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Grilled Cheese is a product of Village Compute

Version devBuilt at: 2026-10-16 08:00:47 EDT

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@emilydrake.caOct 14, 2026, 1:20 AM

So happy that you could make it!! #AYACSM

@warriormegsie.bsky.socialOct 14, 2026, 1:15 AM

Hey Tambre! Good to see you here. Sadly, too many have missed out on a valuable resource mainly due to the name. The way it should be presented to the #AYAcancer and general cancer community matters should be simplified. That doesn’t diminish the support it can provide. #ayacsm

@warriormegsie.bsky.socialOct 14, 2026, 1:09 AM

Glad I was able to make it in time to join in some of the conversation. Hugs y’all - @emilydrake.ca #ayacsm

@warriormegsie.bsky.socialOct 14, 2026, 1:04 AM

I definitely agree with this. How many apps and gadgets do AYA patients need? What happens when we age out? That should be a focus for innovation because we’re dx younger and surviving longer all while dealing with issues from our dx age. #ayacsm

@emilydrake.caOct 14, 2026, 1:02 AM

Thank you to everyone who joined in on the conversation. Your time, posts and comments are appreciated and important!

We are looking for guest moderators for 2026 – please let me know if you are interested!

Mark your calendars! Please tune in Tuesday, November 10 @ 8PM ET for next #AYACSM chat!

@warriormegsie.bsky.socialOct 14, 2026, 12:56 AM

I disagree because the name as is doesn’t resonate with the community. Why keep pushing something that most don’t understand or scared to understand? I think the research and medical community forget that patients need clear language because we’re just trying to survive. #ayacsm

@emilydrake.caOct 14, 2026, 12:55 AM

Agree! Diversity needs to be at the heart of research, innovation, and care. #AYACSM

@warriormegsie.bsky.socialOct 14, 2026, 12:53 AM

A4: We definitely need more action & access for the AYA gyn community. We can’t have innovation without diversity. How can we take action when the decision-makers are mostly ⚪️ and not bringing minoritized communities to the table. I’m tired of being the ONLY Black person in too many rooms. #ayacsm

@emilydrake.caOct 14, 2026, 12:51 AM

Some argue that naming the same thing something else doesn't change the issues/connotation it has but rather we should demistify what palliative care actually means. What do you think? #AYACSM

@emilydrake.caOct 14, 2026, 12:46 AM

Q4: What are the next steps for #AYACancer innovation? #AYACSM

#GYNCSM #ONCOLOGY #CANCERRESEARCH #TYACANCER #BTSM #BCSM #LCSM

@warriormegsie.bsky.socialOct 14, 2026, 12:45 AM

We need to change the name #palliativecare to #supportivecare. I was in palliative care for 2 years due to excruciating pain and complications post-cancer. That term palliative care didn’t resonate then or now. #ayacsm

@warriormegsie.bsky.socialOct 14, 2026, 12:43 AM

I need another me for ME!!! #ayacsm

@emilydrake.caOct 14, 2026, 12:42 AM

I agree!! The re-building of the chat has been slow (maybe that should be the focus of November's chat - which we will move timing wise due to the #midterms), but it has fostered a very real community and real connections #AYACSM

@darcyburbage.bsky.socialOct 14, 2026, 12:40 AM

Q3: #AYACSM Absolutely! Social media has/is extremely helpful in innovation ! Case in point - the chats! We learn so much from each other! And the connections/conversations can spark that innovation to a wider audience & new ideas!

@warriormegsie.bsky.socialOct 14, 2026, 12:40 AM

#ayacsm forgot to add the hashtag

@emilydrake.caOct 14, 2026, 12:40 AM

Welcome!! So happy you could come!! Sounds like a long day #AYACSM

@warriormegsie.bsky.socialOct 14, 2026, 12:37 AM

I’m here!!! Caregiver duty this afternoon and driving what feels like a million hours and just got home. Utterly fatigued. #AYACSM #caregiver

@emilydrake.caOct 14, 2026, 12:36 AM

Q3: Does social media have a role in helping organizations and HCPs be more innovative? How? #AYACSM

#OncSky #HCSMCA #HCSM #LCSM #AMSM #BTSM #BCSM #GYNCSM

@emilydrake.caOct 14, 2026, 12:34 AM

Such an important point! Thank you for sharing that!! Maybe schedule AYAs on the same day so that they see each other in clinic and can build community + connection #AYACSM

@darcyburbage.bsky.socialOct 14, 2026, 12:33 AM

Q2: #AYACSM I think we’re always looking for the big things (new tech or digital tools) but I’ve found paying attention to the details can be just as innovative! An easier way to structure/schedule appts can be just as innovative if they help improve patient experience

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