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@erneurogen.bsky.socialOct 15, 2026, 7:02 PM

๐Ÿงฌ How can fertility be preserved after testicular germ cell tumours?

Join ERN eUROGEN for an expert webinar on fertility in patients with testicular germ cell tumours.

๐Ÿ“… 21 October | 18:00โ€“19:00 CEST
๐Ÿ”— tinyurl.com/eurogen21oct26

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #UroOnc

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@erneurogen.bsky.socialOct 14, 2026, 8:14 AM

How can we improve moving from paediatric to adult urology?

๐Ÿ–ฅ๏ธ 20 Years of Transitional Urology
๐Ÿ‘ฅ Anders Stenbรคck, Felipe Donoso, Gisela Reinfeldt Engberg & Gรถran Lรคckgren
๐Ÿ“… 14 Oct | 18:00 CEST
๐Ÿ”— tinyurl.com/eurogen14oct26

#EUfunded #EU4Health #ERNs @ec.europa.eu @jardinjointaction.bsky.social

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@erneurogen.bsky.socialOct 12, 2026, 4:05 PM

How can we improve moving from paediatric to adult urology?

๐Ÿ–ฅ๏ธ 20 Years of Transitional Urology
๐Ÿ‘ฅ Anders Stenbรคck, Felipe Donoso, Gisela Reinfeldt Engberg & Gรถran Lรคckgren
๐Ÿ“… 14 Oct | 18:00 CEST
๐Ÿ”— tinyurl.com/eurogen14oct26

#EUfunded #EU4Health #ERNs @ec.europa.eu @jardinjointaction.bsky.social

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@erneurogen.bsky.socialOct 10, 2026, 3:01 PM

Rare disease care must include psychological support. We will use these results to inform our guidelines and training, and to help our centres of expertise connect patients with mental health professionals.

Full results: tinyurl.com/eurogenmenta...

#RareDisease #ERNs #EUfunded

@erneurogen.bsky.socialOct 8, 2026, 7:01 PM

How can we improve moving from paediatric to adult urology?

๐Ÿ–ฅ๏ธ 20 Years of Transitional Urology
๐Ÿ‘ฅ Anders Stenbรคck, Felipe Donoso, Gisela Reinfeldt Engberg & Gรถran Lรคckgren
๐Ÿ“… 14 Oct | 18:00 CEST
๐Ÿ”— tinyurl.com/eurogen14oct26

#EUfunded #EU4Health #ERNs @ec.europa.eu @jardinjointaction.bsky.social

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@erneurogen.bsky.socialOct 8, 2026, 7:26 AM

16 patient advocates & clinicians from 10 #ERNs met in Nijmegen (30 Sepโ€“1 Oct) to prioritise prompts for Rare PREPARE, a Question Prompt List to help people prepare for specialist consultations in rare/complex conditions.

Next: refining the list and its wording, with a full report in preparation.

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@erneurogen.bsky.socialOct 7, 2026, 8:14 AM

๐Ÿšจ TONIGHT! Join our ERN eUROGEN Webinar: "Risks in Pregnancy after CAKUT"

๐Ÿ‘ฅ Birgit Pfaller & Christa Gernhold
๐Ÿ“… 7 Oct | 18:00 CEST
๐Ÿ”— Register: tinyurl.com/eurogen07oct26

#EUfunded #EU4Health #ERNs @ec.europa.eu @jardinjointaction.bsky.social
@espu.bsky.social @eupsaofficial.bsky.social

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@erneurogen.bsky.socialOct 5, 2026, 4:01 PM

Join our ERN eUROGEN Webinar: "Risks in Pregnancy after CAKUT"

๐Ÿ‘ฅ Birgit Pfaller & Christa Gernhold
๐Ÿ“… 7 Oct | 18:00 CEST
๐Ÿ”— Register: tinyurl.com/eurogen07oct26

#EUfunded #EU4Health #ERNs @ec.europa.eu @jardinjointaction.bsky.social
@espu.bsky.social @eupsaofficial.bsky.social

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@erneurogen.bsky.socialOct 1, 2026, 7:02 PM

Join our ERN eUROGEN Webinar: "Risks in Pregnancy after CAKUT"

๐Ÿ‘ฅ Birgit Pfaller & Christa Gernhold
๐Ÿ“… 7 Oct | 18:00 CEST
๐Ÿ”— Register: tinyurl.com/eurogen07oct26

#EUfunded #EU4Health #ERNs @ec.europa.eu @jardinjointaction.bsky.social
@espu.bsky.social @eupsaofficial.bsky.social

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@erneurogen.bsky.socialSep 30, 2026, 8:14 AM

#EUfunded #RareDisease #ERNs #PedUro #SoMe4PedSurg @ec.europa.eu @jardinjointaction.bsky.social @espu.bsky.social

@erneurogen.bsky.socialSep 28, 2026, 4:02 PM

#EUfunded #RareDisease #ERNs #PedUro #SoMe4PedSurg @ec.europa.eu @jardinjointaction.bsky.social @espu.bsky.social

@erneurogen.bsky.socialSep 24, 2026, 7:01 PM

#EUfunded #RareDisease #ERNs #PedUro #SoMe4PedSurg @ec.europa.eu @jardinjointaction.bsky.social @espu.bsky.social

@erneurogen.bsky.socialSep 23, 2026, 8:14 AM

๐Ÿ”Ž Could ultrasound reduce the need for radiation when monitoring bowel management? Join our webinar on clinician USS in children with colorectal conditions.

๐Ÿ“… 23 Sept | 18:00โ€“19:00 CEST

๐Ÿ‘‰ tinyurl.com/eurogen23sep26

#EUfunded #RareDisease #ERNs #PedUro #SoMe4PedSurg

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@erneurogen.bsky.socialSep 21, 2026, 4:03 PM

๐Ÿ”Ž Could ultrasound reduce the need for radiation when monitoring bowel management? Join our webinar on clinician USS in children with colorectal conditions.

๐Ÿ“… 23 Sept | 18:00โ€“19:00 CEST

๐Ÿ‘‰ tinyurl.com/eurogen23sep26

#EUfunded #RareDisease #ERNs #PedUro #SoMe4PedSurg

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@realised-ihi.bsky.socialSep 21, 2026, 7:00 AM

๐Ÿ” Did you know that six European Reference Networks (ERNs) are helping shape the future of rare disease clinical trials through RealiseD?

๐Ÿ” Learn more about ERNs and their role in the project: https://loom.ly/8uvU3Ms

#RealiseD #RareDiseases #ERNs #ClinicalTrials #HealthInnovation

@erneurogen.bsky.socialSep 18, 2026, 7:01 PM

๐Ÿ”Ž Could ultrasound reduce the need for radiation when monitoring bowel management? Join our webinar on clinician USS in children with colorectal conditions.

๐Ÿ“… 23 Sept | 18:00โ€“19:00 CEST

๐Ÿ‘‰ tinyurl.com/eurogen23sep26

#EUfunded #RareDisease #ERNs #PedUro #SoMe4PedSurg

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@erneurogen.bsky.socialSep 16, 2026, 6:01 AM

๐Ÿšจ TONIGHT! ๐Ÿ”ต Preventing UTIs in neurogenic bladder: webinar with Josรฉ Medina-Polo exploring the evidence on optimal UTI prevention, incl non-antibiotic approaches.

๐Ÿ“… 16 Sept ๐Ÿ•• 18:00 CEST
๐ŸŽ“ EACCME accredited
๐Ÿ”— tinyurl.com/eurogen16sep26

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #Urology

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@hlm4rare.bsky.socialSep 15, 2026, 9:53 AM

#HLM4Rare, led by the #ERNs, envisages a Europe where every person living with or at risk of having a rare and complex disease has access to timely diagnosis, world-class expertise, innovative treatments and high-quality care, regardless of where they live.

๐Ÿ‘‰ Follow our journey: www.hlm4rare.eu

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@erneurogen.bsky.socialSep 14, 2026, 4:03 PM

๐Ÿ”ต Preventing UTIs in neurogenic bladder: join our webinar with Josรฉ Medina-Polo to explore the evidence on optimal UTI prevention, incl non-antibiotic approaches.

๐Ÿ“… 16 Sept ๐Ÿ•• 18:00 CEST
๐ŸŽ“ EACCME accredited
๐Ÿ”— tinyurl.com/eurogen16sep26

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #Urology

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@erneurogen.bsky.socialSep 10, 2026, 8:14 AM

๐Ÿ‡บ๐Ÿ‡ฆ ะกะตั€ั–ั ะฒะตะฑั–ะฝะฐั€ั–ะฒ ะท ะดะธั‚ัั‡ะพั— ัƒั€ะพะปะพะณั–ั— ะดะปั ะฃะบั€ะฐั—ะฝะธ: ะ ั–ะดะบั–ัะฝั– ัƒั€ะพะปะพะณั–ั‡ะฝั– ะบะฐะผะตะฝั–
๐Ÿ—“ 10 ะฒะตั€ะตัะฝั
๐Ÿ•• 18:00 CEST / 19:00 EEST
๐ŸŽ™ ะ”ะพะบั‚ะพั€ ะะฝะฝะฐ ะ‘ัƒะนะพะฝั ะขัƒั€
๐Ÿ”— tinyurl.com/eurogen10sep26

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

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