@lewybodysociety.bsky.socialWe are calling for a fairer, more consistent process that recognises complex needs, includes condition-specific expertise and gives families support as they navigate assessments.
There is still time to add your name to the petition: action.dementiauk.org/fix-nhs-cont...
@cognition-tx.bsky.socialDid you know that autonomic dysfunction is common is #LewyBodyDementia? In some, autonomic dysfunction can appear years before memory or movement problems. #UnderstandingChangesEverything.
#LewyStrong #ClinicalResearch #Dementia #DementiaCare #DementiaSupport #DYK #LewyBodyAwarenessMonth
@brainsupportnet.bsky.socialPhotographer Joan Sparks shares how getting back into photography provided a safe, creative space while caregiving her husband with LBD.
Watch the full video: www.youtube.com/watch?v=Hlz8...
Copyright: Joan Sparks Photography
@brainsupportnet.bsky.socialWeekend Watch:
Communication matters in Lewy body dementia - The Lewy Body Society
@lewybodysociety.bsky.socialFunding research is the only way we will find better treatments and cures for ALL the different forms of dementia. The Lewy Body Society will continuing raising awareness of Lewy body dementia at this pivotal time to ensure there is hope for EVERY familiy touched by EVERY dementia.
#Lewybodydementia
@brainsupportnet.bsky.socialDid You Know?
Clinical criteria for dementia with Lewy bodies (DLB) was first proposed in 1996. The criteria were revised in 1999 and 2005. This means that many neurologists in practice today never studied this disorder in medical school, if they graduated in 2005 and earlier.
@cognition-tx.bsky.socialOctober is #LewyBodyDementia Awareness Month. Building on last year’s theme of #MorethanMemory, in 2026 we focus on the concept that #UnderstandingChangesEverything.
People living with one LBD - DLB - may not respond well to medication. Understanding, in this case, really does change everything.
@neurologie.bsky.social@brainsupportnet.bsky.socialWhen Should Someone with Lewy Body Dementia Stop Driving?
Driving with Lewy body dementia is dangerous, and it becomes more dangerous as the disease progresses.
Read more at the Lewy Body Dementia Resource Center: lewybodyresourcecenter.org/driving-with...
@foggytld.bsky.socialGood lordt, the wife is in SUCH a MOOD lately.
But when she swears at me and such it's mostly just funny to me because it comes out so clearly, while her speech is usually garbled the rest of the time these days.
Gotta laugh when we can.
@lewybodysociety.bsky.socialWe have a Youtube Channel (search @lewybodysoc) with informative videos about Lewy body dementia, symptoms, treatment and care. They range from this LBS Community of Practice webinar where experts discuss communication in #Lewybodydementia to Youtube Shorts talking to couples facing it together.
@lewybodysociety.bsky.socialThe difficulty in diagnosing Lewy body dementia.
@lewybodysociety.bsky.socialWe know some of you will be disappointed. There are other items in our online shop that can show your support for the Lewy Body Society's work and raise awareness of Lewy body dementia.
Shop for LBS wristbands and pin badges here: www.lewybody.org.uk/shop
@lewybodysociety.bsky.socialAre you a nurse, allied health professional or researcher in our Community of Practice for Lewy body dementia?
Booking is now open for our upcoming webinar.
Topic: Mood disorders in Lewy body dementia
Date: Monday 5th October 2026
Time: 12 pm - 1.30pm
How: Via Teams
@lewybodysociety.bsky.socialWe are hearing stories like this from Polly Parker about her husband who has died of Lewy body dementia, more and more frequently.
Read the Parker family's story. Mike sounds like he was an amazing guy: www.liverpoolecho.co.uk/news/liverpo...
@lewybodysociety.bsky.socialWooohooo!
Big shout out to Team Lewy at the Great North Run today, including our fab four from Doctor Who.
We were cheering you all on from our vantage point on the bridge.
Do we need even more balloons next year?
#Lewybodydementia #GreatNorthRun #DoctorWho #Newcastle @bigfinish.bsky.social
@lewybodysociety.bsky.socialWe are at the Joint Equadem and INTERDEM Taskforce Symposium on Solutions to Dementia Inequalities in Manchester today.
A subject very close to our heart 💙
@lewybodysociety.bsky.socialGood luck to Team Lewy for the Great North Run this weekend.
We will be cheering you on in person, so make sure you look up at the Lovers Lane Bridge about a mile into the race.
You won't be able to miss us, look out for the very onbrand blue spotty balloons!
@lewybodysociety.bsky.socialThis can be very distressing for both the person with Lewy body dementia as well as the person who is believed to be the imposter.
Watch back now: youtu.be/tp5aywyUUAU?...