Take a closer look: https://bit.ly/3VRu5Ye
Columnist Danita LaShelle Jones shares how her parents subconsciously influenced her own caregiving, decision-making, and responses to fear.
@angioedemanews.bsky.social
@angioedemanews.bsky.socialTake a closer look: https://bit.ly/3VRu5Ye
Columnist Danita LaShelle Jones shares how her parents subconsciously influenced her own caregiving, decision-making, and responses to fear.
@angioedemanews.bsky.socialDiscover the latest approved treatments for angioedema: https://bit.ly/4mCCnvR
#Angioedema #HAE #RareDisease #TreatmentOptions #HealthCare #AngioedemaNews #Bionews
@angioedemanews.bsky.socialGet the scoop: https://bit.ly/4jipsAa
Columnist Hollie Amadio often writes about "speaking loud." But during a recent hospitalization, she found herself unable to self-advocate.
@angioedemanews.bsky.socialDiscover more: https://bit.ly/4hYJBJ1
A man with influenza A developed angioedema after taking an antiviral while also being treated with an ACE inhibitor, per a case report.
@allermd.bsky.social#Lonvoguran #Ziclumeran - In Vivo #CRISPR #Gene #Editing in #Hereditary #Angioedema. NEJM. ivancevichmd.blogspo...
@allermd.bsky.social#Lonvoguran #Ziclumeran in #Hereditary #Angioedema | #NEJM Quick Take. www.nejm.org/do/10.1...
@angioedemanews.bsky.socialFollow Hollie's journey: https://bit.ly/4lDaF0K
At 17, she began a nine-year search for answers about her health.
#HAEDiagnosis #HAE #Angioedema #AngioedemaNews #Bionews
@angioedemanews.bsky.socialTaking control of HAE starts at home: https://bit.ly/4ns2bLx
With the right training, self-injecting your medication means faster relief, fewer ER trips, and more confidence in managing attacks.
#Angioedema #HAE #HAETreatment #SelfInjection #ChronicIllness #RareDisease #AngioedemaNews #Bionews
@angioedemanews.bsky.socialDiscover Danita's story: https://bit.ly/3TPuuGb
Great caregivers aren’t defined by gender. They’re defined by compassion, patience, and a willingness to show up, especially during tough times.
#Angioedema #AngioedemaCaregiver #ChronicIllness #HAE #RareDisease #AngioedemaNews #Bionews
@angioedemanews.bsky.socialDiscover more: https://bit.ly/4AXb2M5
An international survey found mild HAE attacks sometimes go untreated, while preventive doses were missed, highlighting gaps in treatment.
@angioedemanews.bsky.socialDive into Liana's story: https://bit.ly/4lCJK5p
Liana Meffert opens up about how adjusting her eating habits has helped her manage hereditary angioedema (HAE) and other diagnoses.
#HAE #ChronicIllness #Angioedema #RareDisease #AngioedemaNews #Bionews
@angioedemanews.bsky.socialStay in the know—and never miss an update! https://bit.ly/3FHecMk
Sign up for the weekly newsletter, because knowledge is power, and you’re not alone!
#Angioedema #HAE #PatientSupport #Newsletter #RareDisease #AngioedemaNews #Bionews
@angioedemanews.bsky.socialGet tips on managing HAE Attacks: https://bit.ly/4lsCiJS
HAE is more than just swelling. Many people also face symptoms like nausea, fatigue, tingling, headaches, and even mood changes.
#Angioedema #HAE #RareDisease #HAESymptoms #InvisibleIllness #HAEPatientSupport #AngioedemaNews #Bionews
@angioedemanews.bsky.socialGet the full story: https://bit.ly/45ReGtU
Advocacy is a family legacy for Arabel, who grew up watching her mom fight for HAE awareness—and now uses her own story to inspire change.
#Angioedema #HAE #AngioedemaAwareness #AngioedemaNews #Bionews
@angioedemanews.bsky.socialDiscover more: https://bit.ly/4env73h
Besides swelling, HAE can bring fatigue, tingling, rashes, stomach pain, mood changes, and more. Every journey is different.
#Angioedema #HAE #HAESymptoms #HereditaryAngioedema #AngioedemaNews #Bionews
@angioedemanews.bsky.socialDiscover how to navigate intimacy and angioedema: https://bit.ly/43DYuLc
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
@angioedemanews.bsky.socialDiscover more: https://bit.ly/4hOw7zF
A real-world analysis found preventive treatment helped some HAE patients go a year without treated attacks, but most needed on-demand meds.
@angioedemanews.bsky.socialTake a moment today to recognize your progress: https://bit.ly/4kUuC33
It’s easy to get caught up in “what ifs” about the future, but don’t forget to celebrate how far you’ve come.
#Angioedema #HAE #ChronicIllness #CaregiverLife #ProgressNotPerfection #RareDisease #AngioedemaNews #Bionews
@angioedemanews.bsky.socialTake a closer look: https://bit.ly/471TqB9
As columnist Natalie Sirota awaits the FDA's decision on a gene-editing therapy for HAE, she feels both excited and concerned.
@angioedemanews.bsky.socialAntihistamines don’t always keep these symptoms in check, so new options matter.
#HAE #HereditaryAngioedema #ChronicSpontaneousUrticaria #Angioedema #Hives #Urticaria #ClinicalTrials #HAEAwareness #RareDisease #ChronicIllnessCommunity #InvisibleIllness #PatientAdvocacy #BioNews #AngioedemaNews