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@jrh2385.bsky.socialSep 25, 2026, 9:52 PM

I had another appointment with my #epilepsy nurse today. My #VNS power has gone up 1 more click, and am planning on gradually taking the Cemobamate earlier to see if it helps with the fatigue, and possibly increasing it again. She suggested spending a week, observed for a week connected to an EEG.

@ismrt.bsky.socialSep 25, 2026, 8:00 PM

Join us for the next ISMRT Virtual Meeting!
Seeing the Unseen: Advances in Pediatric Epilepsy MRI
09 October 2026 | 16:00 UTC

FREE registration for members - Learn more: https://ow.ly/6yqM50ZPRl8

#ISMRM #ISMRT #PediatricMRI #Epilepsy #MedicalImaging #MRTechnologist #Neuroradiology #MRI #MR

@epilepsyexplained.comSep 25, 2026, 6:26 PM

Learn what this study reported about epilepsy medicines, pregnancy outcomes, birth malformations, seizure frequency, and medicine combinations. Talk with your healthcare professional before making any treatment changes. #EpilepsyExplained #Epilepsy 💜.

@redata.bsky.socialSep 25, 2026, 5:18 PM

🧠✨Did you know a common blood pressure drug could help treat pediatric #epilepsy? Learn about the specific drug from Hammer et al.'s dataset and article at doi.org/10.25422/azu... and doi.org/10.1042/CS20.... Image: Hammer et al. (2024). CC BY 4.0. #OpenData #OpenScience #BrainResearch #Neuroscience

Four-panel figure comparing the effects of candesartan (CDN/CND) and phenytoin (PHT) treatments in a mouse model:

(A) Lifespan (Days): CDN treatment significantly increased survival days (****), whereas PHT showed no significant difference (ns).

(B) Survival Curve (CND vs. VEH): CND-treated mice (red) lived longer than vehicle controls (blue).

(C) Survival Curve (PHT vs. VEH): PHT-treated mice (red) showed minimal survival improvement over vehicle controls (blue).

(D) Seizure Frequency (TCs/day): Both CDN () and PHT () treatments significantly reduced daily tonic-clonic seizures compared to their untreated controls.
@psychiatryadvisor.bsky.socialSep 25, 2026, 4:22 PM

Pediatric patients with developmental delays and mixed psychiatric problems demonstrated the highest vulnerability to severe physical comorbidities, including #CerebralPalsy and #epilepsy.

https://bit.ly/4AwQ4Ud

@labelreads.bsky.socialSep 25, 2026, 3:47 PM

Feeling isolated living with #epilepsy? This is a common challenge and you are not alone.

@labelreads.bsky.socialSep 25, 2026, 3:45 PM

There’s a persistent myth that having #epilepsy means one can't hold a job. While that is true for many, millions of other people with Epilepsy work every day across every field imaginable. If you work, what do you do? #EpilepsyAwareness

@tecno-manu.bsky.socialSep 25, 2026, 12:00 PM

Seven years after a workplace accident, my wife was diagnosed with focal epilepsy. This weekend I built a small Android alert app: one big button calls me, opens two-way audio, tracks the episode, and sends a Telegram backup. Still testing, but we feel safer. #Epilepsy #Android

@ebrains.bsky.socialSep 25, 2026, 7:58 AM

🧠 Yesterday, at the Padova Neuroscience Center Distinguished Lecture, EBRAINS CSO Viktor Jirsa explored how Virtual Brain Twins combine individual brain data, modelling and simulation for brain research and clinical applications. #epilepsy #schizophrenia

🔗 www.virtualbraintwin.eu/news/list.html

@disabilitybooks.bsky.socialSep 24, 2026, 8:46 PM

We've added new titles to our children's and young adult's Bookshelf that deal with Epilepsy. For more information see www.disabilitybookshelf.com/neurological... #booksondisability #disabilitywriters #DisabilityBookshelf #disabilityissues #epilepsy @aneladeen.bsky.social

Book covers
@epilepsyexplained.comSep 24, 2026, 6:22 PM

Aphasic status epilepticus can closely resemble a stroke, making prompt EEG and imaging important for diagnosis and treatment. Explore reported aphasia types, clinical findings, and treatment timing in this literature review. #EpilepsyExplained #Epilepsy 💜.

@labelreads.bsky.socialSep 24, 2026, 5:30 PM

A society’s moral strength isn't measured by how it treats the most privileged, but by how it protects those in need. Caring for disabled individuals and people living with #epilepsy is a fundamental part of society's social contract. #EpilepsyAwareness

@epilepsysparks.bsky.socialSep 24, 2026, 12:26 PM

Tune in to hear more from the inspiring neurologist and epileptologist Dr. Jacob Pellinen 🤩 from UCHealth 🇺🇸! 👇

🎬 YouTube youtu.be/0GU_JHT4PtY
🎙️ Podcast share.transistor.fm/s/0a68eea0
📄 Notes www.epilepsysparks.com/epilepsy-spa...
👤 Jacob profile epilepsysparks.com/guests/jacob...

3/3 #epilepsy

@epilepsysparks.bsky.socialSep 24, 2026, 12:25 PM

😮 Guess what. We've presumed for centuries that it's the epileptic seizures causing cognitive dysfunction. But in focal epilepsy, data from the Human Epilepsy Project shows that the impacts aren't as significant as we thought!

👉🎬 youtu.be/0GU_JHT4PtY

1/

#epilepsy #memory #cognition

@ned.tech.lgbt.ap.brid.gySep 24, 2026, 7:40 AM

If I didn't have stress, I wouldn't have seizures. My seizures aren't caused by epilepsy, they're caused by capitalism.

#epilepsy #disability #anticapitalism

@disabilitybooks.bsky.socialSep 24, 2026, 5:00 AM

We've added new titles to our Bookshelf that deal with Epilepsy. For more information see www.disabilitybookshelf.com/neurological...
#booksondisability #disabilitywriters #DisabilityBookshelf #epilepsy

Book covers
@quiltlovinlisa.bsky.socialSep 24, 2026, 3:11 AM

Went with my kid to his neurologist appointment, and his neurologist announced that it was time to start transitioning from pediatrics.

Considering my guy turns 21 in December, yeah it's probably time.

#epilepsy

@epilepsyexplained.comSep 23, 2026, 6:21 PM

Learn what research found when comparing ATL and SAH surgery for drug-resistant mesial temporal lobe epilepsy, including seizure freedom, visual field changes, and postoperative complications. #EpilepsyExplained #Epilepsy 💜.

@labelreads.bsky.socialSep 23, 2026, 4:44 PM

While we believe it, it's hard to tell people with #epilepsy to not to be embarrassed about their seizures. Feelings don't work that way. What we do ask is that no one let that embarrassment hinder reaching out to medical professionals for help. #EpilepsyAwareness

@labelreads.bsky.socialSep 23, 2026, 4:43 PM

Have you seen the long-standing myth that having #epilepsy grants instant creative genius? People often cite figures like Van Gogh or Dostoevsky. While living with seizures can shape one's perspective, epilepsy itself isn't a "gateway to creativity". #EpilepsyAwareness