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@ipopi.bsky.socialOct 10, 2026, 11:57 AM

🎙️ Immunity Pulse is back!

A new two-part episode is here, moderated by Leire Solis.

🎧 Part 1 is out now: open.spotify.com/episode/38o7...

Part 2 will be released on 19 October. 💙🧡

#ImmunityPulse #IPOPI #Podcast #PIDs #UnitedForImmunodeficiencyPatients

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@ipopi.bsky.socialOct 9, 2026, 3:37 PM

✨ The wait is over. The new IPOPI is here. 💙🧡

A new look. A new visual identity. But the same commitment to the immunodeficiency community that has always been at the heart of IPOPI.

#IPOPI #UnitedForImmunodeficiencyPatients #Immunodeficiencies #explore #newlogo

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@ipopi.bsky.socialOct 7, 2026, 9:37 AM

💛 During International Plasma Awareness Week 2026, Dr Cecilia Poli joins IPOPI in highlighting why plasma donation matters — and why every donor is part of a much bigger story.

#IPAW2026 #ItAllStartsWithYou #PlasmaDonation #Plasma #PrimaryImmunodeficiencies #IPOPI

@ipopi.bsky.socialOct 5, 2026, 9:46 AM

A message worth sharing. A song worth listening to. 🎶💛

For #IPAW2026, we are joining forces with Sara Merckx to turn up the volume on plasma awareness.

🎧 Listen to the full song: lnkd.in/eq5ncp5S

#IPOPI #PlasmaDonation #DonatePlasma #PlasmaAwareness #PrimaryImmunodeficiency

@ipopi.bsky.socialOct 2, 2026, 3:04 PM

IPOPI was pleased to join the K-POINT scientific forum in Rome on 29–30 September, bringing together international experts in immunology and hema-oncology to discuss some of the key challenges in PIDs and SIDs.

#IPOPI #KPOINT #PID #SID #Immunology #PatientVoice

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@ipopi.bsky.socialSep 24, 2026, 4:19 PM

📢 Newly published article, “Appraisal of primary immunodeficiencies in Latin America and the Caribbean using the IPOPI PID Life Index – where are we now?”

📖 Read the full article in Frontiers in Immunology: www.frontiersin.org/journals/imm...

#IPOPI #PrimaryImmunodeficiencies

@ipopi.bsky.socialSep 24, 2026, 10:30 AM

Plot twist: IPOPI is getting a glow-up! 💙🧡

A fresh new look is on its way — but the heart of who we are isn’t changing.

Stay tuned. The new IPOPI is coming soon!

#IPOPI #NewLook

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@ipopi.bsky.socialSep 21, 2026, 9:14 AM

Welcome Singapore to the IPOPI community! 💙

Another country joins our growing global network, strengthening the voice of people living with primary immunodeficiencies and bringing our community even closer together.

#IPOPI #PrimaryImmunodeficiencies #PID #Singapore #PatientCommunity #GlobalNetwork

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@ipopi.bsky.socialSep 17, 2026, 9:44 AM

Every patient deserves safe, high-quality care.

On World Patient Safety Day, IPOPI joins the global call to make healthcare safer for everyone.

💙 Safe care. Every patient. Every time.

#WorldPatientSafetyDay #PatientSafety #PatientsFirst #PrimaryImmunodeficiencies #PID #Healthcare #IPOPI

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@ipopi.bsky.socialSep 16, 2026, 10:29 AM

🌍 It was great to bring our National Member Organisations together for another IPOPI NMO Webchat — a space to connect, exchange experiences, share updates and strengthen collaboration across our global community. 💙🧡

#IPOPI #NMO

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@ipopi.bsky.socialSep 9, 2026, 2:10 PM

🌍 How can Europe better address the needs of people living with primary and secondary immunodeficiencies?

🔗 Read the full recommendations: bit.ly/4xgbJgq

#IPOPI #Immunodeficiencies #PrimaryImmunodeficiencies #EUHealth #HealthPolicy #RareDiseases

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