Have questions about disability protections and #myotonicDystrophy?💚 Join our Ask the Expert webinar with Disability Justice Advocate, Marisa Spain, to learn about self-advocacy strategies and work accommodations. 💬🔗Register at: events.zoom.us/ev/Ahsp1Eq1i...

📣Calling all health professionals! 🩺
#MyotonicDystrophy is more than a muscle disease. Join a masterclass with experts from multiple disciples on DM1. Register at: forms.monday.com/forms/56a711...

🧬 Join MDF on Oct. 13 at 12 PM PT for Understanding Clinical Trials & #MyotonicDystrophy (DM)! Hear from leading DM researchers, including Novartis, and join a live Q&A with Drs. John W. Day & Johanna Hamel! events.zoom.us/ev/Aii-fKAcx...

Antibody deficiency in #MyotonicDystrophy type 1: A differential diagnosis below the radar. New report from Edoardo Galli, Mike Recher and colleagues @biomedizin.unibas.ch @unibas.ch:
rupress.org/jhi/article/...

#InbornErrorsOfImmunity

Dyne Therapeutics shared new one-year ACHIEVE trial data for z-basivarsen (DYNE-101) in #myotonicDystrophy type 1 (DM1), reporting improvements in function, strength, myotonia, and participant-reported symptoms. Read Dyne’s letter to the DM community at: www.dyne-tx.com/new-one-year...

Dyne Therapeutics shared new one-year ACHIEVE trial data for z-basivarsen (DYNE-101) in #myotonicDystrophy type 1 (DM1), reporting improvements in function, strength, myotonia, and participant-reported symptoms. Read Dyne’s letter to the DM community at: www.dyne-tx.com/new-one-year...

In @jhumimmunity.org, Galli, Recher et al. describe two patients w/ hypogammaglobulinemia associated w/ #MyotonicDystrophy type 1 (DM1), a rare and underdiagnosed monogenic neuromuscular disorder & provide clues to aid clinical immunologists in making a correct diagnosis. rupress.org/jhi/article/...

Galli, Recher et al. @unibas.ch describe two patients with hypogammaglobulinemia associated with #MyotonicDystrophy type 1 (DM1), a rare and underdiagnosed monogenic neuromuscular disorder and provide clues to aid clinical immunologists in making a correct diagnosis. rupress.org/jhi/article/...

Do you know how to recognize a potentially predatory #myotonicDystrophy research opportunity? Many opportunities are legitimate, but not all offer the same protections for your privacy, rights, and personal information.​​​​​ Learn more at: myotonic.org/predatory-re...

For International #MyotonicDystrophy Awareness Day, the Zabezhinsky family helped shine a bright light on DM! 💚 Thanks to their efforts, Target Field and downtown Minneapolis glowed green, while DM was spotlit on live TV! www.myotonic.org/internationa...

👉 🔬Join MDF's Meet the #MyotonicDystrophy Drug Developer with Dyne Therapeutics on October 23rd 🧬 for an update on their DM program! 📝 Register to attend & get early access to the recording! 💻https://www.myotonic.org/meet-dm-drug-developers

Dyne Therapeutics has shared a message to the #myotonicDystrophy community reaffirming its commitment to DM1 research and to advancing z-basivarsen (DYNE-101), an investigational therapy currently being evaluated in two ongoing global clinical trials: www.dyne-tx.com/message-to-t...

City St. George's University of London researchers and clinicians went #GreenForDM in honor of International #myotonicDystrophy Awareness Day and hosted an educational event about DM alongside the Myotonic Dystrophy Support Group UK! www.myotonic.org/internationa...

Brookville, Indiana, put International #MyotonicDystrophy Awareness Day on the map! Thank you to Jessica Ison, along with family and friends for spreading awareness! myotonic.org/events/inter...

💚 #MyotonycDystrophyAwarenessDay #GoGreenForDM
The chapel at the heart of @pitiesalpetriere.bsky.social was lightened in green for a special evening thanks to REDs team from @crm-myologie.bsky.social to raise awareness on #MyotonicDystrophy

@afm-telethon.bsky.social @myotonicstrong.bsky.social

Registration is now open for the 2027 MDF Conference in Seattle! Join the #MyotonicDystrophy community April 28-May 2 for research updates, education, connection, wellness, and more. Explore the Community and Professional Tracks and register today: myotonic.org/events/2027-...

Today the Boston City Hall is glowing green for International #MyotonicDystrophy Awareness Day! Thank you to MDF Support Group Facilitator, Jim Dolan, and friends for spreading awareness! www.myotonic.org/internationa...

New proclamation in Massachusetts for International #MyotonicDystrophy Awareness Day! 🎉💚

Thank you to MDF Support Group Facilitator Jim Dolan for making it happen! 🏛️👏 Learn more about Jim's journey to make this happen: www.einpresswire.com/article/9425...

The University of Rochester's research team, including MDF grant recipient, Dr. Johanna Hamel, is going #GreenForDM!💚 📢 Join in the awareness for International #MyotonicDystrophy Awareness Day! Wear green and tag us in your photos! www.myotonic.org/internationa...

New proclamation for town of Amherst to recognize International #MyotonicDystrophy Awareness Day! 💚

Congratulations to Jane Mairs for making it happen! Thank you to Amherst Town Council President, Mandi Jo Hanneke, and Ana Devlin Gauthier, for supporting this initiative! 🏛️👏