Thinking of our stage 4 friends today and those we have lost from this horrible disease. Stage 4 needs more!
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #metastaticawareness #stage4needsmore #metastaticawarenessday #metavivor

Thinking of our stage 4 friends today and those we have lost from this horrible disease. Stage 4 needs more!
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #metastaticawareness #stage4needsmore #metastaticawarenessday #metavivor
“Walter is a 5 year survivor from Choroid Plexus Carcinoma and entering 1st grade. This boy has shown us so many incredible things even on a difficult medical journey.”
~Walter’s Mom~
#lifraumenisyndrome #iamlivinglfs #childhoodcancerawareness #childhoodcancerawarenessmonth #gogoldinseptember
MILI now has 90 participants randomised!
If you have #LiFraumeniSyndrome and are interested in the MILI trial – the Royal Marsden in London is taking out-of-area referrals.
To learn about the MILI trial and LFS, visit mili.octru.ox.ac.uk