Grilled Cheese

ExploreLog inSign up
Terms of UsePrivacy PolicyCommunity StandardsHelpGet the app

Grilled Cheese is a product of Village Compute

Version devBuilt at: 2026-10-15 19:58:26 EDT

PhotosVideosAllPeople
LatestRanked
@meactnet.bsky.socialOct 14, 2026, 10:24 PM

Please join us on November 15th at 4 pm ET for a special talk with Kim Moy of Caregiver Wisdom - "Being on the Same Team: Strengthening Relationships Through Chronic Illness." It is for BOTH the #caregiver & the #pwME/ #pwLC/ etc.

www.meaction.net/event-detail...

#FamilyCaregiver

@tomkindlon.bsky.socialOct 14, 2026, 12:36 AM

NIH's clinical trials program for Long COVID, RECOVER-TLC (Researching COVID to Enhance Recovery-Treating Long COVID) will host a 2-day workshop

web.cvent.com/event/e0be40...

Screenshot from MassME October newsletter

#LongCovid #PASC #PwLC #postcovid

RECOVER-TLC Two Day Workshop

NIH's clinical trials program for Long COVID, RECOVER-TLC (Researching COVID to Enhance Recovery-Treating Long COVID) will host a two-day workshop on Wednesday, November 4 and Thursday, November 5 to provide updates and discuss opportunities via plenary speakers, panel discussions, and networking. Attend in person in Bethesda, Maryland or join by Zoom. Register here.
@tomkindlon.bsky.socialOct 13, 2026, 12:23 AM

From the UK

Choroid plexus enlargement in Post-COVID-19 syndrome is linked to Serum-Induced cytokine secretion in human hippocampal progenitors

www.sciencedirect.com/science/arti...

Screenshot from Science for ME update

#LongCovid #NeuroPASC #COVIDBrain #PASC #PwLC #postcovid #postcovid19

Choroid plexus enlargement in Post-COVID-19 syndrome is linked to Serum-Induced cytokine secretion in human hippocampal progenitors — Martins et al
"By demonstrating that CP enlargement tracks functional immune effects in human neural cells rather than peripheral cytokine concentrations, our findings highlight the importance of moving beyond circulating biomarkers to understand immune–brain coupling in post-infectious syndromes."
Article | Thread
@tomkindlon.bsky.socialOct 12, 2026, 9:00 PM

2/
“Among the changes associated with long-Covid symptoms, was an over-abundance of bacteria that produce lactic acid, and this was also linked to signs of inflammation found in samples of patients' blood.”

#LongCovid #PASC #PwLC #postcovid

@s4me.infoOct 11, 2026, 8:22 PM

Our latest News in Brief weekly summary has headlines with links to further reading about ME/CFS, Long Covid, and related news for the week of Oct 5 - 11:

s4me.info/threads/news...

#MEcfs #PwME #LongCovid #PwLC

@longcovidsos.bsky.socialOct 9, 2026, 1:29 PM

We have written to the JCVI before about the evidence that vaccination reduces the risk of developing Long Covid. We’ve now written AGAIN following their advice for autumn 2027
2 million #pwlc in the UK.
Yet #LongCovid isn’t mentioned in the latest advice.

www.longcovidsos.org/post/respons...

@tomkindlon.bsky.socialOct 9, 2026, 12:02 AM

From Ireland

Characterizing Host Inflammatory Bioprofiles in People With Postacute Sequelae SARS-CoV-2 Infection (PASC)

onlinelibrary.wiley.com/doi/10.1155/...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19

Characterizing Host Inflammatory Bioprofiles in People With Postacute Sequelae SARS-CoV-2 Infection (PASC) — Marmont et al
"six distinct inflammatory clusters were identified within people with PASC, three of which showed elevated biomarkers related to tissue damage and repair, coagulation, axonal injury, and antiviral immune responses and were associated with component 3 of the complement pathway."
Article | Thread
@tomkindlon.bsky.socialOct 8, 2026, 11:51 PM

From the US

Neurocognitive Indices of Long COVID: Dysregulated Engagement of Inhibitory Control and Oscillatory Slowing

www.mdpi.com/2673-4087/7/...

Screenshot from latest Science for ME weekly update

#LongCovid #NeuroPASC #COVIDBrain #PASC #PwLC #postcovid #postcovid19

Neurocognitive Indices of Long COVID: Dysregulated Engagement of Inhibitory Control and Oscillatory Slowing — White et al
"Taken together, these findings clearly indicate that even mild PASC is associated with significant alterations in cell signaling, characterized by oscillatory slowing."
Article | Thread
@tessamunt.bsky.socialOct 7, 2026, 7:23 PM

👇🏽NB Helpful analysis and advice on the current Covid situation from @buds-disability.bsky.social. Remember that having Covid may bring long-term complications. And the data is that 50% of those with Long Covid develop ME-like symptoms.

So, be wise, be Covid cautious. 😷

#pwME #pwLC

@tomkindlon.bsky.socialOct 6, 2026, 1:29 AM

From Austria

Remnant virus proteins sustain vascular inflammation post coronavirus infection in mice and humans

portlandpress.com/clinsci/arti...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC

Remnant virus proteins sustain vascular inflammation post coronavirus infection in mice and humans
@phillyphile215.bsky.socialOct 6, 2026, 12:03 AM

Patient advocates #pwME #pwLC (who are not lawyers) this could be a great opportunity to explore systemic reforms needed for our communities 👇

@crookedneighbor.bsky.socialOct 4, 2026, 9:04 PM

Oh hey this is my dream for #pwLC and #pwME 🏠🛌🐈

@s4me.infoOct 4, 2026, 8:33 PM

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 28 - Oct 4:

s4me.info/threads/news...

#MEcfs #PwME #LongCovid #PwLC

@tomkindlon.bsky.socialOct 2, 2026, 12:41 AM

From Sweden

Booster dose of COVID-19 vaccine and its effectiveness against post COVID-19 condition in individuals with pre-existing immunity

www.thelancet.com/journals/ecl...

Screenshot from Science for ME update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome

Booster dose of COVID-19 vaccine and its effectiveness against post COVID-19 condition in individuals with pre-existing immunity: a sequential propensity score-matched cohort study — Morris et al
"we demonstrate that receiving a fourth dose of COVID-19 vaccine is associated with a decreased risk of being diagnosed with post COVID-19 condition during the first 6 months after vaccination, although the incidence rate difference was small."
Article | Thread
@tomkindlon.bsky.socialOct 1, 2026, 12:34 AM

From the UK

An Open-Label Feasibility Study of Remdesivir in Long COVID: Results from the ERASE LC Trial

dx.doi.org/10.1093/oxfi...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19

An Open-Label Feasibility Study of Remdesivir in Long COVID: Results from the ERASE LC Trial — Faghy et al
"The mean (SD) distance achieved in the 6MWT was 408 (113) metres at baseline compared to 468 (109) metres post-intervention" "whilst improvements were observed in health-related quality of life, the mean change in EQ-5D-5L index score (0.06) did not exceed the published MCID of 0.11" "Improvements could reflect natural fluctuation in symptom burden, behavioural modification associated with trial participation, or expectation effects."
Article | Thread
@meactnet.bsky.socialSep 30, 2026, 5:18 PM

Dealing with Uncertainty and Chronic Illness -A Workshop with Marisa Renee Lee is now available to watch! https://youtu.be/gopHHk_4R4c

We had a meaningful time coming together as a community. Huge thanks to Lee (author of Grief is Love and Waiting for Dawn) for leading this workshop. #pwME #pwLC

Portrait of Marisa Renee Lee smiling with information on her workshop video on managing uncertainty and chronic illness. Photo: Black woman with long hair wearing a deep purple top and smiling. On each side of that photo is a picture of one of her books: Waiting for Dawn and Grief is Love. Text above: Dealing with Uncertainty and Chronic Illness- A workshop with Marisa Renee lee. Video now available!
@cgatist.bsky.socialSep 29, 2026, 10:41 AM

Rob Wust (Amsterdam) shows that #pwME and #pwLC (all with PEM) *perfectly* separate from healthy controls with respect to their muscle microvasculature radius. Lower lumen radius in ME/LC. Needs replication, but this muscle biopsy metric has high diagnostic potential.
#MEcfs #PRIME26 #LongCovid

@meactnet.bsky.socialSep 28, 2026, 9:45 PM

We’ve also connected with state health officials in California, Wisconsin, and Colorado, while pursuing connections in Alaska and Nevada.

Four advocates have shared their lived experiences directly with Medicaid leaders. Thank you, advocates!

#PwME #medicaid #pwLC

@s4me.infoSep 27, 2026, 8:50 PM

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 21 - 27.

s4me.info/threads/news...

#MEcfs #PwME #LongCovid #PwLC

@belasco.bsky.socialSep 25, 2026, 4:41 PM

Today I’m feeling particularly grateful for the #pwME & #pwLC who have the energy to get angry, stand up to & make the community aware of bad studies & bad actors, & even occasionally the ability to physically show up to represent the unseen masses.

Load more