Sunday on the blog and today we are looking at patient stories.
Sarah kindly shared her story for our blog and you can read that here.
curenf2.org/sarahs-story/
Read other patient storied on our website here curenf2.org/patient-stor...
#schwannomatosis #NF2

We are really excited to tell you about our brand new "Tap to Donate" enamel badges from SMARTPINZ
SMARTPINZ® combines premium enamel craftsmanship with NFC technology, turning physical collectibles into instant digital gateways for content, donations,

*Available to purchase soon!

#endNF2 #NF2

Our team Kim Whitlock, Abigail Owen & Jessica Wiseman had an amazing time at the Cambridge Rare Disease Network (CamRARE) RareSummit26 at the Wellcome Genome Campus on 7th October
They had a packed day of telling everyone about our sponsored NF2 research
#NF2 #NF2Awareness #ENDNF2 #schwannomatosis

Our supporter Helen Bray who lives with NF2 is organising a charity evening with the one & only Dan Patchett as Michael Buble
Where: Otley Social Club, Otley, LS21 2DP
When: Friday 6th November 2026
Get your tickets here ----> www.ticketsource.com/otley-social...
#schwannomatosis
#NF2support #nf2

NADPH oxidase 3 inhibition preserves hearing in mice after stereotactic radiosurgery

#NF2 #schwannomatosis #vestibularschwannoma

www.sciencedirect.com/science/arti...

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing
Learn more at curenf2.org
The impact is very real.
#endNF2 #NF2 #schwannomatosis

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing.
Learn more at curenf2.org.

#endNF2 #NF2 #NF2Schwannomatosis #schwannomatosis

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing.
Learn more at curenf2.org.

#endNF2 #NF2Schwannomatosis #schwannomatosis
#NF2