🧠Mental health support for people with PKU remains uneven across Europe.
On World Mental Health Day, the European Parliament Cross-Party Alliance on PKU called for mental health to become an integral part of rare disease care.
@espku.org
@espku.org🧠Mental health support for people with PKU remains uneven across Europe.
On World Mental Health Day, the European Parliament Cross-Party Alliance on PKU called for mental health to become an integral part of rare disease care.
@espku.orgđź“Ł This is #tracesofpkuđź‘Ł Encore.
Late diagnosis does not mean it is too late for treatment!
đź“„ The revised European PKU Guidelines recommend individualised treatment and comprehensive support for late-diagnosed people with PKU, including mental health.
@espku.orgđź“ŁThis is #tracesofpkuđź‘Ł Encore.
🧠Late-diagnosed #PKU can affect an entire family’s mental health. Parents, siblings and carers may carry worry, exhaustion and helplessness. Their wellbeing deserves support, too.
#mentalhealth #mentalhealthday #pkumentalhealth #raredisease
