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@tomkindlon.bsky.socialOct 11, 2026, 12:20 AM

Does Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Represent a Poly-Herpesvirus Post-Virus Infectious Disease?

www.mdpi.com/1999-4915/17...

Screenshot from AMMES October 2026 newsletter

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Image of a virus with the following text Does Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Represent a Poly-Herpesvirus Post-Virus Infectious Disease? In over half of cases, ME/CFS onset is associated with acute “flu-like” symptoms, suggesting a role for viruses. However, no single virus has been identified as the only etiological agent. This may reflect the approach employed or more strongly the central dogma associated with herpesviruses replication, which states that a herpesvirus exists in two states, either lytic or latent. The purpose of this review is to address the role that abortive lytic replication may have in the pathogenesis of ME/CFS and other post-acute viral infections and also to raise awareness that these syndromes might be poly-herpesviruses mediated diseases. Read more here>>
@tomkindlon.bsky.socialOct 11, 2026, 12:13 AM

"Liaison psychiatry" by K. Johnstone
@kjohnstone.bsky.social

mecfs.substack.com/p/liaison-ps...

Screenshot from AMMES October 2026 newsletter

#MEcfs #chronicillness #hiddenillness #invisibleillness #PwME

Photo of Sigmund Freud with the following text Liaison psychiatry All medical gaslighting is potentially harmful, but the gaslighting that occurs in hospital can be the most damaging, since it happens at a time when the patient is particularly vulnerable. I’ve learned that hospitals employ psychiatrists whose specific job (or a large part of it) is to say that biomedical illness is, in fact, psychosomatic. They’re called “liaison psychiatrists” in the UK, and “consultation-liaison psychiatrists” in the US. Read more here>>
@tomkindlon.bsky.socialOct 10, 2026, 11:38 PM

3/

A screenshot of most of page 2 from British Psychological Society ME/CFS Guidelines (September 2026 Update)

meassociation.org.uk/wp-content/u...

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis @drjogreer.bsky.social

Last time, we introduced you to some of the team working on the guidelines. Dr Jo Greer is a Chartered Educational Psychologist and another of our amazing volunteers. She is also a carer for her daughter, who has very severe ME. Here Jo shares her experience: Following COVID Pneumonia in 2021, my teenage daughter (previously fit and well) suddenly became very ill. She has a diagnosis of very severe ME and is one of the estimated 25% of people with ME/CFS who are categorised as ‘severe’ or ‘very severe’. Her dad and I are currently her full-time carers. Despite my professional background and experience of multi-disciplinary working, nothing had prepared me for trying to secure support as a parent for my own daughter who was suddenly so unwell and yet faced a system with no treatments, no pathway, and a dangerous lack of awareness of ME/CFS among professionals. I soon learned that our experience as a family was far from unique. In 2024 I launched The Red Tree and ME: www.theredtreeandme.com. It brings together lived experience and artistic expression to raise awareness and support for the research led by Professor Chris Ponting at the University of Edinburgh, which ultimately aims to find effective treatments and a cure. As an Educational Psychologist with lived experience as a carer for a young person with very severe ME, I know I have a somewhat unique vantage point. I was really pleased to be invited to join the writing group for the British Psychological Society ME/CFS Guidelines for Psychologists, especially contributing to sections relating to children and young people. For too long, people with ME/CFS have faced misunderstanding and minimisation. Misinterpretation of physical symptoms has often led to inappropriate treatments, pressure to increase activity, and physical and emotional harm. Clear, evidence informed guidelines for professionals will help prevent this. I believe the ME/CFS Guidelines for Psychologists are an important step towards creating meaning…
@tomkindlon.bsky.socialOct 10, 2026, 9:03 PM

2/

Extract from British Psychological Society ME/CFS Guidelines (September 2026 Update)

meassociation.org.uk/wp-content/u...

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis

Psychology won’t help everyone Not everyone with ME/CFS will benefit from seeing a psychologist. Some people do not need psychological support, already have support, want or need to prioritise practical or medical help, or are not well enough to participate in therapy. For some, therapy itself can worsen symptoms because of the physical exertion of attending, the cognitive effort of talking and processing information, or the emotional exertion of discussing difficult experiences.
@emergeaustralia.bsky.socialOct 10, 2026, 9:00 PM

💙 This #CarersWeek, we recognise the often unseen role of carers supporting people with #MECFS, #longCOVID & other energy-limiting conditions.

Caring can be complex, isolating & demanding.

To all carers: we see you & thank you.

Resources: zurl.co/zHmyD

Emerge Australia graphic for National Carers Week, 11–17 October 2026, featuring a smiling woman in a blue top sitting on a couch. Text reads: “Care for a Carer: Making Carers Visible.” Includes the National Carers Week logo, website carersweek.com.au and Emerge Australia logo.
@chronicloaf.bsky.socialOct 10, 2026, 6:54 PM

#NoGoodDeed, starring Idris Elba and Taraji P. Henson, just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#Criptober #spookyseason #ForTinu #horror #FilmDis #ChronicPain #longcovid #mecfs #disability #AuADHD

No Good Deed movie poster
@sabinehermisson.bsky.socialOct 10, 2026, 6:38 PM

Auf einem anderen Blatt steht, dass das @bmasgpkaut.bsky.social noch immer verabsäumt hat, eine Einschätzungsverordnung für den GdB für #MECFS zu erarbeiten.
Aber auch das ist alleine die Verantwortung des Sozialministeriums.

@laurajmg.bsky.socialOct 10, 2026, 5:33 PM

A post about me and my ME. #ME #pwME #CFS #MEcfs #MillionsMissing

@laurajmg.bsky.socialOct 10, 2026, 5:30 PM

I need to stop. Here's a quick to-do list, if you want to help.
1. Spread survivors' stories. Listen and learn. Check out hashtags like #pwme #MEcfs #ME #LongCovid for patients' stories and medical updates.

@chronicloaf.bsky.socialOct 10, 2026, 3:43 PM

Time for our Daily Dose of Joy!

#TheJoyofPaintingwithBobRoss is playing in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#Criptober #Art #OctoberArtChallenge #DisabilityCommunity #neisvoid #mecfs #ChronicPain #FuckBRI

@sabinehermisson.bsky.socialOct 10, 2026, 3:35 PM

Immerhin: Der Skandal um die abwertenden Passagen im #MECFS-Kapitel von Kupferschmitt/Köllner und die bizarren Versuche, sie nachträglich „wegzuerklären“, zeigen: Abwertung von #MECFS-Betroffenen geht heute in der Medizin nicht mehr gänzlich ungeniert. Ein Anfang.

Rechtfertigungserklärung von Köllner auf LinkedIn.
@stpaulsbay.bsky.socialOct 10, 2026, 3:06 PM

The cortisol their body needs to create energy and resolve brain fog is being actively stolen inside the cell—leaving it completely invisible to existing lab tests. www.beyondbloodtests.org
#MECFS

@stpaulsbay.bsky.socialOct 10, 2026, 3:05 PM

Millions of #pwME will spend this weekend trapped in a body weighed down with exhaustion. They are victims of a medical system that is blind to intracellular biophysics.
#MECFS #rs5522 #NEISVOID

@kimvr.bsky.socialOct 10, 2026, 2:51 PM

Remember........no matter how much it hurts right now, one day you'll look back and realize it made you stronger. #recovered #anxiety #eatingdisorder #NeverGiveUp #AlwaysKeepFighting #fibromyalgia #MECFS #Erythromelalgia

@pehpunkt.bsky.socialOct 10, 2026, 1:28 PM

in der psychosomatik ist man sich noch uneinig, ob man me/cfs betroffene in fachartikeln öffentlich beleidigen oder nur therapeutisch schädigen sollte...

#jederTagMECFS #MECFS #LongCovid #MEAwareness

Bleistiftzeichnung eines Zimmers mit zwei Fenstern, darin links ein Bett und rechts ein Tisch mit Stuhl. Draussen sieht man ein Haus und einen belaubten Baum. Der Himmel ist leicht bewölkt. Auf dem Bett liegt eine schlappe Person auf dem Bauch, das Gesicht in einem Kissen, die Beine lehnen an der Wand.
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@dioneira.bsky.socialOct 10, 2026, 11:18 AM

Der gesamte Beitrag klingt, als wäre er mit sehr voreingenommen Prompts direkt von ChatGPT übernommen und dass so ein unbelegter Meinungsbeitrag, der komplett dem Forschungsstand zu #MECFS widerspricht, lässt mich vermuten, dass @springernature.com ihn auch mit ChatGPT überprüft und angenommen hat.

@germainehypher.bsky.socialOct 10, 2026, 11:15 AM

A collaged card featuring an old photo of my stepdaughter & her dad, for her 30th. It’s been years since I’ve been well enough to join them on nature outings but I CAN remind them of good times & plant them in a mysterious forest of supersized fungi!

#art #collage #mecfs #chronicillness 🍄 🍄‍🟫 🌳 📷 🎈

A simple collage of a mysterious looking forest of birch trees at sunset with a smiling teenage girl holding hands with her smiling dad, stood behind giant toadstools that hide the lower halves of their bodies.
@liminal-fox.bsky.socialOct 10, 2026, 10:38 AM

Long overdue but I finally started watching Star Trek for the first time.
And honestly that salt craving tentacle monster in the first episode?
So relatable as a POTSie

#longcovid #mecfs #pots #trekkie #scifi