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@cfscounselling.bsky.socialOct 16, 2026, 2:01 PM

Everyone deserves safety. We wear purple on #DressPurpleDay to raise awareness of child safety and vulnerable children, and to build safer spaces for them. #CFS' youth workers are #HereToHelp. learn more at https://cfssc.ca/get-help/youth-services #youthCALL #HopeLivesHere

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@irishmecfsassoc.bsky.socialOct 16, 2026, 11:10 AM

One week to go
#MEcfs #PwME #LongCovid #CFS

IIrish ME/CFS Association@irishmecfsassoc.bsky.socialOct 8, 2026, 6:36 PM

Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon.bsky.social on Friday, October 23 Hopefully we’ll see some of you there irishmecfs.org/blog/friday-... Carers/parents/similar welcome. #MEcfs #LongCovid #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Informal ME/CFS social meet up in Dublin 2:30 PM-4 PM, Friday, October 23 The Bell Bar & Restaurant, Dublin 15, D15 EW77 https://www.thebell.ie All welcome incl. relatives & people with long Covid Buy your own food +/or drink Register for any updates (in case cancelled - hasn't happened so far): tomkindlon@irishmecfs.org Host: Tom Kindlon Irish ME/CFS Association for Information. Support & Research logo
@bigjackbrass.social.vivaldi.net.ap.brid.gyOct 16, 2026, 8:56 AM

“For Dobbin it all started with back-to-back Covid and glandular fever infections in the winter of 2021-22. She had not been unwell with either, only discovering she had contracted both through retrospective tests.”

https://www.bbc.co.uk/sport/athletics/articles/crd6dj26v4e4o

#ME #CFS #Covid

@alexkanefsky.bsky.socialOct 16, 2026, 7:43 AM

My heart breaks for this young woman, her story feels so familiar to me. Huge respect to her for speaking out, especially providing a counter narrative to the deluge of bullshit information about sickness and disability in the UK #ME #CFS

www.bbc.co.uk/sport/athlet...

@nanobookreview.zirk.us.ap.brid.gyOct 16, 2026, 4:28 AM

CFS post crash flu symptoms are weirdly comfortable when you're into it. I'm so *heavy.* I'm not happy about crashing and getting worse, but this moment isn't so bad.

#cfs #disability #illness #perspective

@tomkindlon.bsky.socialOct 16, 2026, 12:59 AM

"My Reasonable Adjustment for Work and Education Plan: Guidance for Employers / Tutors" (5 pages)

suffolkfed.org.uk/wp-content/u...

#MEcfs #LongCovid #PwME #CFS #MyalgicEncephalomyelitis

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My Reasonable Adjustment for Work and Education Plan Guidance for Employers / Tutors 1. A Guide to the Reasonable Adjustment for Work and Education Plan This Reasonable Adjustment for Work and Education Plan is a personalised, practical tool designed to foster a supportive and productive partnership between an individual managing Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) or Long Covid, and their employer or educational institution. This document aims to facilitate open, constructive dialogue about what helps the individual stay well, what might cause their symptoms to worsen, and what support can be put in place to enable them to thrive. The purpose of this plan is not to present a list of demands, but to create a shared understanding. It is a proactive tool that empowers the individual to articulate their needs and self-management strategies, while enabling managers, HR representatives, and educators to provide effective, reasonable support. By working together, it is possible to create an environment where a valued employee or student can continue to contribute their unique skills and talents, maintaining both their wellbeing and their productivity. It is crucial to recognize that ME/CFS and Long Covid are fluctuating diseases. An individual's capacity and support needs can change from day to day or week to week. Therefore, this reasonable adjustment plan should be treated as a living document. It provides a solid foundation for an initial conversation and agreement, but it should be reviewed regularly—for example, on a quarterly basis—to ensure it remains relevant and continues to meet the needs of both the individual and the organisation. Finally, this plan is a personal and confidential document. The individual who completes it owns the information within. It should only be shared with their express permission and handled with the same level of confidentiality as any other sensitive health information, such as an Occ…
@tomkindlon.bsky.socialOct 16, 2026, 12:32 AM

"The medical establishment is not merely passively neglectful toward people with ME/CFS. It is actively vindictive: A medical textbook doubles down on misinformation and stigma" by K. Johnstone

mecfs.substack.com/p/the-medica...

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

The medical establishment is not merely passively neglectful toward people with ME/CFS. It is actively vindictive. A medical textbook doubles down on misinformation and stigma K. Johnstone Oct 09, 2026 An important and widely used medical textbook, Kumar and Clark’s Clinical Medicine has been repeatedly criticized for presenting out-dated and harmful misinformation about ME/CFS. There was a petition asking for the textbook to be updated. Now the new version is out - and it’s worse than ever. ME/CFS is wrongly presented as a psychological illness. Patients living with severe chronic illness are slandered as delusional people who merely ‘believe’ that they are physically ill. The ‘information’ about ME/CFS in the textbook is at this point so far from the current medical and scientific consensus that it can no longer be viewed as merely biased or unbalanced. It’s worse than that. It is prejudiced, malicious, and hateful. The choice to include this misinformation constitutes a deliberate act of harm toward people with ME/CFS. It is slander toward an entire group of seriously ill patients, and I look forward to the day when those responsible are held to account.
@cfscounselling.bsky.socialOct 15, 2026, 9:00 PM

Haven't heard of #LivingWage? It means that #CFS has committed to paying their employees an hourly wage that lets employees make ends meet in Simcoe County! Wanna find out more about us and the position? Visit https://tinyurl.com/y26xu958 #HopeLivesHere

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@cfscounselling.bsky.socialOct 15, 2026, 7:00 PM

Losing a child is a devastating reality that 4 in 1,000 new parents experience. This #PregnancyandInfantLoss Day - and every day, we support those impacted by such tragedy through counselling. #ready2talk? https://cfssc.ca/get-help/counselling/ #CFS #HopeLivesHere

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@bennevis.bsky.socialOct 15, 2026, 12:37 PM

🕊️

#CFS is the Putin of Healthcare #NLP
What harm has Russia ever inflicted upon @georgemonbiot.bsky.social 🤔

"The Language of Healthcare 2009"
www.pnhp.org/news/2009/ma...

Global Language Dictionary – The Israel Project 2009
www.transcend.org/tms/2014/08/...
Luntz
www.youtube.com/watch?v=XJ-n...

@stefanielily.bsky.socialOct 15, 2026, 2:18 AM

Warning label on how unhealthy it is. After 5pm it's hard to find fresh food at the grocery store. I guess what Im saying is, if you are sick, someone with ME where Drs just gave up on my treatments, go do the scary thing. It'll be worth it and will surprise you.

#ME
#CFS
#Livingchronicallyill

@tomkindlon.bsky.socialOct 15, 2026, 12:32 AM

Jarred Younger PhD on the brain in ME/CFS, fibromyalgia and long COVID

www.youtube.com/watch?v=oj6M...

Screenshot from AMMES October 2026 newsletter

#MEcfs #LongCovid #PwME #CFS #Fibromyalgia

Screenshot of a video interview with Jarred Younger PhD with the following text Jarred Younger PhD on the brain in ME/CFS, fibromyalgia and long COVID The founder of the Neuroimmune, Pain and Fatigue Lab at UAB talks on measuring energy levels in the brain, what may be the brain hub for ME/CFS, FM and long COVID, why the fatigue and pain in these diseases has a brain origin, the biggest disappointment in his academic career, and more.
@tomkindlon.bsky.socialOct 15, 2026, 12:26 AM

Gut Microbiome and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Insights into Disease Mechanisms

pmc.ncbi.nlm.nih.gov/articles/PMC...

Screenshot from AMMES October 2026 newsletter

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Image of someone's lower torso with a gut outline with the following text Gut Microbiome and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Insights into Disease Mechanisms It is hypothesized that specific disturbances in gut microbiome composition, known as dysbiosis, may compromise the integrity of the intestinal barrier. This consequently leads to translocation of microbial components, which further triggers an immune response and systemic inflammation complicating the clinical presentation of ME/CFS. Furthermore, in terms of the so-called gut–brain axis, microbiome changes may lead to distinct neurocognitive impairments observed in ME/CFS patients. Read more here>>
@cfscounselling.bsky.socialOct 14, 2026, 11:00 PM

#CFS is #HiringNow! Are you a registered psychotherapist or social worker interested in supporting youth in Midland? Check out this opportunity! Apply now at https://tinyurl.com/y26xu958 #HopeLivesHere

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@tomkindlon.bsky.socialOct 14, 2026, 9:03 PM

Given all talk re: Post Exertional Malaise/Post Exertional Symptom Exacerbation in #LongCovid:

Here is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome

Also shows all the range of ME/#CFS symptoms

#MECFS
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Table 4. Symptoms made worse due to physical or cognitive exertion (N = 1534). % (n) "Yes" % (n) at "2" Threshold 99.4 (1525) 98.0 (1504) 98.9 (1517) 98.3 (1508) Items 1. Reduced stamina and/or functional capacity 2. Physical fatigue 3. Cognitive exhaustion 4. Problems thinking 5. Unrefreshing sleep 6. Muscle pain 7. Insomnia 8. Muscle weakness/instability 9. Temperature dysregulation 10. Flu-like symptoms 11. Aches all over your body 12. Physically fatigued while mentally wired 13. Dizziness 14. Gastro-intestinal problems 15. Headaches 16. Ataxia 17. Increased heart rate/heart palpitations 18. Weak or stiff neck 19. Joint pain 20. Problems with speech 21. Sore throats 22. Muscle twitching 23. Night sweats and chills 24. Sore eyes 25. Nerve pain 26. Sore lymph nodes 27. Nausea 28. Tinnitus 29. Trouble breathing 30. Neurological symptoms 31. Excessive sleep 32. Loss of appetite 33. Migraines 34. Cardiac pain and/or arrhythmia 35. Brain twangs 36. Severe burning sensation all over skin 37. Paralysis/inability to move 38. Premenstrual symptoms 39. Decreased heart rate Sav
@cfscounselling.bsky.socialOct 14, 2026, 8:36 PM

Not sure where to start with building good habits? #CFS has the blueprints! Every week, CFS opens its #WalkInWednesdays counselling clinic in Barrie with no-cost professional counselling. Are you #ready2talk? #HopeLivesHere

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@tomkindlon.bsky.socialOct 14, 2026, 12:25 AM

Recording of & notes for MassME: Sunday Conversations – September 2026 “Insights & Inspiration from Support Group Leaders”

Screenshot from @massmecfs.bsky.social Oct newsletter

youtu.be/1H8chnKirvw

massmecfs.org/events/sunda...

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Recording Available for September Sunday Conversations Massachusetts ME/CFS & FM Association Sunday Conversations Sunday, September 20, 2026 4:00-5:00pm ET REC Insights and Inspiration from Support Group Leaders The Power of Shared Experience WATCH NOW MassME Click Here for Meeting Resources and Links
@trishaelliott.bsky.socialOct 13, 2026, 11:24 AM

A patient’s perspective in the @bmj.com.

Being told that your tests are all normal isn’t always the reassuring message that the doctor hoped it would be.

Please listen to people! Their experiences are valid even if the tests are negative.

Link:
www.bmj.com/content/395/...

#MedSky
#CFS
#Fatigue

Article on fatigue. Picture of person climbing stairs dragging a rope. Text starts: What are the next steps for my severe fatigue? By acknowledging the impact of unexplained symptoms, healthcare professionals can support patients to move forward, writes Beibei Wang
@2covet.bsky.socialOct 13, 2026, 10:16 AM

While it's good to have this evidence, it would be even better if GPs and Specialists took note and parked their gender bias in some old out of the way garage then threw away they key. #CFS/ME/LongCOVID #Arthristis #ImmuneDiseases #Thyroid #Lupus #ParaThyroid

www.theguardian.com/society/2026...

@danielglenn.bsky.socialOct 12, 2026, 11:52 PM

🚨 Send in your sessions! #Knoxville Microsoft Community Day will be amazing: https://sessionize.com/2027-knoxville-microsoft-community-day/
——
#cfs #cfp #microsoft365 #powerplatform #data #azure