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@kimvr.bsky.socialOct 2, 2026, 3:07 PM

Sometimes you have to let go of what's hurting you, even if it hurts you to let go. #recovered #anxiety #eatingdisorder #NeverGiveUp #AlwaysKeepFighting #fibromyalgia #MECFS #Erythromelalgia

Photo, no description
@abrokenbattery.bsky.socialOct 2, 2026, 3:04 PM

"This is the opposite of how science ought to work."

George Monbiot on those pushing "false and dangerous" cures for #MECFS, "entrenched" in their beliefs and doubling down rather than admit the "great harm" to the lives of thousands of people.

@tomkindlon.bsky.socialOct 2, 2026, 2:37 PM

Latest update from the CureME team, can be read here and covers a range of topics on current projects, recent publications and sample usage

eepurl.com/QShnc4nywr

#MyalgicEncephalomyelitisg #ChronicFatigueSyndrome #MEcfs #CFS #PwME

@stpaulsbay.bsky.socialOct 2, 2026, 2:06 PM

A treatment sat in every pharmacy this whole time and funding into #MECFS could have shed light on the upstream driver of so many other diseases that share a similar mechanism. By dismissing ME/CFS patients they sentenced THEMSELVES to unnecessary suffering. The biggest medical scandal imaginable.

@meassociation.org.ukOct 2, 2026, 1:41 PM

The American Psychological Association: The hidden harms of medical gaslighting  

Read more: https://www.apa.org/monitor/2026/10/harms-medical-gaslighting 

#pwME #MECFS #LongCovid #Fibromyalgia #Endometriosis #MedicalGaslighting

IMAGE DESCRIPTION: Photo of a woman sat in bed, with her head in her hands. 
Wording reads: The American Psychological Association: The hidden harm of medical gaslighting. 
MEA logo.
@simsamzi.eurosky.socialOct 2, 2026, 12:49 PM

Meine Mutter schreibt (gut gemeint und unbedarft), dass wir ja am WE zusammen ein Stündchen spazieren gehen könnten, wenn ich wollte.

Und jetzt hänge ich hier und heule, weil es einfach nicht ankommt, wie weit weg von meiner Lebensrealität das mit scheiß #MECFS ist.

Im Normalfall kann ich damit

@meassociation.org.ukOct 2, 2026, 10:38 AM

The Guardian Letters: Specialist services are vital to help people with ME/CFS 

"Readers respond to George Monbiot’s article about how those with myalgic encephalomyelitis, or chronic fatigue syndrome, have been failed by the health system" 

Read: https://tinyurl.com/4vryfy2m 

#pwME #MECFS

IMAGE DESCRIPTION: Photo of a hand writing a letter. 
Wording reads: The Guardian Letters: Specialist services are vital to help people with ME/CFS. 
MEA logo.
@mari-19.bsky.socialOct 2, 2026, 10:36 AM

en.wikipedia.org/wiki/Myalgic...
Due to the #MECFS, although I did speed-posting of the newsletter updates, a lot of my Gmail newsletters are left, but I have to go offline until tomorrow morning now.
#ByeBye to all online f(ur)riens, 4 cute #TrashPandas.
Maybe I can work it up tomorrow.
🦝🦝🦝💖💖💖

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@arizona10238417.bsky.socialOct 2, 2026, 9:28 AM

#StillUndLeise #Chefsache #MECFS

Nun ging ein ganzes ¾ Jahr vorbei

Anfragen um einen Arzt/Versorgung verhallen ins Leere gepaart mit tollen Projekten für Wengie/moderne Triage, voller Stolz am Schreibtisch ausgearbeitet

Bin sprachlos
@oezdemir.de

@arizona10238417.bsky.socialOct 2, 2026, 9:13 AM

#CONFIDENCE #MECFS #Chefsache @oezdemir.de

Lösung in Baden-Württemberg nach Jahren

Man überlasse die medizinische Versorgung den Eltern/Angehörigen ohne medizinisches Wissen

Ernsthaft???

#GrößterMedizinskandal

1 Arztteam/Landkreis ‼️‼️‼️

@tauriofsol.bsky.socialOct 2, 2026, 9:12 AM

That feeling when you've used your entire energy budget on a doctors appointment. #MECFS

@hallofrech.wsocial.euOct 2, 2026, 8:52 AM

heute früh konnte ich das erste mal seit monaten wieder an einem tisch sitzen, während ich am laptop bin und musste dafür nicht aufrecht im bett sitzen. es sind ja die kleinen dinge, gell...
#me #mecfs #orthostatischeintoleranz

@michaelnobbs.bsky.socialOct 2, 2026, 8:18 AM

It’s a wonderfully grey day here on my hillside. Just right for a much-needed restful day.

Wishing you the same if that’s what you’re in need of.

❤️🐌

#MorningView #MECFS #pwME #Wales #CreativeHabit

@mari-19.bsky.socialOct 2, 2026, 7:30 AM

Oh, purrobably I furgot to tag you yesterday, I did all free actions on all 7 homepages again too then, and also earlier today. Everything´s okay here, thanks fur asking. It´s only my stupid #BrainFog from the #MECFS now and then that eventually makes me forget to tag you sometimes.
💖💖💖

@ifff.bsky.socialOct 2, 2026, 7:13 AM

Man könnte es auch #MECFS nennen?
#Prävention: nicht krank werden, impfen