Because PSC is a rare, often invisible, autoimmune liver disease, explaining it to friends, family, or colleagues can feel exhausting. We want to make those conversations easier. Learn more ➡️ buff.ly/hUKnRTq
#PSCSupport #PrimarySclerosingCholangitis #ExplainPSC #RareDiseaseAwareness #LetsBeatPSC

From liver transplant surgery to a half marathon finish line in 365 days! Gemma ran for #TeamPSCSupport exactly one year after receiving her life-saving liver transplant. A triumph of personal determination and the incredible gift of organ donation. #OrganDonationSavesLives #PSCSupport #LetsBeatPSC

Tickets are going FAST for our London Information Day on Sat, 5th Dec!
Join us at The Cumberland Hotel, Marble Arch for expert talks, Q&As & community connection. Free to attend, but spaces are limited!
🎟️ Register now: buff.ly/Z1xhLyJ
#LetsBeatPSC #PSCSupport

Recognising the need for psychological support duringn the liver transplant journey is critical. Following Mark Chatterley’s presentation at #BASL2026, he caught up with Dr. Yeoman to discuss why mental health support must be central to clinical care. #WorldMentalHealthDay #PSCSupport #LetsBeatPSC

PSC is complex enough, but adding IBD into the mix introduces even more challenges. In this clip from our latest Ask the Expert, Dr. Peter Rimmer shares how he helps PSC-IBD patients understand all their options.
Full video & playlist: buff.ly/qY72Rjh
#PSCSupport #PSCIBD #AskTheExpert

A huge THANK YOU to Vicki, who is stepping down after years as a volunteer FB Group moderator! Her dedication & knowledge helped hundreds of patients navigate PSC & find vital information. We couldn't manage our community without amazing volunteers like Vicki. 👏
#PSCSupport #ThankyouThursday

It’s #BASL2026 and we're on the ground all week! Why are we here? To fly the PSC flag: building relationships with clinicians & researchers to ensure the patient voice is impossible to ignore. Watch this space & subscribe to stay in the loop: buff.ly/BYvqkzi #PSCSupport #LiverDisease #LetsBeatPSC

Huge congratulations and a massive thank you to Shane and Regina, who smashed the Antrim Coast Half Marathon and raised an incredible £1,484 for PSC Support! Explore our places in major events today, and join the team: buff.ly/yemzd3M
#PSCSupport #AntrimCoastHalfMarathon #TeamPSCSupport #LetsBeatPSC

With around 8 in 10 people with PSC also living with IBD, understanding PSC-IBD is vital for our community. Our latest session offers expert insights on management, symptoms, and ongoing care of #PSCIBD.
👉 Watch the PSC-IBD session here: buff.ly/Jc0uOHd
#PSCSupport #LetsBeatPSC

For #NationalPoetryDay, a community member diagnosed with PSC & UC at 13 shares how writing poetry in hospital waiting rooms became a vital outlet.
Watch & listen to them read their moving poem set to a sun-dappled backdrop 👇
#PatientVoice #PSCSupport

One year after being diagnosed with PSC, Amy ran Brighton Marathon raising over £3,000 for #PSCSupport!

Inspired by Amy? We have places in Brighton Marathon and lots of other runs! See featured runs on our website or get in touch [email protected].
pscsupport.org.uk/fundraise/ru...

Have you been offered access to a clinical trial for PSC?

This short is from a special PSC Support Ask the Expert session with international PSC experts who mapped out the road to effective treatments.

Full session & extracts: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport

With few hills or inclines, Barcelona Marathon course is flat and fast, and suits first time runners, or those going for a PB! Plus it's a great excuse to explore this unique city while raising much needed funds for #PSCSupport.
➡️ runforcharity.com/charity-regi... #LetsBeatPSC #TeamPSCSupport

An optimistic outlook on the Norucholic acid (NCA) being approved by regulators in the near future.

This is from a special Ask the Expert session with international PSC experts who mapped out the road to effective treatments.

Full session and extracts: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport

Lived experience makes research stronger. Our Patient and Public Involvement and Engagement (PPIE) helped shape a new $13.6M PCORI-funded study on PSC symptom support and mental health.
Want to shape future research? Join the #PSCSupport Patient Panel Pool 👇
www.pscsupport.org.uk/pcori-empowe...

When will we have treatments for PSC itch (pruritus)?

This extract is from a special PSC Support Ask the Expert session with int'l PSC experts who mapped out the road to effective treatments.

Full session and extracts here: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport

🍂 As we head into autumn, let’s talk about the immune system and PSC!

Normally, our immune system shields us from bugs like viruses and bacteria. But in immune-related conditions like PSC, that shield turns inward and damages our own organs. #PSCSupport #PSC (1/3)