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Grilled Cheese is a product of Village Compute

Version devBuilt at: 2026-10-16 08:00:47 EDT

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@na-advocacy.bsky.socialOct 14, 2026, 2:41 PM

‼️Important ‼️The Q&A session will last an hour. Send your question(s) before Friday, 23 October! Message us the question(s) here or email [email protected]. Your voice shapes these conversations.
#neuroacanthocytosis #vps13adisease #xkdisease #ResearchForum #ResearchCollaboration #PatientQuestions

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@na-advocacy.bsky.socialSep 28, 2026, 10:32 AM

Are you a patient, family member or carer? Have questions about VPS13A or XK disease? The 27th VPS13 Forum has one-hour Q&A Session. As your question here or email [email protected].

#neuroacanthocytosis #vps13adisease #xkdisease #ResearchForum #ResearchCollaboration #PatientQuestions

Invitation to 27th VPS13 Forum, 26 October 2026, from 13:00 BST; topic is Q&A session for patients, families and carers
@na-advocacy.bsky.socialSep 25, 2026, 10:04 AM

Our 26th VPS13 Forum Report is now published! 👇
naadvocacy.org/wp-content/u...

The Forum was rich with basic science that helps us understand the bigger picture around VPS13A & XK diseases.

#neuroacanthocytosis #VPS13Adisease #XKdisease #ResearchForum #ResearchCollaboration

Report of 26th VPS13 Forum - Current directions in BLTP research - 27 Jul 2026