Grilled Cheese

ExploreLog inSign up
Terms of UsePrivacy PolicyCommunity StandardsHelpGet the app

Grilled Cheese is a product of Village Compute

Version devBuilt at: 2026-10-15 19:58:26 EDT

PhotosVideosAllPeople
LatestRanked
@tomkindlon.bsky.socialOct 16, 2026, 12:59 AM

"My Reasonable Adjustment for Work and Education Plan: Guidance for Employers / Tutors" (5 pages)

suffolkfed.org.uk/wp-content/u...

#MEcfs #LongCovid #PwME #CFS #MyalgicEncephalomyelitis

1/

My Reasonable Adjustment for Work and Education Plan Guidance for Employers / Tutors 1. A Guide to the Reasonable Adjustment for Work and Education Plan This Reasonable Adjustment for Work and Education Plan is a personalised, practical tool designed to foster a supportive and productive partnership between an individual managing Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) or Long Covid, and their employer or educational institution. This document aims to facilitate open, constructive dialogue about what helps the individual stay well, what might cause their symptoms to worsen, and what support can be put in place to enable them to thrive. The purpose of this plan is not to present a list of demands, but to create a shared understanding. It is a proactive tool that empowers the individual to articulate their needs and self-management strategies, while enabling managers, HR representatives, and educators to provide effective, reasonable support. By working together, it is possible to create an environment where a valued employee or student can continue to contribute their unique skills and talents, maintaining both their wellbeing and their productivity. It is crucial to recognize that ME/CFS and Long Covid are fluctuating diseases. An individual's capacity and support needs can change from day to day or week to week. Therefore, this reasonable adjustment plan should be treated as a living document. It provides a solid foundation for an initial conversation and agreement, but it should be reviewed regularly—for example, on a quarterly basis—to ensure it remains relevant and continues to meet the needs of both the individual and the organisation. Finally, this plan is a personal and confidential document. The individual who completes it owns the information within. It should only be shared with their express permission and handled with the same level of confidentiality as any other sensitive health information, such as an Occ…
@tomkindlon.bsky.socialOct 16, 2026, 12:32 AM

"The medical establishment is not merely passively neglectful toward people with ME/CFS. It is actively vindictive: A medical textbook doubles down on misinformation and stigma" by K. Johnstone

mecfs.substack.com/p/the-medica...

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

The medical establishment is not merely passively neglectful toward people with ME/CFS. It is actively vindictive. A medical textbook doubles down on misinformation and stigma K. Johnstone Oct 09, 2026 An important and widely used medical textbook, Kumar and Clark’s Clinical Medicine has been repeatedly criticized for presenting out-dated and harmful misinformation about ME/CFS. There was a petition asking for the textbook to be updated. Now the new version is out - and it’s worse than ever. ME/CFS is wrongly presented as a psychological illness. Patients living with severe chronic illness are slandered as delusional people who merely ‘believe’ that they are physically ill. The ‘information’ about ME/CFS in the textbook is at this point so far from the current medical and scientific consensus that it can no longer be viewed as merely biased or unbalanced. It’s worse than that. It is prejudiced, malicious, and hateful. The choice to include this misinformation constitutes a deliberate act of harm toward people with ME/CFS. It is slander toward an entire group of seriously ill patients, and I look forward to the day when those responsible are held to account.
@achronicvoice.comOct 16, 2026, 12:30 AM

Twenty bodies. One thread of #movement. Unbound is a short #dance #film created by individuals living with #MECFS &/or #LongCOVID, exploring the tension between constraint and expression, stillness and vitality.”: buff.ly/BamzfQF

via @liapas.bsky.social
#pwME #ChronicIllness #disability #dancers

@nlizaki.bsky.socialOct 16, 2026, 12:26 AM

🌸 Get to know our friend Nevra. Part 1: What do we love about Nevra? 🌸

Nevra is a wonderful person. We love her dearly for many reasons & want to share some of those reasons with you.

GFM: gofundme.com/f/save-nevra
PP: paypal.me/SaveLizNevra

#saveliznevra #pwME #severeME

@irishmecfsassoc.bsky.socialOct 15, 2026, 7:48 PM

#Ireland
Our Christmas card page is now up irishmecfs.org/store

Wide selection: 15 packs with English or English & Irish verses

10% of gross amount goes to our research fund

Shops don't get a cut so more goes to charity

Reposts welcomed

#MEcfs #PwME #speirgorm #spéirgorm #speirghorm #spéirghorm

All profits from the Christmas cards go to the Irish ME/Chronic Fatigue Syndrome Association (an all-volunteer organisation) with a cartoon image including a Santa Claus and presents
@litsadremousis.bsky.socialOct 15, 2026, 6:05 PM

My fridge is stocked & I'm deeply grateful☀️

But I wish I could stand long enough to prepare meals.

I end up eating a lot of sandwiches and salads, apples and peanut butter, et al b/c they require zero prep.

It's been 35+ yrs & I still miss normalcy.

#MyalgicEncephalomyelitis #pwME

@michaelnobbs.bsky.socialOct 15, 2026, 10:04 AM

I'm needing to spend most of my days on my bed at the moment, but today I made it out to my gate, where I was greeted by this beautiful purple-grey sky.

The tips of the caterpillar of oaks are beginning to colour for autumn.

Back to bed now ❤️🐌

#MorningView #MECFS #pwME #Wales #CreativeHabit

@meownersclub.bsky.socialOct 15, 2026, 6:05 AM

So a govt department CAN respond to a prevention of future deaths report (POFDR). But they can’t do anything about the POFDR for #Maeve or her mother

This lazy approach to #pwME is an absolutely appalling dereliction of duty for people with severe and very severe #ME
@swastrosarah.bsky.social

Civil service Parents of Chloe Moffat want Treasury staff held to account over her death
@tomkindlon.bsky.socialOct 15, 2026, 12:32 AM

Jarred Younger PhD on the brain in ME/CFS, fibromyalgia and long COVID

www.youtube.com/watch?v=oj6M...

Screenshot from AMMES October 2026 newsletter

#MEcfs #LongCovid #PwME #CFS #Fibromyalgia

Screenshot of a video interview with Jarred Younger PhD with the following text Jarred Younger PhD on the brain in ME/CFS, fibromyalgia and long COVID The founder of the Neuroimmune, Pain and Fatigue Lab at UAB talks on measuring energy levels in the brain, what may be the brain hub for ME/CFS, FM and long COVID, why the fatigue and pain in these diseases has a brain origin, the biggest disappointment in his academic career, and more.
@tomkindlon.bsky.socialOct 15, 2026, 12:26 AM

Gut Microbiome and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Insights into Disease Mechanisms

pmc.ncbi.nlm.nih.gov/articles/PMC...

Screenshot from AMMES October 2026 newsletter

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Image of someone's lower torso with a gut outline with the following text Gut Microbiome and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Insights into Disease Mechanisms It is hypothesized that specific disturbances in gut microbiome composition, known as dysbiosis, may compromise the integrity of the intestinal barrier. This consequently leads to translocation of microbial components, which further triggers an immune response and systemic inflammation complicating the clinical presentation of ME/CFS. Furthermore, in terms of the so-called gut–brain axis, microbiome changes may lead to distinct neurocognitive impairments observed in ME/CFS patients. Read more here>>
@jjclapton.bsky.socialOct 15, 2026, 12:02 AM

Lidl sell a precooked chicken that actually has a super longlife code and you cook for only ten minutes and it is delicious!

Yay for easy delicious meals #pwME

@meactnet.bsky.socialOct 14, 2026, 10:24 PM

Please join us on November 15th at 4 pm ET for a special talk with Kim Moy of Caregiver Wisdom - "Being on the Same Team: Strengthening Relationships Through Chronic Illness." It is for BOTH the #caregiver & the #pwME/ #pwLC/ etc.

www.meaction.net/event-detail...

#FamilyCaregiver

@mefoggydog.bsky.socialOct 14, 2026, 7:02 PM

Take part from your bed, sofa, office or school.

#BEDforSevereME is for everyone.

Wear PJs, share, donate if you can and support. 💙

www.mefoggydog.org/bed-for-seve...

#Fundraiser #MEAwarenessHour #pwME #ME #SevereME

@nlizaki.bsky.socialOct 14, 2026, 5:56 PM

Respectfully wtf

gofundme.com/f/save-nevra
paypal.me/SaveLizNevra

#pwME #mecfs #severeME #verysevereME

Screenshot of black text on a white background that reads: "Will the ME orgs speak up when Pakistan comfortably watches the only MENA activist (me) being starved and abused or are we waiting to use my demise as an example and anecdote? I have no parents like the other mecfs patients making petitions for me. I'm not white. I still have human rights, you do wield some power. My sick disabled broke friends are trying. Where are you?"
@meactnet.bsky.socialOct 14, 2026, 4:13 PM

Have you signed up for our Halloween art workshop yet? It will be October 29th at noon ET- all online & free to join! https://ow.ly/yJBN50ZXIpn

Orion Romero, a #pwME, educator, artist, & MEAction volunteer, will be hosting! Thank you, Orion!

Join in & have fun! Register now!

Poster for Orion's Halloween Art Workshop on October 29, 2026, at 12:00 pm Eastern, featuring spooky paintings and spider web decorations. Paintings are by Orion Romero, the artist teaching the workshop. MEAction logo in bottom corner.
@katybrc.bsky.socialOct 14, 2026, 1:20 PM

@yvettecooper-mp.bsky.social
@tessamunt.bsky.social

#ME #MEcfs #pwME #MedTwitter

@meassociation.org.ukOct 14, 2026, 12:45 PM

1/2: A new play is coming to London! Created by Noah McCreadie, who will be performing this one man show at the The Union Theatre about his friend who had ME, and sadly passed away a few years ago.

4 November 2026 - 6 November 2026
Times: 7.30pm
Tickets: £18

#MECFS #pwME #MyalgicE

IMAGE DESCRIPTION: A photo of a young boy, overlaid by the silhouette of two bows sitting and talking together. Wording: The McCreadie company presents Condensation and Cannonballs. The Union Theatre, Wed 03.11 - Fri 06-11 Written and performed by Noah McCreadie, Directed by Hannah McLeod.
@meownersclub.bsky.socialOct 14, 2026, 8:22 AM

In this context my experience of an abusive system (but good drs)has been 40yrs of iatrogenic disability. It makes me ask-is the medical abuse of #pwME being obscured by *common-sense debates* about #LC, and as new meanings of PII develop will the Wessely school destructions just be disappeared?