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@thorsten-runge.bsky.socialOct 3, 2026, 4:13 PM

18.13 Uhr - Frühstück.

#NON24
#MECFS

@kimvr.bsky.socialOct 3, 2026, 3:16 PM

You don't have to be over the past to move forward. You just need to give yourself permission to hold both grief and hope as you grow. #recovered #anxiety #eatingdisorder #NeverGiveUp #AlwaysKeepFighting #fibromyalgia #MECFS #Erythromelalgia

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@chikocfm.bsky.socialOct 3, 2026, 2:41 PM

Am I sad about missing the event, or am I sad about missing the version of me that would have had the energy to go? A profound question to ask when FOMO shows up. Sometimes it's the loss of the energy, freedom and spontaneity you are missing more than the event... #fibro #mecfs #chronicillness

@tomkindlon.bsky.socialOct 3, 2026, 2:35 PM

2/
Photo of Esther Rantzen

#MyalgicE #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Photo of Esther Rantzen
@tomkindlon.bsky.socialOct 3, 2026, 2:30 PM

I thought I would mark Esther Rantzen’s passing.

See image for my thoughts.

May she rest in peace

#MEcfs #PwME #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

1/

Tom Kindlon's ME CFS & related page: News, Research and more Published by Tom Kindlon(tooltip)Only people who manage this Page can see who's published · about an hour ago · I thought I would mark Esther Rantzen’s passing. I remember sometimes watching “That’s Life” on BBC1 in the 1980s so feel I have known her a long time. I was very grateful when she started raising awareness of ME in the mid-1990s. At that stage, awareness levels were not at the level they are now and it was still quite a controversial condition and diagnosis. I remember in late 1997 or 1998 getting a list of press cuttings from Action for ME and a large percentage of them (maybe 35-40%) involved her! She had had huge success getting coverage of the illness. I imagine she helped many get diagnosed as well as helping in other ways. 1996 is when my mum and I started raising awareness and understanding of ME in Ireland, where awareness levels were a lot lower than in the UK. We were very grateful for her doing a long interview on Irish national radio, the Pat Kenny Show if I remember correctly. There was also a large feature in an Irish national newspaper, I think the Sunday Independent which had the largest readership then (around 1 million). I think she would have kept at it but it was Emily (her daughter) who didn’t want all the focus. I remember she quoted something her brother said that she was a grade D celebrity cripple. I disagreed with some of the things Esther Rantzen said in subsequent years e.g. about LP. But I will be forever grateful to her for her earlier campaigning work for ME. May she rest in peace.
@pehpunkt.bsky.socialOct 3, 2026, 2:12 PM

...

#jederTagMECFS #MECFS #LongCovid #MEAwareness

Bleistiftzeichnung eines Zimmers mit zwei Fenstern, darin links ein Bett und rechts ein Tisch mit Stuhl. Draussen sieht man ein Haus und einen belaubten Baum, der sich im Wind biegt. Am Himmel fliegen einige Vögel. Wilde Bleistiftlinien deuten Wind und Wolken an. Auf dem Bett liegt eine schlappe Person auf dem Rücken, die Arme über dem Bauch verschränkt.
@dgspsoa.eurosky.socialOct 3, 2026, 2:00 PM

#PAIS #MEcfs incoming

#DengueFieber
#Florida

@arizona10238417.bsky.socialOct 3, 2026, 12:18 PM

Bitte Herr @oezdemir.de machen sie #MECFS zur #Chefsache in BW

Helfen sie weitere blaue Rosen zu vermeiden

Helfen sie bei Zweifel des Arztes Fehlbehandlungen zu unterbinden

Justitia ist hier auf beiden Augen blind

Es fehlt die rechtliche Grundlage

Bitte helfen sie jetzt

Ärzte für alle ‼️‼️‼️

@germainehypher.bsky.socialOct 3, 2026, 11:48 AM

When we ask, "What is my purpose?" the most direct way to answer it is by asking, "What do I wish to create?"
Jacob Nordby, Blessed are the Weird

What would you create if you could?

#art #CraftSky #chronicpain #chronicillness #chronicfatigue #ME/CFS #mecfs

@jacobnordby.bsky.social

The background is a pastel representation of pine bark In autumn tones. A brown square with beige writing is the following quote: When we ask, "What is my purpose?" the most direct way to answer it is by asking, "What do I wish to create?" Jacob Nordby Blessed are the WeirdThe background is a pastel representation of pine bark In autumn tones. A brown square with beige writing that says: What would you create if you could? Now distill this vision down to its essence. How could you express that, even in your current situation? @craftingapaththroughillness
@mia-67198.bsky.socialOct 3, 2026, 11:31 AM

Das ganze Hickhack & fehlende übernommene Zuständigkeit verschiedener Menschen hat nun als Resultat zu PEM geführt. Toll.

Habe gelöscht, dass ich bisschen froh bin da ich weiß, dass es viel schlimmer geht.

Aber ey, mag lieber stehen lassen: PEM ist scheiße.

#pots vmtl #mecfs

Passt auf euch auf

@chikocfm.bsky.socialOct 3, 2026, 11:19 AM

A flare is not a failure. Symptoms can change without warning, and adjusting your day is self-management, not weakness. 💜

#Fibromyalgia #MECFS #ChronicIllness #Spoonie

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@dgmecfs.bsky.socialOct 3, 2026, 10:47 AM

Weitere Informationen sowie die Förderbedingungen und das Antragsformular finden sich hier: www.mecfs.de/forschungsprogramm

Wir danken allen Mitgliedern und Spender*innen für ihre Unterstützung, die das Forschungsprogramm erst möglich macht. #MECFS

@dgmecfs.bsky.socialOct 3, 2026, 10:47 AM

🔬 Auch dieses Jahr vergibt die Deutsche Gesellschaft für ME/CFS in ihrem #MECFS - Forschungsprogramm Förderungen für kleinere explorative Studien und Pilotstudien. Die maximale Fördersumme je Projekt beträgt dieses Jahr 30.000 Euro. Die Bewerbungsfrist endet am 15. November 2026. ↘️

Schriftzug: "ME/CFS-Forschungsprogramm: Anträge bis zum 15. November - 30.000 Euro Fördersumme je Projekt.
@mari-19.bsky.socialOct 3, 2026, 10:17 AM

en.wikipedia.org/wiki/Myalgic...
I´ll go offline now due to #MECFS for today, after I worked up most of the newsletters at Gmail (even some from Thursday & Friday) & posted lots of updates here on @bsky.app.
#ByeBye to my online f(ur)riends, with 4 cute #TrashPanda pics.
🦝🦝🦝💖💖💖

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@abrokenbattery.bsky.socialOct 3, 2026, 9:57 AM

“ME/CFS patients are deeply inconvenient.”

George Monbiot on how people with #MECFS need long term support, but governments and insurers have an incentive to “brush it away” and dismiss patients leaving them “massively mistreated, maligned” and “blamed for their illness”.

@mari-19.bsky.socialOct 3, 2026, 9:19 AM

Stupid temporary #BrainFog from #MECFS, I think I accidentually deleted the @blindcatrescue.bsky.social newsletter instead of yesterday´s email reminder to vote for them in the #ShelterChallenge and emptied the Gmail wastebasket, too. Sorry. This had never happened before...
😱😱😱

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@mari-19.bsky.socialOct 3, 2026, 8:55 AM

Forgetting These 4 Things Could Be a Sign of Something More Serious, Says Cleveland Clinic Expert.
Fortunately such things don´t happen during my temporary #BrainFog from #MECFS, so I´m not demented yet...
😱😱😱
www.thehealthy.com/aging/mind-m...
@clevelandclinic.bsky.social