@chikocfm.bsky.socialA flare is not a failure. Symptoms can change without warning, and adjusting your day is self-management, not weakness. 💜
@dgmecfs.bsky.socialWeitere Informationen sowie die Förderbedingungen und das Antragsformular finden sich hier: www.mecfs.de/forschungsprogramm
Wir danken allen Mitgliedern und Spender*innen für ihre Unterstützung, die das Forschungsprogramm erst möglich macht. #MECFS
@dgmecfs.bsky.social🔬 Auch dieses Jahr vergibt die Deutsche Gesellschaft für ME/CFS in ihrem #MECFS - Forschungsprogramm Förderungen für kleinere explorative Studien und Pilotstudien. Die maximale Fördersumme je Projekt beträgt dieses Jahr 30.000 Euro. Die Bewerbungsfrist endet am 15. November 2026. ↘️
@mari-19.bsky.socialen.wikipedia.org/wiki/Myalgic...
I´ll go offline now due to #MECFS for today, after I worked up most of the newsletters at Gmail (even some from Thursday & Friday) & posted lots of updates here on @bsky.app.
#ByeBye to my online f(ur)riends, with 4 cute #TrashPanda pics.
🦝🦝🦝💖💖💖
@abrokenbattery.bsky.social“ME/CFS patients are deeply inconvenient.”
George Monbiot on how people with #MECFS need long term support, but governments and insurers have an incentive to “brush it away” and dismiss patients leaving them “massively mistreated, maligned” and “blamed for their illness”.
@mari-19.bsky.socialStupid temporary #BrainFog from #MECFS, I think I accidentually deleted the @blindcatrescue.bsky.social newsletter instead of yesterday´s email reminder to vote for them in the #ShelterChallenge and emptied the Gmail wastebasket, too. Sorry. This had never happened before...
😱😱😱
@mari-19.bsky.socialForgetting These 4 Things Could Be a Sign of Something More Serious, Says Cleveland Clinic Expert.
Fortunately such things don´t happen during my temporary #BrainFog from #MECFS, so I´m not demented yet...
😱😱😱
www.thehealthy.com/aging/mind-m...
@clevelandclinic.bsky.social
@mari-19.bsky.socialOh, and not to forget: The tempoary #BrainFogs from #MECFS, sometimes I´d almost (temporarily) forget my name or where I am, it only happens for a minute or so, then the memories come back, so I´m not demented or so. I´m 55 1/2...
@mari-19.bsky.socialwww.freekibble.com
Free action # 4 of 7 is on #Freekibble, but I forgot the #Woopets clicks and will just do them first.
www.woopets.fr/chien/clics-...
Okay, so #Freekibble actually is free action # 5 of 7 now.
#BrainFog from #MECFS just hit in again, but I corrected it.
💖💖💖
@mari-19.bsky.socialwww.animalwebaction.com/en/
Free action # 2 of 7, after I just answered the question on #FreeTheOcean, is on #AnimalWebAction.
And today my tempurrary #BrainFog from #MECFS is switched off, so I won´t furget to tag @henryandfriends.bsky.social again.
😍😍😍
Happy early #Caturday meowing.
@mari-19.bsky.socialen.wikipedia.org/wiki/Myalgic...
Due to the #MECFS I got up at 2 am German time yet, showered, washed & blow-dried my hair.
BP 108/76, body temperature 36,0°C/95,5°F.
Outside it cooled down to 18,7°C/65,7°F in SW Germany by 4 am.
Happy furry early #Caturday #Samschtig #Samstag #Samedi.
😍😍😍
@bigpolarbear.bsky.social今日はすべり台をお届けします😃
筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。
#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge
@precisionlife.bsky.socialPeople living with #longCOVID, #MECFS and other complex, #chronicdiseases deserve the progress that precision medicine has brought to cancer care.
That requires taking a fundamentally different approach to studying the biology.
So that's what we've done.
@mdmsel.bsky.socialMit #MECFS sollte man kein Magen Darm bekommrn. Nicht mal die wichtigsten Medikamente können so genommen werden.
Schön wäre es, wenn MECFS Erkrankte in so einer Situation schnell Hilfe erhalten, durch spezialisierte medizinische Versorgung, die eingreifen könnte.
Gibt’s aber nicht.
@mia-67198.bsky.social