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Grilled Cheese is a product of Village Compute

Version devBuilt at: 2026-10-19 04:14:37 EDT

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@alsnewstoday.bsky.socialOct 12, 2026, 5:33 PM

As her husband Todd’s condition progresses, Kristin describes the difficult balance between grieving experiences they can no longer share and appreciating the moments still ahead: https://bit.ly/3TRiCHA

#HumanSideOfRare #ALSAwareness #ALSCaregiver #ALSNewsToday #Bionews

@angioedemanews.bsky.socialSep 30, 2026, 2:06 PM

#HAE #HereditaryAngioedema #RareDisease #HumanSideOfRare #RareDiseaseAwareness #HAEAwareness #ChronicIllness #PatientAdvocacy #RareCommunity #HAEForum #BioNews #AngioedemaNews

@alsnewstoday.bsky.socialSep 16, 2026, 5:05 PM

Have you ever wondered if a devastating diagnosis could actually change your life for the better?

This week, I was reflecting on a column over at ALS News Today by my Bionews colleague Dagmar Munn - https://bit.ly/4xxJQRp

#HumanSideOfRare #RareDisease #ALS #FriedreichsAtaxia

@mgnews.bsky.socialSep 15, 2026, 5:02 PM

Have you ever thought you understood something about someone, only to realize you were completely wrong?

🔗 Read Shawna’s column - https://bit.ly/4yEsoeQ

#HumanSideOfRare #RareDisease #MyastheniaGravis #MyastheniaGravisNews #Bionews