Another major event for the campaign #ACCESSOMAVNOW with over 100,000 signatures! petition.parliament.uk/petitions/76...
Yesterday the #Friedreichataxia community gathered and Brogan's family delivered the letter to Downing street!
www.ataxia.org.uk/accessomavnow/
www.facebook.com/profile.php?...

We care for people living with Friedreich ataxia (FA) in our clinic. There is urgent need for these people to access a treatment approved for FA in the UK. They need your help! Thank you.
www.ataxia.org.uk/accessomavnow/
petition.parliament.uk/petitions/76...
#AccessOmavNow
#FriedreichsAtaxia