Discover the latest approved treatments for angioedema: https://bit.ly/4mCCnvR
#Angioedema #HAE #RareDisease #TreatmentOptions #HealthCare #AngioedemaNews #Bionews
@angioedemanews.bsky.social
@angioedemanews.bsky.socialDiscover the latest approved treatments for angioedema: https://bit.ly/4mCCnvR
#Angioedema #HAE #RareDisease #TreatmentOptions #HealthCare #AngioedemaNews #Bionews
@mgnews.bsky.socialRemember, every day is a new opportunity to check in with yourself and prioritize your well-being. What’s one self-care ritual you won’t skip today? #RareDisease
@zebrabande.bsky.socialIch hoffe es.
Und ich hoffe vorallem, dass ich das morgen hinbekomme...
*hoff*
#Ehlers-Danlos-Syndrom #hEDS #mcas #Mastzellaktivierungssyndrom #SmallFiberNeuropathie #sfn #chronischKrank #chronischKrank #kptbs #dis #trauma #zahne #rareDisease #selteneErkrankung
@mgnews.bsky.socialTake a closer look: https://bit.ly/4jZhMD2
People with myasthenia gravis (MG) often experience positive and negative emotions that coexist separately, according to a Bionews survey.
#MyastheniaGravis #RareDisease #MG #MyastheniaGravisNews #Bionews
@erneurogen.bsky.social🧬 How can fertility be preserved after testicular germ cell tumours?
Join ERN eUROGEN for an expert webinar on fertility in patients with testicular germ cell tumours.
📅 21 October | 18:00–19:00 CEST
🔗 tinyurl.com/eurogen21oct26
#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #UroOnc
@angioedemanews.bsky.socialGet the scoop: https://bit.ly/4jipsAa
Columnist Hollie Amadio often writes about "speaking loud." But during a recent hospitalization, she found herself unable to self-advocate.
@mgnews.bsky.socialKeep on living life to the fullest despite your disability 🤍 Join the MG community: https://bit.ly/47V3CeY
#Bionews #RareDiseaseCommunity #ChronicIllness #RareDisease #RareDiseaseSupport
@angioedemanews.bsky.socialDiscover more: https://bit.ly/4hYJBJ1
A man with influenza A developed angioedema after taking an antiviral while also being treated with an ACE inhibitor, per a case report.
@mgnews.bsky.socialGet the scoop: https://bit.ly/4ij1AeJ
Ahead of MDA Engage: Dallas, keynote speaker Lily Sander discusses belonging, resilience, and the power of community and connection.
#MyastheniaGravis #RareDisease #MG #MyastheniaGravisNews #Bionews
@rarectadvocate.comBabesiosis is a malaria-like tick-borne infection in which Babesia parasites destroy red blood cells. Connecticut is a hotspot, and it can be severe for people without a spleen.
Learn more: https://dub.sh/GLA1
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
@gamuts.netOccipital horn syndrome https://gamuts.net/x/10327 #RareDisease #MedEd #FOAMrad
@ancan501c3.bsky.socialMEN SPEAKING FREELY: Open to ALL conditions. We don’t discuss medicine, treatments, etc – instead, all the other things you have to deal with living with your situation.
1st & 3rd Thursdays 8pm ET
https://www.gotomeet.me/AnswerCancer
@gene2phenotype.bsky.social'CRYAB-related infantile hypertonic myofibrillar myopathy' added to DDG2P. Biallelic LoF variants in CRYAB cause a disorder characterised by rapid development of profound muscle stiffness and respiratory insufficiency soon after birth. See www.ebi.ac.uk/gene2phenoty... #RareDisease #morbidgene
@franmartinezgr.bsky.socialBi-allelic variants in the secretory pathway gene SEC16A are associated with a neurodevelopmental disorder #RareDisease #Genetics #morbidgene www.jci.org/articles/vie...
@selimali777.bsky.socialA community is fighting for Adam, but no family should have to race time for treatment. #DMD #raredisease
www.youtube.com/watch?v=bVQo...
@mgnews.bsky.socialExplore the details: https://bit.ly/4AYnzim
Approved and experimental treatments for gMG show different patterns of benefit across efficacy measures, an indirect comparison shows.
#MyastheniaGravis #RareDisease #MG #MyastheniaGravisNews #Bionews
@mgnews.bsky.socialTake a closer look: https://bit.ly/4zwM2d5
Columnist Mark Harrington says his body may be a "stubborn old donkey," but he's grateful it's carried him through 66 years of life.
#MyastheniaGravis #RareDisease #MG #MyastheniaGravisNews #Bionews
@franmartinezgr.bsky.socialExpanding Clinical and Variant Spectrum of CBX1-Related Syndrome: Report of Three Novel Cases #RareDisease #Genetics #morbidgene onlinelibrary.wiley.com/doi/10.1111/...
@rarectadvocate.comBethlem Myopathy 1A is a rare inherited muscle disease caused by COL6A1 gene changes, leading to slowly progressive weakness, tight joints, and skin changes such as keloid scars.
Learn more: curecmd.org
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
@gamuts.netPapilloma of choroid plexus: #Radiology findings https://gamuts.net/x/6175 #RareDisease #FOAMrad #Gamuts
