other NF2ers. (carers/family welcome)
Date: Tuesday 13th October 10.30am BST
Have a chat, say hi or just enjoy the company - the choice is yours
Sign up here: forms.gle/Uq97GQJTy83G...
Guest speaker Katherine a yoga instructor
#schwannomatosis
@nf2biosolutionsuk.bsky.socialNF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
@nf2biosolutionsuk.bsky.socialNF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing.
Learn more at curenf2.org.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
@nf2biosolutionsuk.bsky.socialNF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves it can be truly life changing.
Learn more at curenf2.org.
